I am new to the board, but not new to lyme disease.
I am a 24 year old female who first began with neurological symptoms (including facial pain, double vision, peripheral neuropathy, and decreased cognitive function) last April. I finally got ahold of a Lyme literate Infectious Disease doctor last October. I was treated with IV Rocephin for 6 weeks and then oral antibiotics for 4 months. Two months before the end of my treatment I felt AMAZING! Just like my old self, and I have continued to feel good since!
a month ago I noticed some hearing loss in my left ear and started experiencing intermittent (albeit intense) ringing in the same ear. I have had problems with fluid building up in my ears after a cold in the past and thought it might be related so I went to see my ENT. After a hearing test he said it was one of two things, either I was having some problem with the nerve or there was fluid in my inner ear (a condition he called hydrops). Believing the latter to be true he prescribed me a diuretic and instructed me to keep to a low sodium diet.
I have had no change in my hearing loss (the ringing has subsided somewhat, but returns when I get tired out or am out in the heat) after 1 week of the prescribed treatment. However, I am now experiencing fatigue, which I am hoping is related to my sudden diet change (I droped 5-7 lbs quick from the diuretic).
All of this just seems too familiar. I don't want to go back to my ENT and have him start rooting around for another cause of the hearing loss and end up racking up more doctors visits and tests just to have them be inconclusive because this turns out to be lyme related.
So what are your thoughts? Did anyone experience full recovery just to end up with new symptoms a few months later? Am I just developing inner ear problems in addition to the Lyme? Or should I revisit the idea of an MS diagnosis (the previous doctors' favorite diagnosis, the old "come back in a year and we'll do another MRI")?
Any insight would be immensely appreciated! I just started reading this board today, but everyone seems so supportive, knowlegable, and articulate. I am very excited I found it!
Post Edited (apeter) : 5/17/2010 5:02:43 PM (GMT-6)