Patti, I am so very sorry for all your difficulites -- that's all bad enough, without having to add the issues in receiving treatment! Please tell us this -- might you be able to tolerate regular shots of penicillin? My first LLMD said that is how he treats some patients -- a strong shot of penicillin once per week. It's darned cheap, you can receive a high dose w/o bothering your stomach, and altho it does not help many people, it DOES help many people too. When you think about it, this is how syphillis is treated, except not as long term.
Just something to consider. That Dr even told me he would show me how to give myself the shots and I could do them myself without having to travel to him every week. I chose to start w/ oral Amox (he agreed this was good), but would certainly have considered the penicillin shots. They are some strong whammies.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia, chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.