Repost for "confused.and.lost.by.lyme"

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Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 7/26/2010 4:54 PM (GMT -7)   
This was mistakenly (I assume) posted in the sticky "New to Lyme", so I took the liberty of reposting it where other members are more likely to see it.
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Unfortunately lyme disease (if I really have it) is not the only condition that's challenged my mental strength. I've had epilepsy for 12 years, and three brain surgeries. I'm strong enough! Now lyme disease? nono

I lost a lot of weight after major surgery five months ago and can not gain it back which is very unusual. I have chonic head aches, hair loss, get light headed, weak, tired, and the only other side effect I do not see anywhere else, is that the weakness is accompanied by a rapid heart rate. It causes me to be short of breath when funtioning in everyday duties such as while I'm cooking, doing dishes (by hand), towel drying my body after a shower, blow drying my hair, and making my bed. In other words, just about everything wipes me out.

One doctor said I had it. Three weeks into the antibiotic treatment, I had blood work by another doctor. My titer level was 4 which made them believe I don't have it nor did I. So now I'm going through further testing for my heart and lungs. The CT scan of my lungs was normal. I didn't have the echo of my heart yet. But take note, I LIVE IN A WOODED "TIC" AREA WITH LOTS OF DEAR.

MY BIGGEST MOST IMPORTANT QUESTION IS . . . Could I even have a titer level of 4 if I don't have lyme in my body? My daughter is accusing me of being a hypochondriac since I have so many "complaints." Trust me I have enough to deal with. I don't need any other "illnesses" in my life.


When I registered, I didn't see options for a "profile." scool Can it be done now? If so how do I do it now that I'm already registered?

Post Edited (Traveler) : 7/26/2010 6:00:14 PM (GMT-6)


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 7/26/2010 5:02 PM (GMT -7)   
Hi and welcome. I hear you - how many times have I thought "I don't need any other illnesses in my life." It sounds as if you have been, and are going through a lot. I do not know anything about titer levels and Lyme diagnosis, but wanted to welcome you and to let you know that this is a great place to come to learn and for support. Your symptoms sound a lot like mine, escept the epilepsy. I have Lyme, babesiosis, and bartonella. I hope you are able to get a good diagnosis soon so that you can start on the way back to better health.

Rose
I have Lyme; it doesn't have me.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 7/26/2010 5:12 PM (GMT -7)   
Hi confused!!
Welcome to our forum!! I am sorry that you have need to be here, but you will find caring, supportive people here, as well as lots of info!!

I am not familar with the test you are referring to, but hopefully someone else will. None of the testing is 100% accurate - there are a whole lot of strains of these bacteria that have not even been identified yet, but there are some tests that are a little more reliable.It also depends on what stage the Lyme bacteria is in as to whether or not your tests will be positive or not.

There are probably a good portion of us here who have had the word hypochondriac used against them, I know I have. None of us here have 'wished' this on ourselves or others, yet here we are.
Even the mightiest oak tree was once a little nut who held it's ground!!! May we all find peace along the journey to find healing.
Trav


IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 7/26/2010 5:16 PM (GMT -7)   
Confused,

Welcome to the forum. Some of your symptoms suggest a thyroid problem, possibly hyperthyroidism. It would explain your hair loss, weight loss, rapid heartbeat, fatigue, etc. Have you had your thyroid levels checked? If not, I would suggest maybe getting your T3, T4, and TSH levels tested. Make sure they test all of them.

Lyme test are very inaccurate, unfortunately. A clinical diagnosis by an LLMD (Lyme Literate MD) is a better option.

Lyme can cause thyroid problems, so the issues may be related. Typically, from what I've read, Lyme will cause hypothyroidism (under-active thyroid) rather than hyperthyroidism (over-active thyroid), but with Lyme, anything is possible. I've also heard of cases where people with hypothyroidism have the symptoms usually associated with hyperthyroidism, and vice-versa. In any case, thyroid testing is what pops into my head.
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