I tend to go to bed between 9pm-11pm, wake up a few times during the night to pee (I think it's my birth control pill YAZ which has a directic in it) I get out of bed by 8am on most days. I poop for a hour, running back and forth and sometimes it goes on for two hours. PAINFULL BM'S, BLOODY, SKIN AND DIARREAH, MUSH STOOL, stinks to high heaven! I work a full time job, but it's so slow and seeing that there is only one other person in the office, I can basically sleep all day if I want. I take this as the biggest blessing! My boss is very understanding as well. So, I take one nap a day and then at 5pm go work out, go home and cook something. No kids, part time mom of two chocolate labs. There were days I could barely climbs these stairs at work without being out of breath and having to sit down or sleep. Low blood pressure was another horrible thing for me. Constantly felt like I was going to pass out.
I make sure I take my coQ10 every day, this helps with my energy. I do shots of B12 in the leg or arm. I take a liquid vitamin, probiotic pearls, and Diflucan for yeast.
The last four years it's been by GOD's Grace, I was able to move, walk and function with my ulcertive colitis. I felt days where I thought I was dying, going to die, or maybe I would be better off. I hate to say that, but it was the truth. I've been to 16 doctors in 5 years and spent over $30,000 in treatments. Finally in November I was tested for Lyme's and it came out positive. I just wish I was test 5 years ago! I've consulted with doctors in and out of my state spending thousands and getting nowhere.
I kept saying to the doctors I don't believe I have ulcertive coiltis, something is causing it. No one listened, until my last doc, after a year of treatment with him, he finally tested me for Lyme's.
I've been on a 5 months of hard antibiotics treatment I feel. I stopped meds on vacation last week and wow my stool and gut are better. I will give it a few more days see if I continue to see improvement, if not I'll head back on them. I'm still on my UC meds though.
Don't give up. Stay prayful. Stay hopeful. Stay faithful. Cry, cry, cry, let it out, that's healing too. When I couldn't even talk I knew GOD was still hearing my prayers in my mind. That is how sick I was. I couldn't even open my mouth to say help me or thank you to him. I just laid in a ball and cried, why me I'd ask. But now, I'm coming out of it. Antibiotics really have helped me.
Very mild left sided (could have fooled me with the "mild") UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics (for 10 days here and there), not much better. Supplements: No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, stopped those.Started Bicillin injection 1/12/10, once a week of injections.On Zithromax and Flagyl as well, about 2 year protocol to rid myself of bacteria Babesia, Chylmadia Phenomia and Borresliosis. Taking Oxy Aloe Flush and liquid vitamins, curcumin and CO Q10