early treatment questions

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bonnieblue
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/5/2010 11:33 AM (GMT -7)   
In early May, I had a suspicious tick bite, but could not take preventative doxycyclin as I have previously had an allergic reaction. Two weeks later, I developed a fever, went back to my doctor, and she put me on amoxicillin based on symptoms. (She did a blood test, which came back negative, probably too early; luckily or unluckily, I live in an area of high Lyme incidence, so the patient is always given the benefit of treatment, even if in doubt.)

After three days of fever and treatment, the fever went away, and I was fine for the next five days. I thought, great, all I have to do is take the 30 days worth of amoxicillin! However, this past Tues. June 1 2010, the fever came back, and has stayed with me ever since. It sometimes spikes to 102 in the night, until I take more tylenol or aspirin, and cool myself down with wet washcloths, as well. Then, it usually stays in the 99 - 100 range. I talked to my doctor on the phone yesterday, and she was concerned about the high spike in temperature, saying it is not usual to have that fever on antibiotics. She said to come in if it happens again, to be reassessed and have more blood work done when the fever is high. She said the amoxicillin might take longer to work, as it is not the front-line treatment.

Most posts that I have read have been about later stage lyme. Does anyone have any information to share on early treatment with amoxicillin?

Also, today my toes started hurting, and I have also noted some sporatic red spots, similar to pimples, but they are not pimples. One is larger, most are on my face, a few in other stray place. Any thoughts on what these might be? Could it possibly be part of a detoxification process?

Any thoughts or experiences would be greatly appreciated. Still in the dark here.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/5/2010 12:19 PM (GMT -7)   
It is possible you have one or more coinfections, and amox. may not treat the coinfection(s) you may have. The red spots may be Bartonella, for example. And fevers...could be Lyme, could be a virus, could be Babesia., or something else... It is also possible you aren't on a high enough dose of amox. but I'm not sure what the optimal dose would be. I'd encourage you to seek help from an LLMD if possible.

I hope you feel better soon. Take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; TPN via PICC (plan to start weaning off again soon).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver (topically & nasally), probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/5/2010 1:57 PM (GMT -7)   
Hi bonnie,
 
Welcome to the forum! If you haven't look already, check out the thread titled, New To Lyme?.....Start Here!" There is some great information in there to help start you on your journey with Lyme.
 
I agree that there is probably a co-infection involved. You definitely need to see a Lyme Literate Medical Doctor so that you can be checked for this and receive the correct treatment. The fevers may be Babesia since they get elevated like that.
 
I always like to post this website page because it is full of information including what antibiotics to take and how much should be given.
 
[url]http://www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html[/url]


Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 6/5/2010 5:26:47 PM (GMT-6)


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 6/5/2010 4:02 PM (GMT -7)   
bonnie,

Razzle and CajunGrl both gave you great information and advice. You really do need to see a LLMD. It's still early for you due to your recent tick bite, so chances of a full recovery are excellent *IF* you get a proper diagnosis from a qualified LLMD. Unfortunately, as good as your PCP might be, and as much as you may like her, she's NOT qualified to diagnose Lyme disease.

What kind of blood test did you get? Was it a Western Blot test by Igenex? I think it's a bit early for anything to show up positive at this point, but the fact that you got bit by a tick is nothing to play around with. Did you notice a bulls eye rash or any type of rash where the tick bite was? If you had a bulls eye rash, then the diagnosis is definite--you have Lyme disease. Lyme disease is a clinical diagnosis. That's why only your LLMD can determine if you have Lyme disease or not.

Your blood test could turn out negative but your symptoms could all point to Lyme. A good LLMD can tell by the symptoms you have if you have Lyme or not. The most reliable and accurate blood test is the Western Blot by Igenex, but most PCP's will want to do an ELISA test which is not reliable for testing for Lyme. PCP's will often times tell you that the Western Blot is not reliable--hooey!

If you've read some of the horror stories here about how much suffering people have endured with this disease, that should be enough to convince you to act promptly, but no matter how promptly you act, if you are using a doctor who's clueless about this disease, and only wants to give you two to three weeks of abx, that's when it's time to make your way out of there and see a LLMD asap.

If you need referrals for LLMD's in your area, click the email icon below my name and send me an email. I will be glad to send you a couple of links to websites who will give you names of LLMD's in your area.

Sorry your condition lead you to us, but you've come to the right place. Welcome!

Gary

bonnieblue
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/6/2010 11:11 AM (GMT -7)   
Thank you Gary, and Razzle and CajunGrl. I will be seeing my regular doctor tomorrow, and will certainly have a better idea of questions to ask. If she doesn't seem knowledgeable enough, I will definitely seek further.

No, Gary, there was no bull's eye rash. I am familiar with it, besides seeing pictures on the web, as two years ago, my husband had a bite, and he developed the distinctive bull's eye rash, and went to the same doctor. He has been fine ever since. We have both had numerous tick bites over the past years, and almost always, we are sure we have been on top of them, gotten them off in a very timely manner. But once in a while, we have slipped up, and this was one of them. Yesterday was the first that I had new symptoms, the red spots, and the toes hurting and swelling, so I will definitely keep in mind the probability of coinfection.

I will ask what type of blood test, although I agree, it is too early for Lyme to show up. She did emphasize that they send it to a lab that specializes in Lyme and Tick diseases, and that they are very good. She did give me a prescription for 30 days of Amoxicillin (3 times a day - 500 ? not with me at the moment, that is why is a ? mark).

Thanks! Bonnie
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