Patti, God bless you,
I am so deeply sorry for your entire situation. ALL of this is so unfair.
YOu know, I am so angry about the 'bailouts' because they were so unfair --- thousands of us have lost money and ruined lives, yet where is OUR bailout? I was a lowly mortgage processor, but I was going to do that until retirement. Then we all got wiped out. Where was OUR bailout?
I wish I knew of something I could do or say that would help. Please don't say that you are supposed to 'move on'. I am nowhere NEAR as sick as you are, but I am familiar with that feeling. It is the disease talking. I am convinced that is part of the course of this disease in humans.
Maybe this is more than you can handle right now, but I am wondering if there might be a medical malpractice attorney out there who could help you. I realize you don't have the money for it, but there are atty's who will give a free consultation, proceed, and then charge you only if you win. (an arm and a leg, I'm sure, but maybe you could get enough for proper treatment)
I am a municipal court clerk and one of our Judges specializes in medical and product liability suits in his private practice. I do not see him often, but I am going to ask him about this kind of situation. Because it's possible I could find myself in that spot, as well.
You have a professional diagnosis. (SAme for Nasalady. Why should you have to take another WB??)
Some of the possible treatments may not even be that expensive. I don't know about your co-infections, but some Drs treat Lyme with weekly shots of penicillin and that is CHEAP. Way too cheap to deny someone!
I don't know what else to do besides pray. Maybe you can't keep fighting, but please don't stop praying for a miracle. And while you are praying, pray for your entire immune system as well. Try to visualize the healing hand bringing your immune system to a new life.
I am also wondering about all the LLMDs who are forced to close their practices. I have learned that the LLMD that I saw last summer no longer treats lyme because of the threat. I don't believe we know the truth and the scope of all this. I would think that these Drs would try to come together and get legal council themselves, wouldn't you?
Do you know the specific reason(s) your Dr was forced to close shop?
AS I've been saying, I will be seeing an infectious disease Dr on Tuesday. I have no idea yet if and how he treats Lyme, but he is referred to as an LLMD. Specializes in AIDS, chronic fatigue, MS, and Lyme. I will have many questions for him about all this.
Patti, I will certaily pray for some relief for you -- relief and new found hope. And I hope that ALL of us here will pray for your whole family.
I don't usually say all this to everyone here who is suffering, but I want for all of you to know that I feel the same for everyone here. I pray for mercy for everyone.
For some of us, prayers are all we have left. Miracles do happen, tho.
And I firmly believe that Lyme infection CAN be cured -- it's a freaking spirochete, even if a crafty one. Everyone's body and immune system is different, so different people are helped by different things. Still, this is an infection and it CAN be cured! It HAS to be! We MUST be assured that there are Drs working on this problem! Let us hope and pray that their research is not cut short by the government!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia, chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.