IGENEX RESULTS - SO CONFUSED!

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springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 4/28/2010 5:33 PM (GMT -7)   
Just paid $520 for Igenex testing for my IV insurance appeal.  Of course all CDC negative!  So frustrating.  IFA was indeterminate and PCR plasmid and genomic were both negative.  As if not confused enough about why everythign would be negative, I have 3 postiive bands on IGM (34+, 41+ and 83-93+ for positive Igenex but negative CDC) and IGG - 39 IND and 41+++ and 58+.  
Can someone please tell me why in god's name would IGM which means more recent be positive and IGG which shows up later be negative.  I just don't get this to save my life.  (which I am trying to do)
 

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 4/29/2010 12:35 AM (GMT -7)   
"Can someone please tell me why in god's name would IGM which means more recent be positive and IGG which shows up later be negative. I just don't get this to save my life."

Lyme is continuously changing its outer surface, therefore the body has to continually make new antibodies. This explains IgM antibodies in late-stage Lyme, especially if the positive bands keep changing. Seroconversion to IgG may be delayed or hindered because of immunosuppression caused by the Lyme bacteria (and/or coinfections). Also, the IgM and/or IgG antibodies may all be bound to Lyme proteins, thus undetectable to the tests.

Somebody remind me why ins. co's insist on a positive test when the CDC itself says Lyme is a clinical diagnosis and that test results should not be relied upon for diagnosis??

I hope this helps - take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 4/29/2010 4:51 AM (GMT -7)   
Yes it does. Thanks so much. So when I was tested in 2006, it had probably converted to IGG bands cause I had symptoms for a year prior and now that I am in treatment for a year, probably changed back to IGM bands as the lyme is awakened and changing form. Is that kinda correct? I have put together an extensive appeal to get IV treatment with the help of a fellow healingwell lymie. If it gets approved, I will be happy to assist those that need help getting approved.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 4/29/2010 5:16 AM (GMT -7)   
Kind-of. But Lyme bacteria can cause a change in bands whether or not one is being treated for Lyme.

I hope you get approved for IV treatment.

Best of luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 4/29/2010 10:53 AM (GMT -7)   
PattiB have you tried appealing?

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 4/29/2010 1:35 PM (GMT -7)   
did you do lengthy legal brief type appeal? I'll let you know how I make out and see if I can be of any help. Didyou have any bands on any tests?

Korissa
Regular Member


Date Joined Oct 2006
Total Posts : 356
   Posted 4/29/2010 5:55 PM (GMT -7)   
Razzle, I think the reason IgM remains positive for many of us is because the bacteria lives in us for such a long time--forming cysts (hiding) and then coming out when it can. So it shows up as recent.

Nicki33
Regular Member


Date Joined Apr 2010
Total Posts : 22
   Posted 4/29/2010 7:43 PM (GMT -7)   
I think it would take someone at an insurance company to get Lyme to understand but then again some people are still to greedy to care!
Have been misdiagnosed for 4 years until March 26, 2010.
 
Thank goodness for good information and the little bit of brain I have left  or I would still be misdiagnosed! Thank you to Rockbridge Labs for letting me walk in and having myself tested and taking my word to pay!
 
Dear Self, Don’t worry, the Lord will protect you. Relax. Be patient. Have faith. Nothing’s too big for God to handle! ~


rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 4/30/2010 5:16 PM (GMT -7)   
I gave up on tests a long time ago, they are not reliable, worse than lie detectors. I was "lucky" to have rashes but don't have faith in the tests, Brain scans or some brain tests show is it grey matter? Its something that shouldn't be there but then this brings into question MS. I wonder if some people have a genetic immunity from maybe 100s of years ago to some of these toxins and other people do not/ I grew up on a large poultry farm where we raised eggs there was chicken sh-- all over, and all of us kids with exception of the eldest who left home before dad built the operation are sick. I don't know if u have heard of morgellons but its less poorly understood than lyme, although concensis is it is in some way related to borrelia and the like. Lyme drs wont take these cases too difficult, cdc trying getting nowhere. One of my brothers has it, its like lyme but he has fibers coming out of skin, he has lost vision in his left eye, he breaks my heart. suicide rate is high and i see why but he is managing.

allieann
Regular Member


Date Joined May 2010
Total Posts : 116
   Posted 8/31/2010 9:01 AM (GMT -7)   
Wow, sure sounds like positive for lyme:

34 outer surface protein B (OspB); specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
58 unknown but may be a heat-shock Bb protein
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

rasputin26
Regular Member


Date Joined Aug 2010
Total Posts : 30
   Posted 8/31/2010 1:08 PM (GMT -7)   
If you have 5 positive IGM bands and 1 positive IGG band, will insurance pay for IV?
Infected: June 2008
Diagnosed: July 30, 2010

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/31/2010 1:30 PM (GMT -7)   
Rasputin:
Let me know if they pay.  DId you test at Igenex or Quest?
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