any advice appreciated!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ckcmommy
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/22/2010 12:59 PM (GMT -7)   
HI
I have recently felt like I am losing my mind!
Went to my regular DR and told her of all of my symptoms:

numbness and tingling in random parts of body(arms, feet, calves, face) which last for a few seconds at a time
eye lid twitching
muscle weakness(perceived)
fatigue
headaches-daily, occassional migraines
neck pain/stiffness
jaw tightness
night sweats
anxiety
indigestion type feelings
fullness in head/pressure feeling
occassional floaters in vision

She did a bunch of labs including an EKG which all were normal
The Western Blot showed:
IgG 41 present
IgM 23 present
all others absent.
Any input would be appreciated....I have scheduled an appt with a "supposed" LLMD next week.....does this sound like Lyme to anyone?
Thanks in advance!

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 7/22/2010 1:05 PM (GMT -7)   
Your symptoms sound like Lyme, but they could also be caused by other problems as well. Your LLMD should check you for Lyme as well as other tick-borne infections. The tests are just not that accurate, so a clinical diagnoses from someone who understands these illnesses is far more useful.

Your night sweats stand out as more likely to be caused by babesia, rather than Lyme. Babesia is another tick-borne infection that is frequently seen in people who also have Lyme. The treatment for babesia is different from the Lyme treatment. Make a note of this, and make a point to discuss this with your LLMD. If you have both babesia and Lyme, you need to be treated for both in order to recover.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 7/22/2010 1:15 PM (GMT -7)   
Hi ckcmommy!
Welcome to our forum! I am sorry that you have been experiencing such issues. You should definitely be seen by a doc who knows what they are talking about.
The LLMD/Researcher I was seeing had a real good saying - Absence of proof is not proof of absence. Lyme is a lot like syphilis in the way that it can 'hide' in our bodies & that it's a spirochete (sp?) infection.

I would suggest that you read through the sticky at the top of this forum titled "New to Lyme? Start here", as it has a whole lot of good info packed in it! I would also suggest that you read as much as you can get a hold of about all of the tick-born infections (listed in the thread I just mentioned), as most, if not all, of us has had to become our own health advocate in order to assure that we are getting the best treatment available to us.

Best of luck with the LLMD appt! Please be sure to let us know how it goes!!
Even the mightiest oak tree was once a little nut who held it's ground!!! May we all find peace along the journey to find healing.
Trav


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 7/22/2010 1:53 PM (GMT -7)   
Wow there are very few people I have found with the same symptoms as me. I had for 4 years before diagnosed because my dr. did not recognize that the 3 bands I had were lyme specific. Best of luck to you.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 7/22/2010 2:48 PM (GMT -7)   
Hi. That list is the list of my earlier symptoms, too. I have been diagnosed with Lyme, babesia, and bartonella. I agree with the others that it is important to be tested for the coinfections. I hope you get this sorted out soon and begin treatment and the road to wellness.

Rose
I have Lyme; it doesn't have me.


motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/22/2010 2:54 PM (GMT -7)   
Where do you live in the USA?

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 7/22/2010 2:58 PM (GMT -7)   
When I was first tested for lyme I had only one band show up so they told me I did not have lyme and had "emotional issues" and to seek therapy. Well, I knew I was sick and that was not true. I ended up going from Dr. to Dr. until I finally got my lyme diagnosis based on my symptoms. By this time a couple years had passed and I had gotten a lot worse and had most symptoms other than joint pain. When I had another western blot done after my diagnosis, I had all strains and all bands positive for lyme. I also ruled out pretty much ever other possible illness that would cause those symptoms. Keep on fighting for yourself. Don't let one Dr. tell you no. In my mind, if one band shows up then you must have it otherwise none would show. That's how I saw it for me. If that Dr. had said, well you need 3 bands and you only have one so you don't have it, well then why did I have one and yes I did have it, it just wasn't full blown then and I ended up going years more letting it get worse with no treatment which made it harder to get better.

ckcmommy
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/22/2010 5:32 PM (GMT -7)   
I live in Virginia. But grew up in NY.
Thanks for all the responses
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 4:11 PM (GMT -7)
There are a total of 2,904,140 posts in 318,725 threads.
View Active Threads


Who's Online
This forum has 158122 registered members. Please welcome our newest member, hollyylouissee.
368 Guest(s), 7 Registered Member(s) are currently online.  Details
moosie, Lymess, Mark FW, Herophilus, gumby44, FamilyGuy, lapilot