Well Traveler, I'm gonna try working on that one.... I am very anxious to hear what this Dr thinks -- my long awaited appt is June 29. And I'm already scheduled for a 2 1/2 hrs consultation.
Lots of people on this forum believe that MS, Parkinsons and fibro ARE Lyme. Still, as you said, you have all 18 of the fibro trigger points and a lot of the rest of us do not.
Maybe it is possible that there is no way to determine which came first. Maybe some type of immunosuppressing illness (like the ones you named) came first and caused SOME of us to be more suseptible to Lyme. ANd maybe for OTHERS, a lyme infection caused the immunosuppressing (no clue on my spellings....) And maybe, for the majority of the population, their bodies fought the lyme and succeeded??
Here is one thing bugging me, and it's probably because I am NOT an expert or an MD: What other infections are spirochetes besides Lyme and syphillsis? Lyme and syphillis seem to be so closely related (meaning spirochetes, possibly many years of 'dormancy', etc). So WHY does syphillis never seem to figure in here? It can be knocked out w/ abx alone. Why are these spirochetes so different?
Oh sheesh, here comes the head hurting all over again......
So Traveler, here is an example of what I am wondering. You said you had RMSF at the age of 5. WEre you treated for it? Then, what was the most recent test you had for RMSF? IF it was looking for antibodies, and you HAVE antibodies, can we be certain that you still have an active or chronic RMSF infection?
Or, as in many other diseases and infections, might antibodies mean that you had it at one time, and so antibodies were produced, but you are no longer actively infected?
Maybe this is part of the huge debate and controversy w/ Lyme. I took my clearly reactive band 39 on the WB IgM to mean I have Lyme, because that band is one of the most specific to Bb infection. My most in depth research into the WB, the bands, and the top LLMDs' opinions indicated that if this specific band shows a reaction, then it necessarily follows that I have Lyme (Bb: active infection)
I still have symptoms, altho they may very well be related to co-infections or the viruses with which I am left.
So, could it be, as with many other diseases, that if I have a positive reaction on band 39 on the IgM, that this means only that I was exposed or infected w/ Lyme at some point, but that my immune system kicked it, and thus the species specific antibodies still lingering around.
Afterall, I probably have antibodies for measles, mumps, and chicken pox. Their presence indicates past infection and now an immunity.
If all this does not hurt the lamebrainlymebrain, then I don't know what else will!
Weary of more research, I aim to have a solid list of questions to ask this Dr, SINCE he is actively involved -- speaking and writing research-- in all of these diseases, ie; Lyme, HIV, HHV6, Parvovirus, EBV, etc. And I trust he will know a heck of a lot more about
all this than I could accomplish in the next few months.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia, chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.