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Veteran Member

Date Joined Aug 2007
Total Posts : 887
   Posted 4/22/2010 9:51 AM (GMT -7)   
I just got a google alert, the IDSA are NOT changing their guidelines!  You can go to their website and read all about it.  Kind of what I expected, but still hard to hear.
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009

Regular Member

Date Joined Dec 2006
Total Posts : 79
   Posted 4/22/2010 11:27 AM (GMT -7)   
I am so angry right now that I dont even have the words to express the disappointment I feel.........  maybe one of them should go through what weve been through and then talk about their "scientific studys"on how there science is exact........  ........  UGGGGR

Regular Member

Date Joined Jun 2009
Total Posts : 367
   Posted 4/22/2010 1:44 PM (GMT -7)   
Were the panel members asleep or something during Dr. P's presentation. No scientific studies to support that chronic Lyme exists? Are you kidding me? So sad. This is like a bad joke. Dr. P gave them study after study...there are no words to express how sad I am right now. I felt like throwing up when I read the courant article. What is wrong with those people? I thank god for my LLMD even more right now. The whole thing is disgusting.

Regular Member

Date Joined Jun 2007
Total Posts : 417
   Posted 4/22/2010 3:53 PM (GMT -7)   
"IDSA nightmare"
that's the only thing coming into my mind.
Something must be done.  If we can't work through the IDSA, how can we get ILADS more recognition?  Well, as long as ILADS recommendations are the least attractive to insurance companies, I don't see a loophole.

Regular Member

Date Joined Jun 2009
Total Posts : 367
   Posted 4/22/2010 5:12 PM (GMT -7)   
I never thought they would rewrite them. God forbid they admit they were wrong. I was just hoping they would include the ILADS guidelines as another choice. Let the doctor decide what would be best for his/her patient. Maybe 2 weeks of meds is ok for some. (caught early, no complications etc.) but that is not the case with most of us. Unbelievable that they say they "feel" for the patients suffering. They have no idea what it is like to live with this disease. And to assume the problems we have are pains from day to day living! Yeah, most of my friends that get a headache don't have to soak in a tub for 3 hours to take the pain away. Some people are just so close minded it kills me. I am so bothered by this thing you have no idea.I think Dr. Masters said this:
"data over dogma, evidence over egos, patients over politics."
gotta love that man.

Forum Moderator

Date Joined Mar 2009
Total Posts : 2154
   Posted 4/22/2010 5:15 PM (GMT -7)   
So incredibly sad. Unfortunately I feel it has a lot to do with the health care system in this country. There are no doctors willing to go outside the box. They follow guidelines. They don't treat the symptoms. If you can find a doctor who will listen to you and learn from you, stick with him because most of them think they know everything and we know nothing. I really think they believe the majority of patients are hypochondriacs and give them something to appease them. Why else would they not believe that lyme disease does not simply go away "with a short course of antibiotics." Scary, very very scary.

Regular Member

Date Joined Jul 2009
Total Posts : 113
   Posted 4/23/2010 10:37 AM (GMT -7)   
I just read it. nono Talk about depressing. I'm so angry right now. They should be ashamed at themselves. I don't see how they sleep at night.
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