Lyme came back

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jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 6/9/2010 3:58 PM (GMT -7)   
Hello everyone....i havnt been on this site in a while cause i didnt have internet. But i have been on a few times reading about everyone.
 
I went back to the dr today after 5 months cause my spine was in so much pain it was impossible for me to do anything, my kneck hurt and crack and pop, headaches, tirednes, and sensitive to light. He put me on plaquenil and minocin which i never been on ...i have taken plaquenil b4 tho. he also told me to go on vitamon D3 2000 IU /2 day, acetyi-l-carnitine w/ lipoic acid 500mg 2 day and coq10 100mg 2 day. he said these will help with cell renewele and energy and pain in joints. He put me out on leave for 3 weeks out of work so that i can get better. we both agree that with me working its putting strain on my body. I have a very physicle job. I work at the home depot and i do alot of lifting , bending, pulling, ect and on my feet all day. 
 
I was feeling better up till a bout 3 weeks ago. I was getting very dizzy and thought maybe it was alergies. So i took som zirtec and it helped. so i fig oh my lyme isnt coming back but then i started to get spine pain and it wouldnt go away and kept getting worse. Every time i was in the sun I would break out in a rash on my arms and it would itch and burn and i would get lil blisters. so the dr told me next time i get that to take a pic of it and show him. He said thats a symptom of botenellia and possible that i have the coinfection....
 
has anyone ever had such bad pain in there spine that it made them sick to there stomache. I feel inable to do anything right now.
 
 
so i went to have brain lyme to a totaly different syptomes whithin 5 months :(
thanks for listening.
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 6/9/2010 4:55 PM (GMT -7)   
Hi Jennie,
I am so very sorry to hear of your troubles!
I had terrible spine pain before being diagnosed. It can truly be scary. I have also had a 'brain lyme'' - that about scared the life out of me though.
IMHO, although I am no medical doctor, it sounds as if you may not have been treated long enough, or with too low of a dose of abx., or something of that nature.

Did you see a LLMD? The doc you mentioned did seem to know at least some about tick-born infections, but a Lyme Literate MD will know just how much of what to try & if it doesn't work (some people seem to need a treatment tailored just to them & their body).

I'm sure others with a much better working brain will be along to offer more suggestions & support soon.

wishing you peace along the way to finding health -
Trav
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 6/10/2010 5:29 AM (GMT -7)   
hello traveler, thanks for your reply. I was treated off and on cause i would stop my meds cause i thought i was getting better. My dr is a LLD and he also has had lyme himself, so he knows and feels how we do. Your right about he tratments being taylored to my body cause that has been a lonf journy for me. Everything i have been on makes me very sick and i cant handle the meds. this time the dr said that this combination shouldnt bother my stomache ...see lets just see what happens. hopefuly by taking the vitamins and the abx that this willl help me.....

thank you again. I didnt know that it could attack your spine this bad ;(.........................
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 6/11/2010 11:38 AM (GMT -7)   
Lyme has also attacked my appendix (now gone) & my gall bladder(now gone as well). I feel like I'm running out of organs I can live without!!! I also am very grateful that it has not infected my heart or my lungs though.

Once you start a treatment though I would strongly suggest that you stick to it until the very end - you don't want those little buggers to become even more resistant to any treatment!!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 6/11/2010 12:39 PM (GMT -7)   
Traveler i am so sory to here about that....i will keep you in my heart and hope the best for you. I am so scared this time around that something seriouse was wrong and that i really goofed up playting around with not taking my meds. But yes i am going to stay on top of this treatment and hope it comes to an end soon.....feel better ;0)
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 6/11/2010 2:23 PM (GMT -7)   
Yes, please do!! This is a very serious condition - even if it doesn't make you seriously ill, it can still rob you of your quality of life.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

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