LymeLee and others...
I don't get it! In his book, he says that his patients don't herx...that herxing is bad and represents incompetence in the medical provider. Why should LymeLee be suffering? I know I am a skeptical doctor, but I am also a doctor who knows that there are always risks in taking various products, especially non-FDA regulated ones, into one's body. No, the FDA is not the end all and be all, but at least they do have some rules. I am worried for LymeLee...the fever, the bone pain...I am concerned. Dr. Jernigan specifically says that people should not suffer on his treatments.
LymeLee, how are you today?
DocGP, you ask, why LimeLee is having so much trouble with the healing at home protocol if in his book he says herx's should never happen with good treatment. In Dr. Jernigan's book he is referring to the person who is under the care of a doctor shouldn't have severe herx's...not just someone treating their self at home, even with the Perfect 7 protocol. Treatment at the clinic bears little resemblance to what the Perfect 7 Protocol says.
As Dr. Jernigan explained to me, when I asked him about
the home protocol and the differences between this and treatment in his office, this is what I recall him saying, "the Perfect 7 was developed as a best educated program to fit the average person with Lyme disease". If people are getting worse on the protocol they likely need the skill of what the doctors actually do in the clinic to tailor the treatments to their specific condition.
I don't think Dr. Jernigan has ever said in his book that no one ever gets a herx with his treatments. I recall him saying that, "Severe herx's that are just thought of as "good medicine" by antibiotic-prescribing doctors is a sign of a poor treatment plan". The point he's trying to make is that all efforts should be made to minimize the worsening of a Lyme patient during treatment. He never said we won't experience herx's while being treated for Lyme disease. You are taking some of his comments out of context, not only that, you are misquoting and twisting his words around. The more I read your comments regarding Dr. Jernigan and the Hansa Center, the more I've come to believe you have some kind of an agenda to discredit him. I could be wrong, but that's the sense I get from reading your comments about
Dr. Jernigan doesn't believe that having harsh herx's is a good way to measure if a patient is making progress like many are led to believe when they have horrible herx's for days at a time (sometimes weeks at a time). He does try to minimize to the best of his ability the discomfort that herx's have on his patients, but he never says they won't have herx's, or they won't have some degree of discomfort from his treatments. How you've come to this conclusion is beyond me.
You talk about
rules that the FDA have about
regulating medicine, and yet, you're more concerned about
medicines that are unregulated, like the one's Dr. Jernigan treats his patients with. On another thread you said, "Antibiotics for Lyme gave me pancolitis and a 14 day hospitalization where I nearly died. I never had a colon problem in my life. I am not the only one. I now ask every colitis patient I see how theirs started, and antibiotics for something has been the answer for many, many patients. I would stay AWAY from them at all cost. I know that doesn't leave much for you to do...I am right there with you...BUT, losing your colon would be horrible".
So, what's so great about
FDA regulated medicine if it almost killed you and hospitalized you for two weeks with pancolitis? None of Dr. Jernigan's "unregulated" medicines have ever caused me to have any serious side effects, and certainly none of his medicines almost killed me and put me in the hospital for two weeks. And yet, you even go so far to tell forum members to stay away from antibiotics at all costs because of the risks of losing their colon. I seriously doubt that the non-toxic remedies patients get from the Hansa Center are anything they'll need to worry about
ruining their colons, or any other part of their body for that matter.
On one hand, you are telling people you are concerned about
the unregulated natural medicines that Dr. Jernigan prescribes to his patients, on the other hand, you are telling people to avoid conventional treatment for Lyme disease (taking antibiotics). Kind of contradictory if you ask me. Like I said, it appears you have some kind of an agenda against Dr. Jernigan and, yet, you tell people to avoid antibiotics. So, what do you suggest those of us with Lyme disease do?
I have more to say, but we've been out of town for a week at an Expo and it's very late and I'm too tired to finish this post. If I have some time I will return to it tomorrow when my mind is fresh. I think you should continue to read his book, Beating Lyme Disease". If after reading his book, if you still aren't convinced that Dr. Jernigan is not one of the most knowledgeable and experienced doctors treating this disease, then I don't think anything is going to convince you. I seriously doubt you want to be convinced anyway, it seems your agenda is to discredit a good doctor who has helped thousands of chronically ill patients get better. At least that's how it appears to me.
In the mean time, since you advise Lyme patients to avoid antibiotics, how do you suggest they go about
treating their disease? What do you tell those of us who have gotten better using "unregulated, non-FDA approved" medicines (including his treatments and therapies)?
I hope to come back to this thread soon when I have more time to discuss this further. Until then, I look forward to your response.
Post Edited (GWB) : 7/23/2010 10:08:18 AM (GMT-6)