Other tick-borne diseases

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jennie26
New Member


Date Joined Nov 2004
Total Posts : 19
   Posted 7/21/2010 8:27 PM (GMT -7)   
While on vacation in Virginia, my 6 year old daughter was bitten by a tick. We estimated it had been on her head for at least a week and was engorged. Having had lyme for 6 years now, I kind of new many of the steps we needed to take. I had her doctor remove the tick and we took the tick home and sent it off to IGenex to be tested. We also identified the tick as being a lone star. For the first week, while the tick was on her (obviously not knowing it was there), she had a fever, headaches and swollen nodes. All of her symptoms are gone, 5 weeks later, except the nodes closest to the tick bite behind her ear and on her neck are still quite large and the tick bite site is a good sized lump on her head. The tick was tested for lyme, ehrlichiosis, rickettsia, and babesiosis. All were negative. The infectious disease specialist we saw last week tested her for tularemia and rickettsia. He wasn't "impressed" with her symptoms and said it could just be from the tick bite itself and not something the tick transmitted to her. All her bloodwork tularemia, rickettsia, CBC and CRP came back normal. Also, she was on Zithromax for about 18 days then switched to Augmentin for one week. I just don't feel comfortable letting it go. Knowing all I do about lyme I want to make sure she doesn't have to suffer like I have, I think you all can relate. I really don't know much about other tick-borne diseases. Does anyone have any advice that might help us? Thanks for taking the time to read this!

LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 7/21/2010 9:49 PM (GMT -7)   
Hi Jennie, sorry to hear about your 6yo. I have an almost 5 yo and I would feel the same way you are if he was bitten with those symptoms!!

I would highly suggest finding a pediatric lyme doctor. Take her to your LLMD if you have one and can't find a ped's doc. If she's still having symptoms, then she obviously is still infected with something.

Do you know if the tick was tested for bartonella also? Or is that not common in the Lone Star tick?

I've been having BioSet (a type of electrol dermal testing) testing and treatments done for my Lyme. It is completely non-invasive. I'm in California and have it done at Immune Matrix in Milpitis, (San Jose area). Scott the "betterhealthguy.com" might be able to help you find another place near you that does that treatment.

My prayers go out to you and your family,
Lisa
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   


IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 7/21/2010 9:56 PM (GMT -7)   
Swollen lymph nodes can be a symptom of Lyme, but they can also be a symptom of other things as well. The swelling at the bite site might indicate an infection from the puncture of the bite itself, but five weeks sounds like a long time for that area to be effected. My totally wild guess is that the bite area itself has become infected, but if it hasn't resolved on its own after this long, it should be treated.

jennie26
New Member


Date Joined Nov 2004
Total Posts : 19
   Posted 7/22/2010 10:59 PM (GMT -7)   
Thanks for the replies - I found out today that her CRP test was elevated. The doctor's office basically said no big deal "it's consistent with swollen lymph nodes". I don't understand why they did the test if it didn't matter. I feel extremely frustrated right now. Does anyone know how accurate IGenex testing is? Are tests for other tick-borne diseases (that we had done through the infectious disease doc) as inaccurate as lyme testing? Any advice will be greatly appreciated. LupnerRN - thanks for the reply and for the prayers. IH8Ticks - thanks for reply too! The site of the bite does not look infected, just a lump.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 7/23/2010 7:03 AM (GMT -7)   
ticks carry wicked parasites. I had 3 of them and would have never known without a stool test.
the ne I did was from metagenix? or metametrix.? ask your naturopath to get you the kit .
it is about $450 and is in a lavander and white box
hep c , lyme
Dad has lyme

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