Some advice needed....

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Regular Member

Date Joined Sep 2008
Total Posts : 24
   Posted 7/3/2010 4:45 PM (GMT -7)   
Hello Everyone! It has been a while since I've been on this site. I was first diagnosed in 2005, and was successfully treated. It took a few months of antibiotics and a few months of some herbs. And then I started to "flare" again last fall. After being unsuccessful with my regular llmd, i went to another for a second opinion about being retreated. She put me on antibiotics, which I've now been on for a couple months. I am feeling no difference, other than my gut is killing me from the antibiotics. I really don't want to stay on antibiotics much longer, but she says one month past when i "feel like myself"; besides the fact that i don't even know what that means anymore... I haven't come close to having that happen yet. Any encouraging words or suggestions as to what i should try?

Also, I have put on about 20lbs in the last year, since i flared. I cannot get them off for the life of me. I'm on a gluten free diet, and do not over eat. Its getting extremely frustrating trying to lose weight while having absolutely no energy to do so!

Thanks so much for any input I can get!


Regular Member

Date Joined Mar 2010
Total Posts : 230
   Posted 7/4/2010 6:30 AM (GMT -7)   
Hi Mary,

I have talked to many people who have fully recovered from chronic lyme using antibiotics. Most of them have stories of long term treatment with a variety of abx meds used along the way. I'm a year into this now and suspect that I might be further along in my recovery had I sought out an LLMD much sooner in the process. I too have gained 20+ lbs this past year having gone from being very active to almost entirely inactive. I have reduced my sugars considerably since starting treatment in April and have no energy for exercise not to mention feeling lousy most of the time.

Many of the members here speak very highly of some of the natural protocols and promote consistent detox therapies. I will do this next if I have to abandon the antibiotics for any reason. On a positive note... My brain fog and mental ability has improved significantly over these past few months and I am extremely grateful for that. I hope that you start seeing some improvements in your health real soon.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin, Ceftin.

Veteran Member

Date Joined Jul 2005
Total Posts : 570
   Posted 7/4/2010 12:29 PM (GMT -7)   
For those of you who are on an abx protocol, please understand that the detox baths are beneficial to you too. Everyone, no matter what protocol you're on, can benefit greatly from detox baths. I took one this morning before church and the arthritis pain was reduced considerably. I felt great afterwards--still do. Do them three to four times a week--you'll be glad you did. :-)

Recipe for detox baths and other detox recipes can be found on the front page, "New to Lyme--Start Here".


Post Edited (GWB) : 7/4/2010 1:32:31 PM (GMT-6)

Regular Member

Date Joined Sep 2008
Total Posts : 24
   Posted 7/5/2010 5:23 PM (GMT -7)   
Thank you so much for your replies. I have been trying to limit my sugars as well as stay on the gluten free diet.. I've also been doing detox baths every other day for a week now... I guess its just going to be a long road? Its been long enough for me, and I just can't stand not having enough energy to ride my horses, its peak riding season! :( Thanks for the support though!

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