return of headaches - ugh - any advice?

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Date Joined Mar 2009
Total Posts : 2154
   Posted 7/22/2010 3:58 PM (GMT -7)   
I have a return of temple headaches and tight jaw which I had for four years before diagnosed.  Then after months of amox,  2 months of doxy and then zithromax, headaches would come here and there but never daily.  They are back everyday with the tight jaw.  I am 6 wks into new treatment plan with new LLMD including tetracycline, amantadine, and numerous supplements.  Think could be herx or are new meds not working or just the  usual migratory symptoms?   Never a dull moment with disease.  I spent half of every night trying to find the answer to my latest problem.  It's like a cruel joke or something.  Xanax does help but trying not to become addicted.

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Date Joined Mar 2009
Total Posts : 2154
   Posted 7/22/2010 4:15 PM (GMT -7)   
I actually thought might be the heat. I am sitting here investigating pituitary/hypothalumus involvement as my headaches have returned with a constant vaginal discharge which every dr. ignored when I mentioned for 4 years. I consider myself a ravage internet researcher and will take any idea and run with it. Called LLMD and they suggested herx (can't be - had for 4 years without meds) or high blood pressure (mine is always low). Seems I have to keep looking myself. Guess I'll continue to detox but . . . .

Veteran Member

Date Joined Oct 2007
Total Posts : 748
   Posted 7/22/2010 4:55 PM (GMT -7)   
For mi 2 cents I think humidity does indeed increase head and face pain. New rule in this house air conditioner stays on, the electric bill is cheaper than a hospital stay, I have not found xanax to be addictive but also not too effective for pain. I am taking oh, um vicadin. I do not like the drug but it does ease the pain. (had it left over from when i broke mi arm) I went to mi local doctor yesterday (big thing for me I am very scared of doctors, or I feel weak or wimpy ) but I did it. She is going to do blood work she thinks i have fiibromylagia I need to see if that can be hinted at through blood. Hope u all feel better,

Regular Member

Date Joined Jan 2009
Total Posts : 296
   Posted 7/22/2010 4:57 PM (GMT -7)   
I've been having headaches lately too, but not the same kind. Mine are in my sinuses. I've had this problem off and on since my Lyme started. I get terrible pain and pressure in my sinuses, but I don't get any sort of drainage or anything else that would suggest a typical sinus infection. My sinuses seem to be swelling up. It can send pressure and pain shooting through the rest of my head.

Swelling is a common problem with Lyme, whether it's joints, muscles or whatever. I've recently started taking fish oil supplements. I read an study that showed that fish oil can actually relieve pain similar to NSAIDS like aspirin or Tylenol. Unfortunately, I haven't been taking it long enough to know whether it's helping. I also frequently forget to take it since I'm supposed to take one at each meal. (Stupid Lyme brain!!!) Anyway, this is something you might want to consider. Look at treating the swelling, if that's what it is, rather than treating the pain.

Here's also a blurb I pulled off a web site about temple headaches:

Somebody said...
Certain nerves in the body may also cause pain in the temples and are otherwise known as trigger points. These nerves are located in the jaw, the neck and the upper back and are connected directly to the temples of the forehead. Therefore, any pressure or contraction on them will also result in headaches at the temples.

Based on what this says, the tightness in your jaw could be from swelling, which it turn sends pain up to your temples via the nerves. I have had jaw problems too, including pain, tightness, and clicking.
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