New book "Ending Denial"

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Razzle
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Date Joined Aug 2007
Total Posts : 4399
   Posted 6/27/2010 7:37 PM (GMT -7)   
I just got the book, "Ending Denial" (subtitle:  "The Lyme Disease Epidemic - A Canadian Public Health Disaster"), Edited by Helke Ferrie.  I got my copy from lymebook.com
 
Reading the begining of the book has me very glad I got this book.  It goes into the whole thing of the Antitrust suit against the IDSA's guidelines, and the agreement with the AG of CT, as well as the rigging of the vote with the review of the guidelines earlier this year/late last year... and the book also includes some of the published articles on chronic Lyme, and the ILADS guidelines, etc.
 
I'll post again once I've finished reading the whole thing.
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


Deejavu
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Date Joined Aug 2005
Total Posts : 4297
   Posted 6/29/2010 3:27 PM (GMT -7)   
Appears like an interesting book Razzle..  I found the link here:
 
 
This is interesting about 1909:
 
"This tick-borne infectious disease is spread by deer, cats, dogs, horses, field-mice, and migratory birds; more than 200 strains of the causative spirochetal bacterium have evolved since it was first described in 1909.
 
Yet, Canadians are routinely told by their doctors that Lyme does not exist in Canada and that there is no such thing as its chronic form – its most devastating form, also known as “the great imitator”: More than 19,000 publications in mainstream clinical journals have shown that chronic Lyme may develop into Parkinson’s, ALS, Chronic Fatigue Syndrome, Fibromyalgia, Arthritis, Alzheimer’s, Crohn’s, Scleroderma, and up to 50% of Multiple Sclerosis may be due to untreated Lyme infections. The spirochetes cross the placenta and also enter into breast milk, so many cases of autism have been proven to be due to the Lyme spirochete."
I once knew a girl who became infected with lyme who lived in South America (I think it was Brazil) and of course she was told that lyme doesn't exist there.  She traveled to the states to get treated (after sending her blood to IgeneX) since the doctors where she lived knew nothing about lyme disease.   I have not heard from her so I have no idea how she is doing today.
 
Keep us updated on this book,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/30/2010 5:16 PM (GMT -7)   
Will do - thanks!
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 6/30/2010 8:24 PM (GMT -7)   
HI RAZZLE,
My old friend. how are you, baby??? say Hi to Mom and tll her I got bunch of living young oils the other day
and was thinking about her.

so this Canadian thing is freaked out. How does the whole Plum Island theory play into this?

Are the birds now taking it up to canada? is it the deer? Are there black pocket areas like on the map of US showing
highest rate of lyme ( reported that is)?
hep c , lyme
Dad has lyme


mattnapa
Regular Member


Date Joined Nov 2009
Total Posts : 32
   Posted 7/4/2010 7:48 PM (GMT -7)   
Do folks here have an idea if there may be other insect related vectors for Lyme other than the tick. I have seen papers that have claimed mosquitos and nymphs can transmit it also. Is anyone even studying this?

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/4/2010 8:11 PM (GMT -7)   
mattnapa, There are some on here who maintain Lyme can be caught by mosquitoes and fleas, altho mainstream medicine denies this.

However, I do know for a fact that the nymps do transimit lyme -- that's in almost all of the literature --- and they are esp dangerous because of their size. They nymphs can be as tiny as the period at the end of this sentence. They can easily be overlooked and they can feed and drop off without the host knowing anything about a bite.

I believe I was infected by a nymph, given the early time of season and the fact that it was still tiny after being on me for at least 2 days.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 7/5/2010 5:37 AM (GMT -7)   
I've heard or read that spiders, horse flies, mosquitos, fleas, ticks (including nymphs), and red fire ants can transmit Lyme/coinfections...

Still working on reading the "Ending Denial" book...

Bucci,

I don't know what all reservoir animals can carry Lyme in Canada, but suspect it includes birds, rodents, deer, etc. - same as here in the US.

The official position of the government in Canada is that Lyme does not exist in Canada in general (reporting is low due to the same factors as in the US - lousy tests, poor education of MD's, and all the mis-information from the CDC/IDSA that the Canadian health officials/government follows blindly)...at least, this is the impression I get from the pages I've read so far of the book.

Plum Island stuff - I haven't gotten very far in the book, so I don't know yet if it is discussed in the book.

As for how I'm doing, I could be better, but am still on the journey trying to find what will work and not cause more problems...you know how it goes.

I hope everyone had a good 4th of July...

Take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.

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