Thank you for your suggestions!
Sorry in advance for the lengthy response---
Yes, coffee is a double-edged sword, no? I unfortunately am one of those physically and emotionally attached to my coffee, and i know for the sake of my adrenals I do have to give it up. I am sure my adrenals are deficient, depleted, battered and look like raisins. I have no idea how i will survive without that slight energy kick.
I am glad for the suggestions of detox baths and supplements...I need to get going on the baths....I also ordered some supplements that have some of those you list, bucci, so it is encouraging...and good proof for my husband (who is so overwhelmed by all the items for Lyme, that he puts my own strong belief in supplements last on the list...)
Perhaps I can offer a hint in return.....If none have looked into it, the company Vitacost.com has vitamin/supplement formulas called " NSI Synergy" that are very cheap comparatively, use *high* quality ingredients (not the Centrum clay tabs!!!) . NSI is their own brand. The Synergy line has about 20 different formulations...from your basic multi at $14.99....to their "Platinum" at $300! It has CoQ10, Alph lipoic acid, omegas, reservatol, etc etc.... I had hoped to get the Platinum, and take 1 packet instead of two per day, but the cost is just too much for now. A good happy medium I found is their "Synergy Neuropower"--I think $29.99? for one months supply? It is a good deal. I like that their more complex formulas are given in packets....I don't know about you, but having about 200 individual bottles of supplements to take cluttering my kitchen--on top of Lyme protocol ones...is annoying. Not that my kitchen is clean, cleaning is last on my list of priorities!
I had eyed Dr. J's Neurodetox formula...and my interest in his overall method is growing.
But for now I have chosen Cowden's condensed program...we'll see how it goes.
I had the unbelieveable luck of stumbling upon an amazing Lyme-literate doc in the middle of nowhere--a tiny clinic that serves mostly people with little funds--a few years ago, when I had bizarre neurological symptoms. Doctors took one look at my history, saw "depression hx," then their face and demeanor would change into this annoying sympathetic/condescending manner, obviously thinking it was all in my head. I resolved the issue myself at the time--researched until I found i has sxs of B12/ methyl deficiency (despite normal blood levels), and needed absurd amounts of methylcobalamin B12 to improve.
ANYWAYS (so much for a short story!) I had already discovered the methyl B12 when I went to see this doctor, and instead of treating me like cr*p and telling me the amounts I was taking was harmful she said "well, apparently your body simply is unable to absorb B12 properly.." At the time I had no other symptoms, but now I am sure I already had Lymes then...now I have loads of symptoms, except the classic joint swelling (EVERYTHING else hurts, just not joints), which is why both my doc and I were not looking at Lyme as a serious possibility at first. She is a regular MD, but studied alternative meds for 2 years. My only disappointment came when she prescribed Samento and some others, saying she was tailoring Cowden's program for me....but I found she was mostly cutting out all the detoxifying agents, and I became very ill. So now I will follow his protocol. Plus perhaps some homeopathic help, and acupuncture. I hope I can afford occasional relaxing gentle massages and mud wraps, to calm my very neglected soul.
Again, thank you for the welcome, as I try and learn and navigate this horrid condition. I am a psychologist, and instead of responding to questions in my field with high level, complex language I find myself saying "Yes, you know that...thing...can help...help..and ...well, results show this person is ...smart [instead of saying "has an IQ of 110, which falls in the range of Above Averge intelligence when compared to the sample of the general population."]
I am awaiting results on possible co-infections. I am crying as I have to give up chocloate, my only solace as I have been too tired to socialize (and have two toddlers who suck out all energy).
I take it to heart, the comment "I wish you peace and healing" I have no peace. I need to reconnect with myself.
Oh! Lastly, at the advice of an herbalist (you know, the type with long, dishheveled gray hair and no deoderant--i.e., trustworthy) to drink ?? tea--see, the name escapes me! (to pull out toxins), then 10 tabs of chlorella 2 hours later (to bind toxins) I think it is helping a bit.
And I feel for you, ineisa--I am dual language (Eng. and Latvian) and often can remember words, but in the wrong language....
Thanks you again, I await to learn, contribute and support....