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baseballmom
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/13/2010 8:29 AM (GMT -7)   
I had Lyme 16 years ago and was treated with 2 weeks of an antibiotic (can't remember which one). I did not have symptoms at the time but my dr noticed a bull's eye rash on my neck during a routine office visit. I took the antibiotics and hadn't thought about it since - until recently. My 10 yr old son has some health issues which started with a high fever when he was 15 months old.
 
After much research and many dr's, I am starting to look into whether my Lyme never really went away and perhaps I passed it to him. I recently took the CD57 test and the results were 2% and 28. My Western Blot was negative but I have tons of symptoms that lead me to suspect the Lyme never really went away. My son's WB was positive for Band 41 (g). Sorry to ramble on but I'm wondering if anyone can provide me with information on congenital Lyme or point me in a direction.
 
Also, can anyone email me with a Lyme literate dr in CT?
 
Thank you.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/13/2010 8:44 AM (GMT -7)   
Hi and welcome to the forum! Check out http://www.canlyme.com/congenital.html for info about congenital Lyme.

I know you can get ILADS member LLMD referrals from ilads.org - others here may also have suggestions.

Take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 6/13/2010 9:03 AM (GMT -7)   
Welcome to our forum, Baseballmom!!!
I am sorry that you have the need to be here, but you have come to a good place!

There is definite proof that two weeks of abx is not enough to rid the body of tick-born illnesses. A lot of Lyme Literate docs recommend 2 months.
It would be very helpful for you to read the thread at the top of the forum ("New to Lyme? Start here"), as it contains a lot of useful information.

I agree with Razzle about going to 'canlyme' site - they also have a LLMD referral system.

Wishing you & your son peace along the journey to health.
Trav
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 6/13/2010 11:28 AM (GMT -7)   
Hi baseballmom,

Welcome to the lyme forum! I live in CT, but travel to NY to see a LLMD that was recommended by my pharmasist. If you email me at betterhealth@healingwell.net  I would be happy to send along my doctors contact information. What kind of symptoms are you and your son experiencing?


Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 

Post Edited (betterhealth) : 6/13/2010 3:44:34 PM (GMT-6)


baseballmom
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/13/2010 1:09 PM (GMT -7)   
Silly question but how do I email back to someone directly?

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/13/2010 1:31 PM (GMT -7)   
Click on the envelope icon under the name of the person who posted, over to the left side of their post.
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.

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