The way I see it, lyme is really a clinical diagnosis based on one's symptoms. I knew I had lyme before I tested positive based on my symptoms. I went from being a very healthy lady to one sick puppy (I had a very stressful situation which I think compromised my immune system) and nothing made any sense. For 5 long "depressing and frustrating" years I went from doctor to doctor as I got sicker and sicker and they all told me I didn't have lyme. I was told I had chronic fatigue syndrome, or I was depressed, or it was all in my head, and the list goes on.. I think most people here can relate. I was so desperate for a diagnosis that I would have taken cancer at that point, no kidding.
I became so disgusted with all the doctors I saw that I decided to do my own research and knew I had lyme, test or no test. Sure, I was thrilled when I finally tested positive but only to confirm what I already knew.
All I can say to you and everyone else who is reading this is if your current protocol is not helping you, it's time to look at the other protocols out there. Antibiotics didn't do anything for me except make me sick to my stomach. I wasn't on them for a very long time but long enough to know they were not helping me. Looking back I was praying that they were helping and kept saying to myself "I'm getting better!" Ha, I was only fooling myself because I wanted to be better in the worse way as everyone here does.
After the antibiotics my doctor refused to prescribe anymore for fear they would do damage to me so I felt really scared because at that time I thought that was the only answer to getting better but he did me the biggest favor in the world!
I had tried some alternative medicine (silver, samento) but it didn't help.. I also didn't know about detoxing back then and how important that was and still is.
Yes, I felt really depressed and very lost.. Then someone on another forum mentioned Dr. Jernigan's book and was really impressed by what Dr. J. had to say. I was still skeptical about trying his protocol until another person went to his clinic and her husband posted about his wife's recovery after her suffering for 30 years. That's when I said to myself "open your mind Denise and buy the book, what do I have to lose?"
The rest is history, I got better using Dr. J's "healing at home" protocol and learned so much about this disease, detoxing, etc.
Thus I feel your frustration as well as depression.. I walked that road and it was the most horrible road I ever walked..
Hang in there, you will and can get better,
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!