Heat intolerance with Lyme's

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Sassy1014
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Date Joined Jun 2010
Total Posts : 81
   Posted 6/17/2010 10:14 AM (GMT -7)   
Does anybody have heat intolerance?  Winters seem better for me.  I am dragging with the sumemr heat.  I have neuro symptoms and never had the joint pain.  Thanks for your help.  I am also getting tested for Addison's.

Jeminij
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Date Joined Dec 2005
Total Posts : 1336
   Posted 6/17/2010 11:25 AM (GMT -7)   
I used to love the summer and spent all my time in the sun pre-lyme, but post lyme, I hate being in the sun now. Makes me feel worse. I get my daily vit D dosage and have a little one, but I sit in the shade now when she plays in the pool, etc.. heat def can make you feel worse and I had neuro symptoms too.

Sassy1014
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Date Joined Jun 2010
Total Posts : 81
   Posted 6/17/2010 11:34 AM (GMT -7)   
Thanks all! Well, Congress just gave funding of $4 million for Lyme's research. It's a start. In five years I think this will become a major epidemic and insurance companies will be forced to comply. I am sorry that we are having these symptoms but glad there are others like me.

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 6/17/2010 12:08 PM (GMT -7)   
Tick-born illnesses are already at epidemic levels, it's just no one will acknowledge that fact!

Heat can make me very, very ill & I no longer tolerate cold very well either. There are quite a few "Lymies" that have problems with temperature extremes.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Sassy1014
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Date Joined Jun 2010
Total Posts : 81
   Posted 6/17/2010 12:48 PM (GMT -7)   
Well, the representative from Loudoun County (number 2 in new Lyme cases...yes, that's where I got mine) is really pushing this awareness. So it's finally getting out there. And thank God for Under Our Skin. It's just a matter of all of us starting to make people aware. Whenever I get into small talk..Like, "How are you?" I immediately say "Crappy. I have Lymes." And I give people a short lesson on it. Awareness is key.
I actually love the cold. I feel much better. I am wondering last fall after the summer I actually went into remission until December when my symptoms reappeared...if this is b/c a lot of the toxins were released in the summer? Hummmmm....

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 6/17/2010 5:13 PM (GMT -7)   
I am intolerant to both cold and heat, more so to the cold. It's more likely that it's related to my under-active thyroid though.

Dowa
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Date Joined Sep 2008
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   Posted 6/17/2010 7:13 PM (GMT -7)   
Toxins will also damage your autonomic nervous system which then makes you unable to tolerate extreme temps, hot or cold. I have what they call autonomic deregulation but I do better in the heat than the cold.  D

Sassy1014
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Date Joined Jun 2010
Total Posts : 81
   Posted 6/17/2010 8:04 PM (GMT -7)   
Very interesting. Thanks D. I am going to research all of this.

deelight2u
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Date Joined Jun 2010
Total Posts : 2
   Posted 6/17/2010 8:33 PM (GMT -7)   
Hi, I am new too, I have many symptoms for a year now, probably had lyme about 10 yrs with other not so extreme symptoms as i have now. Has anyone heard of the Wellness pro Rife machine? Then also the Douglas Coil?

CMRB
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Date Joined May 2010
Total Posts : 39
   Posted 6/18/2010 12:08 AM (GMT -7)   
I as well used to LOVE the heat, i lived in florida for 4 years and it was heaven. this summer things have changed, its not even hot yet and i can feel the affects, it makes me feel awful and totally drained. Seems there is never a happy balance im either freezing or roasting! how annoying!

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 6/18/2010 11:05 AM (GMT -7)   
I cannot tolerate heat or sunlight due to a combination of lupus and Lyme disease. If I'm in the sun more than a few minutes I break out in a rash and my lupus symptoms flare up. Sometimes even I end up in the ER with chest pains! Just like the other posters, the heat makes me even more exhausted than usual.

We're trying to move to the coast where it's cooler and frequently cloudy, which may help!
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


rosesinjanuary
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Date Joined Oct 2007
Total Posts : 748
   Posted 6/21/2010 1:08 PM (GMT -7)   
Isn't it disappointing? I can't stand my white skin but the heat makes me sick and mean. I have also been wantin to trot mi horse enough to tighten the rear, I am like is it worth it?

rosesinjanuary
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Date Joined Oct 2007
Total Posts : 748
   Posted 6/21/2010 1:10 PM (GMT -7)   
How will the 4 million be used do u know? did u read this? thanks lisa

Sassy1014
Regular Member


Date Joined Jun 2010
Total Posts : 81
   Posted 6/21/2010 4:48 PM (GMT -7)   
Hi Lisa...I read it in our local paper b/c our representative, Frank Wolf, is really pushing this issue. His district is number 3 in new cases (Loudoun County, VA) behind CN and RI. The 3.8 million is going into better testing methods and diagnostic tools, research, and to improve reporting on Lyme cases. Hope this helps.

spaztick
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Date Joined Oct 2006
Total Posts : 851
   Posted 6/22/2010 12:22 AM (GMT -7)   
I have a really hard time with tolerating heat, too. Heat from the Summer sun, and the heat from even a lukewarm bath sucks the energy out of me completely.

