seeing new LLMD. Med suggestions needed!

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needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 7/25/2010 7:02 PM (GMT -7)   
I'm going to see a new (to me) LLMD this week.  I've been on doxy (400mg/day) and biaxin (1g/day) for nearly two years.  I was also on IV rocephin (1 month) and IV doxy (1 month) during the Winter.  I'm having trouble tolerating the doxy/biaxin combo.   I've seen some improvements but I'm still very much UP and DOWN.   What other combinations of antibiotics are worth considering?  What worked for you?
 
Thanks,
Brad
 
FYI.  I tested positive for Lyme (IgeneX) but negative for co-infections (testing done through Quest). 

DocGP
Regular Member


Date Joined Feb 2010
Total Posts : 184
   Posted 7/25/2010 7:10 PM (GMT -7)   
Mepron and zithormax was best for me, but once I stopped it, I went back to being sick. I didn't get better the second time I tried it.

good luck.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/25/2010 7:19 PM (GMT -7)   
DocGP,

You only take Mepron when you have a co-infection. Mepron is taken for Babesia and since needshelp doesn't have Babesia, that combination would not work for them.


needshelp- The best solution would be to talk to your new LLMD and see what he/she thinks. I'm sure they can come up with a combo that isn't so harsh on your stomach. Amoxycillian might not be as harsh as Doxy.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 7/25/2010 7:27 PM (GMT -7)   
CG and others,

Is it worth getting co-infection testing through IgeneX? My understanding is that co-infection testing isn't that great via Quest.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/25/2010 7:35 PM (GMT -7)   
needshelp,

You can try but co-infection testing isn't that great through Igenex either, but I'm sure it is better than Quest. LLMD's diagnose more on symptoms than anything. Ask your LLMD and see what he/she thinks.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


GWB
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Date Joined Jul 2005
Total Posts : 570
   Posted 7/26/2010 7:23 AM (GMT -7)   
I took Bicillin injections for awhile and got some noticeable improvements from it, but had to get off all abx when the oral abx messed my stomach up so bad. I may have been able to get more improvements from Bicillin shots had I stayed on them longer. Might be worth asking your doctor his/her opinion about it. Very EXPENSIVE unless your insurance covers it.

Gary

needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 7/26/2010 8:04 AM (GMT -7)   
Gary,

I wanted my last LLMD to do bicillin shots. He acted like the shots needed to be given by a MD or nurse....is this true or can they be done at home?

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 7/26/2010 11:34 AM (GMT -7)   
My LLMD had his nurse teach my wife to do it and it worked out just fine for us. Maybe your LLMD or GP nurse can teach you to do first one then your spouse, or someone in your household, can give them to you. They're really not that hard to do in my opinion. Most people do them at home with the help of a loved one. Some people think they are painful, but I didn't think it was too bad. Alternate each time you do the shots.

Gary

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 7/26/2010 12:56 PM (GMT -7)   
I did not test positive for co-infections through Quest, but then tested positive for Ehrlichia through Igenex. My symptoms indicated Babesia, and once that was treated, my recovery was relatively quick.

Hope you get on the right track soon.

needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 7/26/2010 1:09 PM (GMT -7)   
Thanks for the suggestions GWB and achievinggrace. I would like to do the co-infections test through IgeneX but not sure I want to pay for it. Haha. We'll see what this new LLMD thinks. Thanks again.
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