Any help appreciated

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acerbone
New Member


Date Joined Apr 2010
Total Posts : 1
   Posted 4/22/2010 9:57 AM (GMT -7)   
Hi,
 
My son has an advanced case of Lymes, which was mis-diagnosed for about 5 years.  Since then, he has taken about a year of oral antibiotics, which destroyed his stomach and digstive system.  he then went on about a 6-8 month IV antibiotic tratment which worsened his condition, causing severe neurological tremors, paralysis of 1 eye, double vision, etc.
 
One Neurologist has recomended Gamma Globulin.  Has anyone out there used this successfully?  We are concerned that if there are any bad side effects, it could cause his already delicate condition to worsen.
 
Any help or information wuld be appreciated.
 
Thanks,
 
TC

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 4/22/2010 1:02 PM (GMT -7)   
Sorry he is suffering so much. I did Gamma Globulin injections weekly for 7 months with no improvement in symptoms. I was not able to afford the IVs as here they are $2,000. a piece, ridiculous if you ask me.  I am sorry I do not have better news.  Is he low in IgGs?  D

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 4/22/2010 1:53 PM (GMT -7)   
Sorry to hear that your Son has been dealing with this for so long.

I have not had this treatment however, my neurologist did recommended IVIG as he believes that my autoimune system is out of whack. My significant symptoms are neuropathy and brain fog. My LLMD currently has me on high dose antibiotics, but I will consider the immunogobulin treatment if the abx are not effective.

From what I have read, immunogobulin is a blood product created from as many as 10,000 donors. There are some risks and potential side effects which you can find by Googling IVIG Therapy. I was told that the IVIG would be administered once per day for five straight days at the infusion center at my local hospital at a cost of $10,000. You might want to find out if this is covered by insurance.

My daughter who is graduating from nursing school next month also informed me of a different plasma therapy that cycles your own blood through a machine which removes the antibodies before returning into your system. I'm not sure what the risks or costs are compared to the IVIG.

My neurologist did mention that he has read about lyme patients that have had good success with this treatment.

Please report back if your son does decide to go ahead with this treatment.

Best wishes!
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 4/22/2010 5:21 PM (GMT -7)   
Acerbone, is your son being treated by a lyme doctor? How old is he? I cannot believe he is suffering so long and gotten worse. Do they think perhaps the worsening could be a herx. I am having eye/vision/neuro problems for the first time after oral antibiotics for a year. also, misdiagnosed for 4 years. None of my doctors seem to know what they are doing and my insurance company has denied me IV therapy. I toss between thinking it is a herx or a worsening. Best of luck to you and your son.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 4/22/2010 5:23 PM (GMT -7)   
By the way, have you tried detox baths or drinking tons of water, cutting out sugar, caffeine, all of these have helped me.
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