Anyone familiar with sarcoidosis

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Date Joined May 2010
Total Posts : 116
   Posted 7/25/2010 10:30 PM (GMT -7)   
Anyone familiar with sarcoidosis and what the symptoms are? It is supposed to be a tick borne disease.

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Date Joined Aug 2007
Total Posts : 4400
   Posted 7/25/2010 11:39 PM (GMT -7)   
I think I remember reading that it could be caused by mycoplasma or other infections... One of my doctors was once considering this as a diagnosis for me, but then he changed his mind after some additional testing (I don't know what test result caused him to change his everyone else, they all tell me I have autoimmune diseases but the tx for that - immune suppression - just makes me sicker)

Anyway, for sarcoidosis info, see
Yes, this link talks about an association possible between Bb (amongst a lengthy list of other infections) & Sarcoidosis.
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, homeopathy.

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Date Joined Sep 2009
Total Posts : 1176
   Posted 7/26/2010 10:35 AM (GMT -7)   
As Razzle pointed out, doctors don't actually know what causes sarcoidosis, but it can be a nasty disease. There are also skin-only versions, such as lupus pernio (which is not related to lupus, so I don't know where the name came from).

Here's a great blog by a wonderful writer who happens to have sarcoidosis:
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

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Date Joined Sep 2008
Total Posts : 1120
   Posted 7/26/2010 1:29 PM (GMT -7)   
I just read this womans blog and I would put money on the fact that I bet her beautiful old house has a mold issue. I have a cousin with sarcoidosis of the lungs that started after moving to a moldy house. I hope her new home will make her health better. I have never heard that sarcoidosis is tick related...only that is has to do with toxins, so I supposed Lyme would fit that description as well.  D

Regular Member

Date Joined May 2010
Total Posts : 116
   Posted 7/26/2010 11:01 PM (GMT -7)   
Thanks all for your input, I appreciate it.
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