Yes, I can totally relate. It took almost 30 years for me to get diagnosed with Lyme. In all that time, with all the doctors I saw, very few tests were positive, and many of the doctors blew me off because of this. I used to bemoan not knowing what for sure was going on, because the things the doctors were coming up with as diagnoses just didn't quite seem to fit with my symptoms and test results. So I'd be told I had things like "secondary lupus-like syndrome" (whatever the heck that is) or "IBS" because the doctors had no clue.
The only thing I can say is don't give up looking for answers.
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently on TPN due to bowel problems.
Meds: IV Cipro, Heparin (to flush PICC line), Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Milk Thistle, Magnesium, homeopathy.