It's not uncommon for me to continue sweating after drying myself several times once I'm out of the bath. I have to sit down, drink water, and rest for awhile before getting ready. I can't seem to tolerate the cold, either.

And the heat from my laptop often zaps my energy and makes my head sweat, too. Maybe my laptop is doubling as a rife machine.

Heat, cold, bright lights (even the TV at night), too much noise...all aggravating to my system.

Indeed, it really sucks to have Lyme disease.
*Oral Abx Combo Tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '05; Essential Tremor ’02; Fibromyalgia ’00; Osteoarthritis; Depression; IBS; Interstitial Cystitis


rosesinjanuary
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Date Joined Oct 2007
Total Posts : 748
   Posted 6/22/2010 8:57 PM (GMT -7)   
Hi Sassy I hope and pray the research finds some answers, so far this is such a mysterious disease,

3whiteroses
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Date Joined Jun 2009
Total Posts : 184
   Posted 6/25/2010 10:02 AM (GMT -7)   
I do better when I'm warm...the cold does me in. I already feel numb and desensitized - so when I get cold I feel worse.

spaztick
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Date Joined Oct 2006
Total Posts : 851
   Posted 6/25/2010 8:22 PM (GMT -7)   
I used to have very cold feet all the time. Whenever I wasn't standing, you could always find me wearing wool socks, and covering up both feet with an electric heating pad. Happened for a few years. Have no idea how it resolved (? Lyme treatment), but I'm a much happier camper with warm feet. Sweaty, but warm.
*Oral Abx Combo Tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '05; Essential Tremor ’02; Fibromyalgia ’00; Osteoarthritis; Depression; IBS; Interstitial Cystitis


DocGP
Regular Member


Date Joined Feb 2010
Total Posts : 184
   Posted 6/26/2010 9:40 PM (GMT -7)   
Both heat and cold intolerance for me, too...
miserable...
I also get a rash in the sun...tanning during the summer used to be one of my favorite things. Now it just makes me sick.

jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 7/5/2010 6:38 PM (GMT -7)   
the heat is doing me right in...i dont deal with the hot weather as it is, but  with my lyme i have felt worse. today we had to walk to a parade and the way there i felt like i was going to puke, and this has never happened b4 to me. I felt horroble. then i went in the pool for a bit when we got back and the cold shocled me and i couldnt breath right for a few seconds, then the chloorine bothered my eyes and my cheeks started to burn up, i had sun block on also.......i hate feeling like this ;(
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 6/28/2011 6:58 AM (GMT -7)   
Sitting at work with no A/C for second day and just can't take it. Yesterday left my physically ill. I was doing so well for so long but seems the heat is sucking the life out of me. Of course, the recent stress hasn't helped but this disease is just so baffling, that the heat, something I used to love, can just drag you down so bad. :(
Co-Moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: roxythyroxine, bactrim, doryx, amanatadine, neurontin, xanax, cymbalta Prior meds: amox, minocycline, tetracy. IV refused by ins. Supplements: boluke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, coq10

Cat111
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Date Joined Nov 2010
Total Posts : 571
   Posted 6/28/2011 12:12 PM (GMT -7)   
The only heat that bothers me now is indoor heat-- if a room is above 73 degrees or so, I get uncomfortable and usually break out in a sweat.

Outdoor heat-- even when it's really hot outside-- doesn't noticably bother me. Weird. You'd think it would. Sometimes it even makes me feel better. Really weird !!!
Doxy, Amoxicillin, Azithromax. Now on Mepron, Ceftin and Azith. 7 months of treatment and counting.

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 6/28/2011 5:07 PM (GMT -7)   
 
I'm sensitive to heat and cold.
 
I'm aware that people use Rife machines to treat Lyme and other illnesses, but I don't know a lot about it.  I've never used one myself.  In her books, Hulda Clark discusses using them for parasites and cancer, I believe. 
 
From what I understand, a few decades ago, doctors were diagnosing Lyme left and right, and since it's so difficult to fully treat, insurance companies didn't want to pay for treatment, in turn prompting doctors to diagnose it less.  That leaves us where we are today. 
 
Secondly, some of the doctors on the front lines have been trying to get the CDC to listen to their research, experience, and information for years, but the CDC continues to ignore them most of the time.  Ritchie Shoemaker discusses his battle with the CDC in his book, Desperation Medicine.
 
Also, the army has the most accurate tick dispersal information, because they don't want their people getting Lyme during boot camp.  For some reason, the army and the CDC do not communicate with each other.
 
Best wishes for good health!

DocGP
Regular Member


Date Joined Feb 2010
Total Posts : 184
   Posted 7/5/2011 5:40 PM (GMT -7)   
I have always been beach person, but now it makes me sick. I tried to grin and bear it this weekend, but I am so sick I am now considering the ER. I just want my life back. I can sympathize.

+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 7/5/2011 9:47 PM (GMT -7)   
Yes, definitely yes.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
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