The unwanted anniversary....five years and counting

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Veteran Member

Date Joined May 2007
Total Posts : 517
   Posted 5/30/2010 9:52 AM (GMT -7)   
Today is the day my life changed forever. It was five years ago on a Memorial day vacation when I went for a hike through the woods in the beautiful countryside of the upper peninsula of Michigan. Soon after returning to the cabin, I noticed a number of ticks, some nymph sized crawling through out my body. I recall thinking to myself I need to get them all off, up to twenty of them, or I my get Lyme disease. Little did I know at the time, my life was about to change forever. I had removed all the ticks; I thought, however after returning home from the holiday vacation in the shower the next morning I pulled an embedded tick from my butt-ox " lucky me". At this time I was uneducated about the risk, and was unaware about the medical community's utter ignorance about this disease. After wasting the next thirteen months going between my PCP, and numerous "specialists" including a ID, GI, and urologist tying to figure out my ever growing symptom list, I finally found a LLMD and was clinically diagnosed with in a few minutes of our first appointment with chronic Lyme disease. Unfortunately for me, my PCP, and the other so called specialist refused to treat me for Lyme disease because of a negative blood test. Now five years later, I have slowly worked my health, and life back to a manageable existence. I try not to blame the doctors that turned a cold shoulder to me, they simply are not educated properly, however I can not seem to stop blaming myself for not pushing the doctors early to give me the ABX so I could have avoided years of pain, and second guessing myself. Now that I am properly educated about this illness, all I hope to achieve is to be a advocate for others who are newly infected. If I can save even one person from living the torture that is chronic Lyme disease, I may be able to start enjoying this holiday again.

Happy Memorial day everyone....

Regular Member

Date Joined Mar 2010
Total Posts : 230
   Posted 5/30/2010 10:31 AM (GMT -7)   
I have great compasion for you having to deal with lyme for five years. Next week, June 7th will be my one year aniversay and I am already at witts end. I was diagnosed and started treatment after only six weeks of becoming ill, unfortunately all I received was the standard CDC guidelines treatment protocol which wasn't enough to cure me. Here I am a year later feeling lousy as ever wondering when this will ever end.

Yes, we need to be advocates for those who are newly infected and warn those that live in endemic areas of taking the proper precautions.
Thanks for posting and have a great holiday weekend!
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.

Forum Moderator

Date Joined Mar 2009
Total Posts : 2155
   Posted 5/30/2010 6:17 PM (GMT -7)   
Cheesehead, I'm with you on this one.  My 5 year anniversary went by in April which is when I remember feeling suddenly nauseous with headaches and rage to be followed by four years of ungodly symptoms and numerous, numerous drs visits with the same explanation of anxiety and menopause.  I knew they were wrong but how hard it was to find the time to search and search for someone who would listen while trying to work, maintain a normal family life, and pretend to be as normal as possible.  I too hope to be able to help whoever I can get diagnosed before they continue to get worse or possibly live a lifetime of struggling with the stigma of "nothing being wrong with you" while suffering debilitating and severe symptoms.  I know my life will never be the same, but figure that each passing day brings something new to everyone, so we move ahead that tomorrow will be better than yesterday.  Best of luck to you. 

Regular Member

Date Joined Sep 2009
Total Posts : 233
   Posted 5/30/2010 7:31 PM (GMT -7)   
I'm with you on this one too! I'm at nearly 5 years myself and my feelings on this are very similar to yours...I also do what I can to spread the word to hopefully help someone else along the way.
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