My Gosh, Bucci
, what great questions! You know, it is pathetic, as long I took, carefully writing my history and symptoms out for Dr, and even tho I had plenty of time w/ him, there are one zillion questions that I did not ask.
A LLMD tested me for Bart last year and it did not show. He diagnosed Bart based on my symptoms, however, my new Dr said he is not concerned w/ that right now. From what I've heard about this Dr, he generally uses one abx at a time, depending on the state of the patient. When he heard the words, 'pain free' come out of my mouth (in reference to a couple of months after the Amox), he was all over that.
So, no, Amox is not necessarily his abx of choice, but it was his first choice for me since I'd experienced a lot of improvement after those 2 months of HELL. He said, of course, it is entirely possible that the Lyme only went into hiding while I had Amox, but he wants to try it for 6 months and see where I'm at.
He is concerned about Babs, tho. I tested positive last year and was not treated for it. He said, believe it or not, he's had a couple of patients who had babs get better w/ abx. It is possible it is not specifically the abx that kicks it, but the improvement in the immune system. I tested positive for Babs microti, but there is another strain that he's seen that he's also testing me for. So I don't know yet what he will do in regard to those results yet.
YOu know, I don't know if he's the BEST LLMD in the world, BUT, he is totally dedicated to all these problems -- all the illnesses I named above. (I posted a link to a paper he wrote on HHV6 awhile back) He says Lyme is so darned difficult to figure out that he believes a lot in 'don't fix if it ain't broke'. That is why I'm starting on Amox. I tolerated it well physically, except for the herx from hell (mentally, not physically)
He did talk a little about other abx, it is just that everyone responds differently, so he takes it as it comes. ONe thing different that I have noted, is that he usually treats the lyme first -- even tho other Drs choose to treat co-inf first. But it's the lyme that compromises the immune system.
No, he did not mention chladmidia pneumonia and I really didn't have any reason to bring it up.
This Dr either had lyme or had family w/ lyme -- I forgot and I forgot to ask him. But he is involved w/ all kinds of immune disorders, not just lyme.
As for tonsils and appendix, note in my signature that I had both of these removed within a couple of years after a bad tick bite I got in '72. He agreed that I must have had a TBI but said he didn't know which one would cause the bad chronic and acute tonsillitis I kept getting after that tick bite. I miscarriaed, too, I think about 2 yrs after the bite. and then about 1 yr later I had appendicitis while 5 months pregnant. We'll never know about all that.
Bucci, are you asking about those because you had lyme as a child and those (tonsils and appenx) were affected? Or are you asking because you believe that having these removed made you more susceptible to Lyme?
I asked him (being and ID Dr) if he believed in detoxing. He laughed and said that depended because 'detoxing' covers a huge range of things and he does not believe anything extreme is helpful. As for epsom salts and peroxide baths, he said he did not know. He just said that epsoms feel good to soak in and if this makes you feel better, then you should do it.
I did not ask him about magnesium. He has a full list of all the supps and meds I take and did not comment.
I'm so disappointed in myself, having waited so long to see this Dr and then forgetting so many questions!
SO different from so many treatments on here, so it will be interesting. And yeah, he stated positively that I will feel worse before I feel better, so I am dreading that. But he's hoping that a lower dose of Amox will be more appropriate for me.
Also note that he prescribed Amox w/ Augmenten. (which is usually in the high doses of Amox). I found this, 'This combination results in an antibiotic with an increased spectrum of action and restored efficacy against amoxicillin-resistant bacteria that produce β-lactamase'.
I suffer w/ dental lyme as well. My entire mouth is SORE, it throbs, and rinsing w/ mouthwash hurts like heck; teeth very sensitive (even to toothpaste), have had several extractions, root canals, etc, a few teeth that have broken, and one that just fell out, for no apparent reason.
Bucci -- I am not on top of everyone here. Please tell us about your hep C (and if you just did, send me there) That is so darned serious, far moreso than lyme. I have a bro-in-law who HAD it, and swears he cured himself. Quit drinking and smoking, of course, and gave himself injections of interferon.
And where are you and your Dad, w/ the LYme?