Questions: Back and neck pain; mental illness

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+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 6/22/2010 8:01 PM (GMT -7)   
1)I've had scoliosis since a child, had always believed it to be mild, but it is now severe. Very severe. It starts at the top of my neck (one side of my face is slightly forward) all the way to my tail bone. And one side of my pelvis is substantially lower on one side.  I have 2 signifcant curves and rotoscoliosis in that my spine not only curves, it twists and rotates in those curves.
 
So I've experienced a lot of neck and back pain most of my adult life. My neck pain (have several herniated or crushed disks) had been much improved up til the time of THAT tick bite in May 2007. Also, my back pain has increased -- not necessarily more severe than before, but severe and much different than before. Also get massive muscle spasms all over my back and on my sides.
 
Judging from my xrays, I can see why it is worsening.
 
My question is this: When back and neck pain are associated with, CAUSED, and/or symptoms of Lyme, what exactly is it that is causing the pain?  ie; what has the lyme attacked that causes this pain? ie; Does Lyme attack the spine in some way? For example, could Lyme have made my scoliosis worse?
 
2) Mental illness: My psychiatric (NOT psychological) symptoms are worsening significantly. Can't try to describe them here (altho we have in past posts).  My mental/emotional illness feels out of control and totally unmanageable.
 
There is a lot on here about ammonia on the brain -- seems it's usually related to cognitive issues and brain fog. Im not talking about these. I'm talking about what feels like a complete and total mental/ psychiatric  breakdown. Like I'm going whacko.
 Like my mind is out of control.
 
I know there are certain treatments for these 2 LYme issues, for example antibiotics along w/ certain diet and detoxes.
 
Here is my question: If I am properly treated for Lyme + co-infections, and IF I am able to be cured of Lyme, WILL those 2 issues naturally resolve? Or will I be stuck w/ them?
 


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4306
   Posted 6/24/2010 3:47 PM (GMT -7)   
Hi +Lyme,
 
Detoxing heavily may help you more than you can ever guess.  Ammonia causes damage and really bad symptoms besides cognitive issues and brain fog.   Ammonia accumulates in the joints, tissues, almost every part of the body including the liver.  You may want to look into Dr. J's Neuro-Antitox formulas, what do you have to lose?
 
Hope you feel better,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/24/2010 9:15 PM (GMT -7)   
Thank you, Denise. I must admit that you are absolutely right.

However, I have not yet received any answers to my questions above. NOt that anyone has the answers --- I would still like to hear opinions. This is regarding WHAT symptoms/problems are resolved w/ Lyme treatment, and WHAT are not??

And this regards the 2 symptoms to which I am referring in my post above.

Anybody venture here?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 6/25/2010 7:01 AM (GMT -7)   
Second try, here.

I had neuro symptoms that were greatly helped with abx treatment. The combo of being prone to anxiety, the knowledge that I had lyme and what it can do to a person, the herxes and menopause completely undid me and yes, I felt like I was going crazy. Abx, an encouraging dr. and hubby, a few months of antidepressants and I started to feel better, but I am not the person I was. My world has narrowed tremendously. I still have tinnitus and noise sensitivity that keeps me from doing things like going to a movie. I don't do much of anything, but go to work and walk my dog. I always feel like I'm on the edge of losing control.

I've been listening to the testimony presented at a hearing in PA for a lyme action bill. Several patients spoke about their extreme cognitive impairment. But everyone of them improved dramatically with treatment.

Hope this helps with your questions.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 6/25/2010 12:20 PM (GMT -7)   
Okay +Lyme, this is only my opinion, but here it goes;

I believe that Lyme & co's can & do worsen any condition. As an example - I believe that had it not been for TBI's, I would still have several internal organs that had to be removed & that the joints in my fingers & toes wouldn't be constantly swollen, among other things. Tick infections can damage even the bones, hence Lyme arthritis.

On the cognitive issues - I was doing okay - other than brain fog - until I suddenly had a brain infection from Lyme. I actually feel like most days now I have very little control over my brain - things like never knowing what I will remember (even if I write them down), stuttering, word finding issues, not being able to express myself or my thoughts, not being able to control where my brain goes (kinda like ADD) or where it gets 'stuck', not having any control over my concentration levels, some days not being able to understand the written language, or once in a while even spoken words, smelling things that aren't really there & well,... I'm sure you get the picture.

I have read that several knowledgable docs believe that there is most always some healing that will take place, once the body is rid of the infection. How much damage a person is left with depends not only on how long that person had the infection, but that persons' predisposition to those "issues". One doc even went so far as to say that it is possible to even regain some of what were previously 'lost' memories.

Once again, let me say, this is only my opinion though.
-Live simply- Love generously- Care deeply- Speak kindly. May we all find peace along the journey to find healing.
Trav


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 6/25/2010 12:28 PM (GMT -7)   
Caldonia Sun - I was digging through a bunch of info on tinnitus not long ago, as I was suffering from it on a constant basis & discovered that tinnitus can be caused by dry ears of all things!! I had no clue that there was such a thing, much less that I had this.

You might want to look this up as well, but essentially all I do is not use a "q-tip" on or in my ears any more unless I get "one of those" itches down in my ear & just can't take it any more!! Then all I do is dip the "q-tip" into olive oil &, of course, with out going down into the ear very far, wipe the walls of my ear canal with the olive oil. I have been amazed at the improvement in my tinnitus.

Just a thought
-Live simply- Love generously- Care deeply- Speak kindly. May we all find peace along the journey to find healing.
Trav


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/25/2010 12:46 PM (GMT -7)   
+Lyme, I've been having serious back pain since 2007, and it's been getting worse and worse. I just recently had MRIs of the spine and they found that I have degenerative disk disease which is causing several pinched nerves. The Lyme connection is apparently this: the discs in your spine contain a lot of collagen, which the Lyme spirochetes like. Lyme can apparently cause disks to bulge and/or rupture. So I believe that Lyme (at the very least) made my DDD much worse; Lyme may be the direct cause of my problems. I'm in a wheelchair if I have to go very far or stand very long (more than 5 minutes) because of my back pain.

So IMHO, the answer to question #1 (could Lyme make your scoliosis worse) is yes.

Unfortunately I have no answer for question #2 (re whether or not psychiatric and/or scoliosis symptoms remain after "getting rid of" Lyme).

Take care,
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com

Post Edited (nasalady) : 6/25/2010 1:51:05 PM (GMT-6)


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/26/2010 7:59 AM (GMT -7)   
Thank you, everyone, for your posts here. 
 
 nasalady, I am so sorry you are in a wheelchair. It's horrible that it has gone that far.  It is a tragedy.
 
I am sorry for everyone's misery. It's all so unfair -- that this is all a result of ignorance, politics, and downright meanness.
 
I also have degenerative disk disease, spondylosiswhatever, and ankyspondylosiswhatever. Bone spurs, rotation, twists, and vertebrae on top of other vertebrae, some look crushed.  It's such a mess.
 
My chiro told me there is really no point in having an MRI. He said it is clear from the vertebrae in my xrays that disks must be bulging, herniated, crushed, destroyed, and or no longer there (between  vertebrae)
 
 I feel that Lyme sure hasn't helped, nor did almost 20 years of waiting tables.
I know treatment can't fix these things, but pray for at least the degeneration and worsening to stop!


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Post Edited (+Lyme) : 6/26/2010 9:03:50 AM (GMT-6)


jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 6/26/2010 6:33 PM (GMT -7)   
+lyme....can they operate at all on your back to relieve some of your pain? ws that evern an option for you....
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg

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