mckeonjj, sorry to hear about
your sister. Many of us who suffer with Lyme disease become gluten sensitive (I did). I took the test to see if I had celiac disease or if I had gluten sensitivities, both tests came back negative. However, these tests are known for producing false negatives and cannot be relied on. The best way to know if you're gluten sensitive is simply avoiding gluten products, if it helps, then you know you're gluten sensitive.
Regardless, it's best for those of us with Lyme disease to avoid gluten and carbohydrates that come from processed foods. They aren't good for our health and can prolong our healing process. Eating all natural foods (organic as much as possible) is always best for everyone, but even more so for those of us with Lyme disease.
The best place to learn more about
gluten sensitivities is at http://www.celiac.com/ . This website is not just about
celiac disease but a lot of excellent information about
gluten, etc. Great articles there and some really good recipes too. There's also a link for a gluten free mall that offers all kinds of gluten free products. If you have a Whole Foods market in your area they carry tons of gluten free products. I can honestly say, I don't miss the foods that have gluten in them. And now that they make gluten free pasta, gluten free bread, and all kinds of other gluten free foods, your sister really won't be depriving herself of as many foods as she might think. However, many of these gluten free products have a high sugar content, so you gotta watch that as sugar is our enemy.
I used to eat pastry every morning for breakfast and desserts every night after dinner--no more. I really don't miss it, especially now that I'm feeling better. It's so worth giving up a few things that we like to eat to be able to have optimal health. Anyway, have her take a look at this website and I believe she will find it to be full of helpful information. It's been a great resource for me and has helped me to understand gluten sensitivities better. I've found some great recipes there and have occasionally ordered things from their gluten free online mall that I can't get here in town. We don't have a Whole Foods here, but will be getting one next year!
If you have any questions feel free to post them here or click my email icon on the upper left side of this post, right under my name, and I'll be glad to answer any questions you might have.
By the way, is this doctor your sister is going to see tomorrow a Lyme Literate Medical Doctor (LLMD)? I sure hope he/she is. The only doctors who are truly qualified to treat this disease are LLMD's or LLND (Natural Doctors). It's very important she get treated by a doctor who specializes in treating Lyme disease or she could end up flushing a lot of money down the drain. Sadly, most LLMD's and LLND's don't take insurance, not so much because they don't want to, but because they can't. Too long of a story to explain here, but as you search the internet and educate yourself about
this disease, you'll see there's a lot of politics involved that prevents people like us from getting the treatment we need. But that's a whole nother subject that we'll save for another time.
Right now, the most important thing you can do for your sister is make sure she sees a LLMD or LLND and get treated as soon as possible before this disease does more damage to her. The longer a person has this disease, and goes without treatment, the more difficult it becomes to treat. Time is of the essence. Your sister is fortunate to have a brother like you who cares enough to come on a forum like this and educate yourself and do what you can to help her. Often times, family members are not very supportive or understanding towards those who have this disease because they don't understand it. It's wonderful that you are taking the time to understand this disease and helping your sister like this.
By the way, to answer your question about
oral vs IV, that's best left to the LLMD to decide. It just depends on what co-infections she might have and how long she's had this disease. Her LLMD will determine his/her approach to treatment after all of the tests come back and finds out what her symptoms are. And just so you know, there are other options to treating this disease than taking antibiotics. For more information about
those options I'd recommend you look up posts by Deejavu and myself (gwb) and see how we chose to treat our disease and how we better. You can find our threads and posts by doing a search here, but if you have any problem finding them let me know and I'll post the links for you.
Keep us posted and let us know how your sister's appointment works out for her tomorrow. I pray that your sister get the answers she's looking for and will soon be on the path to healing. This is one horrible, dastardly disease that no one deserves to have. Your sister is blessed to have a brother like you who cares enough to help her like you are.
Look forward to hearing back from you when you get some more information from the doctor about