rough day - insurance company denied IV again.

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Date Joined Mar 2009
Total Posts : 2154
   Posted 6/7/2010 12:48 PM (GMT -7)   
Having a rough day.  Started out by finding out insurance company has refused me IV again.  I'm in treatment with new dr. who says not to worry she will treat me another way but just got so upset.  On top of that, the letter in fact says "this woman does not have lyme disease."  I am just appalled.  I get so down that I will spend my whole life battling the stigma of the disease rather than expending all of my time and energy on the disease itself.  On top of that, I've been close to tears for some unknown reason with my mind racing and feeling like crap.  I used to be such a strong person.  Now it's a beautiful day and I'm hibernating again.  God help all those who are worse than me cause I seriously don't know how you all do it!  Tomorrow will be better I'm sure.  I have learned to count my blessings but not without tears. 

Veteran Member

Date Joined Jun 2007
Total Posts : 849
   Posted 6/7/2010 3:49 PM (GMT -7)   
Hang in there.

I treated for 2+ years with orals only (tried IV and had an allergic reaction after a week).

Treated for co's as well..and then since last August I have treated for all those positive virals.

Right now I would say I am 90-95%. Maybe even 100% if I was not just having such a fun time with menopause now.

There are many ways to go, and IV is NOT the only answer. Oral combo's work very well, holistic have worked for some here, there is also IM Billicin you could try as well.

Who cares what others think. You know it, your Dr. knows it and that is all that matters in the end!

Try to keep as much of a positive outlook as you can, it really does help!


Forum Moderator

Date Joined Mar 2009
Total Posts : 2154
   Posted 6/7/2010 3:57 PM (GMT -7)   
Thank you so much. Words cannot express how much I appreciate it as i sit here crying. Tomorrow's another day.

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 6/7/2010 4:51 PM (GMT -7)   
Springsjean, I am so sorry you're having such a rough heart goes out to you. Just hang in there and trust that it will all somehow work out as long as you don't give up trying. I know how hard it is and how frustrating it is at times to hear others say that when we are feeling so down and hopeless. I also go through long periods of non-stop crying (and sometimes unbelievable rage but that's another I too was always a very strong person but this darn disease can certainly beat us down, both physicially and emotionally, but that doesn't mean it will break us or that we can't beat it.

I did almost a year of iv's and am still mostly bedbound/couchbound and know how hopeless it feels at times. I'm not on the forum as much as I used to be but I can say without a doubt the people and information on here have saved me. I learned from others sharing their stories that there are others ways of beating this darn disease and even though this is a very misunderstood, lonely disease we are not alone. A few weeks ago I was so hopeless I was about to just give up but then I came across one of Gary's posts and was given renewed hope to keep trying.

I know how it feels to put so much hope into a specific treatment protocol, especially one that seems to make the most sense and our doctors recommend, but that doesn't mean another protocol or approach will not work just as well, if not better. Everything to do with LD is trial and error.

You might want to ask your doctor to submit a letter of medical necessity or an appeal just to give it your best shot. If that doesn't work, move on and hope for the best....keep in mind that there are other protocols that can work.

Hang in there and know that at least there is one place...this forum...where you can come and people will understand.

I hope you feel better.
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