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floridagal47
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/5/2010 9:11 PM (GMT -7)   
Hi everyone im new here just wanted to let everyone know alittle about me,first of all i was told i had fibromyalgia about 20 years ago and my doctor that i have been seeing all these years i beleived and trusted well i was recently about 9 months ago bit by a tick and all my symptoms begain to get worse i ended up in the er with a racing heart chills shaking uncontrolably.  they kept me over night and then sent me home  i was waking up everynight with my heart racing then i begain to get more and more symptoms from weakness to tremors exhaughtsion memory loss tingling and numbness in my arms my hips my knees well right knee was hurting so bad i could hardly bend it i could go on and on with my symptoms but to make this short i went from doctor to doctor to find out what was wrong with me and nobody seemed to help so i was about ready to give up.                                                              so me and my husband had planned our vacation to westvirginia and i was so happy we were going but the ride totaly drained me i thought maybe after the night a good sleep i would feel better but of course i was up at 3:00 am and the same ole same ole no sleep the raging symptoms and i was just so tired in my body . well out of the whole 12 days we were gone i had one day that i enjoyed my self the others i was to weak and sick to enjoy anything well we came home and i searched the internet and found some answers . i took a blood test through igenex labs and i was positive  so i got on line and found a LLMD from a lady that knew one close to were i lived i was so happy the day i walked in to his office and found someone who could finally help me .  little did i know that i had a long road ahead of me i am now in treatment no where near being healed but am feeling better there are days when i can hardly go  but i just keep praying that God will answer my prayers.                                      anyways i still am new to all of this about lyme yeah i ran barefooted and played with our dogs growing up i heard about lyme but never thought anything of it  i am more educated now than i ever have been. but i know there is alot more i need learning about that is why i came here hopeing to find help from yall. thank you so much for you time any comments will be great.. floridagal47

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/5/2010 9:40 PM (GMT -7)   
Hi there floridagal47,

Welcome to the forum! I am so sorry that you have Lyme, but happy that you found us. There are a few things that come to mind when I read your post. Lyme messes with the entire endocrine system sometimes and the fast heartrate you had makes me think that you may have thyroid problems. Have you had your thyroid checked yet? Your adrenals should also be checked as well. Also, the weakness could be caused from low Vitamin D levels. Many with Lyme Disease and Fibro have low Vitamin D levels so you should get that checked as well. Magnesium supplements are a good place to start to help with sleep. I had really bad twitching and muscle spasms and I was also having trouble sleeping. I started taking magenesium supplements and it has helped me tremendously.

Learn all that you can about Lyme Disease. You can start by reading the thread titled, New To Lyme?....Start Here!" There is great information there to help you on your Lyme journey.


Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 6/6/2010 3:30 AM (GMT -7)   
Hi Floridagal47,

Welcome to the Lyme forum! It is good that you already have a diagnosis, LLMD and have started treatment. If your treatment includes antibiotics, you will want to make sure that you take a good probiotic to maintain the good flora in your digestive tract. My LLMD has advised me to avoid all simple sugars, exercise daily and drink plenty of water. Most folks here also recommend detox baths to help with the herx response that many of us experience during treatment. I take my antibiotics with food to avoid stomach pain and gut issues. I highly recommend the documentary Under Our Skin if you haven't seen it already. I have shared the video with some family members to help them better understand the controversy surrounding this illness. I hope that you start feeling better soon.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 


floridagal47
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/6/2010 6:07 PM (GMT -7)   
thank you so much for your response its nice to know there is someone who is going through the samethings and who cares..

InfectedinFL
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 6/8/2010 5:52 PM (GMT -7)   
Hi,

I was just assuming by your screen name that you are located in Florida. If so, could I ask who you used for a LLMD? Been looking for awhile now with no luck.

Thanks,
Jeff

floridagal47
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/8/2010 6:06 PM (GMT -7)   
Hi Jeff, im not sure dont think we are allowed to give out Doctors names on the web sight but if you will send me your email i will be glad to tell you all about my doc. also where in fl are you???VIEW IMAGE
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