another CD57 question

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Regular Member

Date Joined Sep 2009
Total Posts : 233
   Posted 6/3/2010 6:55 PM (GMT -7)   
I just got the results of my CD57 test today.  I was told it is 8 percent and that is very good and I no longer have Lyme Disease.  I'm quite sure that is not the case because my pain level is basically the same and other symptoms still come and go.  OK, I know you're going to ask all the basic questions:  I was seeing an alternative MD (not an LLMD, but she treated a number of LD patients under the guidance of an LLMD).  She took a leave from her practice, but another doctor at the clinic wrote the order (so I'd have it for my new LLMD) and "read" the results for me.  First I was told the lab ran the wrong test, and after I pitched a fit and said I wasn't going to pay for it they called me back saying the above.  This test was apparently not the same CD57 test that was ordered the first time from them, so they said the two couldn't be compared because they were interpreted differently.  I'm thinking they just wanted to get rid of me since that was the last contact I'd be having with their office, and they weren't about the eat the cost of the wrong test being run and he didn't really know how to interpret the results.  I requested a copy and will take it with me to my new LLMD later this month, but wondering if anyone is familiar with percentages for test results??

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 6/3/2010 7:27 PM (GMT -7)   
I've never heard of a percentage. A stricker panel is usually numbers. Maybe someone else here knows. I'm glad you got a copy though. I would still make them do it over since the lab ran the wrong test.

Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

Veteran Member

Date Joined Jun 2007
Total Posts : 849
   Posted 6/5/2010 4:57 AM (GMT -7)   
Yes the CD57 Test thru LabCorp at least gives both a % and a number. See if you can locate on the test your actual number.

On mine, it is right above the %.

Regular Member

Date Joined Sep 2009
Total Posts : 233
   Posted 6/5/2010 7:11 AM (GMT -7)   
1bitten2xshy, thank you. This was done by Quest Lab and it looks completely different than the first test I had done by them, which did have 83 as my test result. This one has "Cell Surface Marker, Individual Cell Surface Marker, % of Gated Cell Population 8." The doctor who "read" it I'm quite sure has no idea what this means. Long story short, they weren't about to eat the cost of the wrong test, which I believe they put the wrong order on the test when they sent it to Quest. They were more than willing to have the test rerun, however I had to take 1/2 day off of work and drive and hour and 1/2 to get there the first time. They had no problem doing it again, but want ME to pay for it TWICE! I was lucky enough to have insurance pay for it the first time and am worried they will deny the second test, much less having it run again just weeks apart - the first time it was over $500!

Veteran Member

Date Joined Apr 2009
Total Posts : 1304
   Posted 6/5/2010 9:33 AM (GMT -7)   
Strange.... Altho it was close to a year ago, Quest told me they didn't do a CD57 and I had to go to labcorp. (out of area lab, but Insurance pd a % BECAUSE Quest -- the only covered lab did not do these).

If you have trouble getting this covered, it may help to call your insurance rep -- they are part of the hot shot team that hardsells your employer (or you) on their coverage. I had to call several times and write a few letters, but they ended up covering about 60% of my LLMD (who was not in network) and the CD57, since they could not find an in network Dr to help me.

There is no way you should have to cover their error and I would be sure to let them know that, in no uncertain terms.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Regular Member

Date Joined Sep 2009
Total Posts : 233
   Posted 6/5/2010 9:59 PM (GMT -7)   
Thank you, +Lyme. This really is the strangest situation - like anything about Lyme Disease is NOT strange, right?? My doctor, who I've explained is not technically even an LLMD, went on a personal leave from her practice in January. Her practice was in a regular doctor's office, but was a separate business. Another regular doctor wrote the prescriptions some of the time and actually wrote the lab order for me for this CD57 because I asked for one more CD57 test right as my last prescription ran out, so that I could take it to my new LLMD. I highly doubt he even knew what the test was (long story which I don't care to elaborate on). The first CD57 test I had in January was covered by insurance. My concern is that now that they have submitted the erroneous second CD57 test to my insurance company, the insurance company may refuse to pay for a THIRD CD57 test. If they refuse to pay for this SECOND one that was just run incorrectly, you can bet I will be contacting them again and refusing to pay. I seriously don't want to draw attention to the Lyme mess to my insurance company because they have paid for so little that I don't want to jeapardize having them pay for the little they have covered.
I have no idea what the deal with Quest not being to run it for you previously.  It definitely was sent to Quest Lab - their logo is on the forms.
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