Just diagnosed

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Date Joined Jul 2010
Total Posts : 13
   Posted 7/31/2010 2:04 PM (GMT -7)   
Hi--I was just diagnosed last week with Lymes. I really don't know how long I have had it because all the information I read is conflicting. Maybe those of you who are "old-timers" on here can help me. I started having joint pain about 3 months ago, along with fatigue, headaches, intermittent rash on my arms and legs, depression, crying, emotional ups and downs, dizziness, spaced-out feeling, difficulty getting words out sometimes, difficulty concentrating and remembering things and of course fever (2 degrees for me).
We thought at first I had adult-onset Fifths disease, but the IgM was negative for it.
I started on Doxy 100mg bid Thursday night and am having bad headaches already. I did copy off the detox info from this site and will start that process as soon as I can gather up all the supplies. My doc is out of town til tomorrow--the MA gave me the results and she really couldn't explain them to me, except to say, "you are positive" and some number that was "41" and said my IgM Abs were "positive". I will call the doc tomorrow and get the results faxed.
The doctor also wants me to do IV H2O2 for six weeks, two times a week. I'm not sure how I feel about that. Has anyone else ever done that treatment? It's going to cost $1,500 out of pocket.
A little history:
I had gone back to school to get recertified (Med Tech) and get a CMA certification about two years ago. I had just gone back to work for a local hospital system and nine months into working, I had a Meniere's disease flare (inner ear) that would not abate. I finally had to quit work and was literally on my face for much of the following six months due to severe vertigo. I had a procedure done at the Shea Ear Clinic in Memphis this past Dec and was on cortisone for six weeks following (plus IV cortisone during the procedure). I recovered and was doing fairly well until the end of April/first part of May. Had a lot of stress in May getting ready for both of my sons to graduate---one from High School and the other from Law School. Did a lot of yard work as well---my husband thinks thats when I got bit, but I have a feeling I've had this for a lot longer. All the stress just brought it to life. :( I have only driven 3 times in the past 18 months due to the vertigo and "drop attacks" that come with Meniere's.
Medical history: tonsils out at age 5; Mono age 15; allergies and asthma starting at age 17; chronic fatigue for the next 48 years; deviated septum repair in 1983; jaw surgery to correct open bite 1984; continuous sinus infections treated with antibiotics and cortisone for the next 13 YEARS due to a wire that had to be left in my rt upper jaw, which had punctured the sinus cavity!! (a doc at Emory in Atlanta finally discovered it, after I had already had two sinus surgeries); surgery to remove wire from rt jaw in 2000; surgery to remove wire from left jaw in 2001. yee ha!
Diagnosed with Hashimoto's thyroiditis around 1995. Diagnosed with Meniere's disease in 2004 but have had tinitus in both ears for as long as I can remember. Have almost total hearing loss in right ear.
It just seems like my whole life I've been fighting one physical battle after another and I'm about worn out. After reading some of the posts here and on other sites, I just want to quit because, from the sounds of it, getting over Lymes is not as easy as simply taking 21 days of antibiotics. I really don't know if I have the energy to fight this.
I need to know what doctor I should see to get the best help. I live in the metro Atlanta area. And I need to know what treatments are best to do.
Help please!

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Date Joined May 2007
Total Posts : 35859
   Posted 7/31/2010 3:40 PM (GMT -7)   
Hi Linda,
Welcome to our forum!! You have come to a good place to find compassion, friendship, information & an occasional giggle!!( See the thread"Poop & you).
Your post reminds me of how I felt when I first found this website, although our circumstances are different. It's amazing just how many people have the same type of situation going on, feeling like they have been fighting one physical battle after another as you said & just barely hanging on, not sure they can take much more.

I'm sure you will find that detoxing helps, although if you have a "bad" reaction to them, it just means that you need to start off slower. If you do experience an increase in your symptoms, or even discover some new symptoms after doing a detox bath, the next time try staying in the bath for only 10 minutes. That is where I had to start off, I was really toxic though.

You may be right with the thought that you have had your tick infection for a long time, as they do like to hide in the tissues until the body is put under just the right amount of stress before they come out to play. I carried my infection from the age of 5, when I had RMSF. It was never diagnosed as such & there is no way to know if I actually got enough abx to eradicate it. As an adult, I still test pos for RMSF & LD & the one Lyme Literate Medical Doctor (LLMD) that I did see, told me that I need to assume that I have all the co-infections, because I have the symptoms of them.

You will need to read as much as you can about tick-born infections, as you will need to be your own health advocate now. There is so much controversy & misunderstanding out there amongst even the docs. This is definitely a time when each & every person will respond differently to each treatment, as it depends on your own body's weaknesses (or conditions) as to how well any one thing will help, IMO.

There are a few places you can go to get a referral for a LLMD. Hopefully someone here will know of a good LLMD near you, but a lot of people are willing to travel quite a way to get to one.
Here is one place that you can go to try to get a referral, I know that there are others, but I can't get my brain to function that well today - sorry.

I 'm sure other will come along & give you more info soon!
Hang in there, you are not alone in your struggles!!!

I'm looking forward to reading more of your posts.
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
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