Best remedy for brain/memory problems? Can't lose my job

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seekingbalance
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Date Joined Jul 2010
Total Posts : 63
   Posted 7/31/2010 9:28 PM (GMT -7)   
Hi-
Just recently diagnosed, after 2 years of hell (and continuing)
What have people found to help (and quickly!) for brain fog and functioining?? I can't do reports for work, I may lose my job if I don't get better. I plan on following Dr. Cowden's condensed program....

Thanks so much! smhair

ineisa
Regular Member


Date Joined Dec 2009
Total Posts : 72
   Posted 8/1/2010 5:46 AM (GMT -7)   
Hi Seeking balance, I can't help you, I am after the same info as you since I have the same problem. I work in finance - sales, and I need to be quick in my speech, fast in my answers and use the right words to sound convincing in a few seconds, and right now, some days, I can't even explain how my day has been without struggling to find words. Lately I have found it easier to speak in my native languages, (Dutch and Spanish) but I have no one to speak to in those so have to continue in English (live in the UK), but before I never struggled. It makes me feel very frustrated sometimes and I get very angry. I hope someone comes back with a post with some good info on what to do to speed up brain processing... Do you think brain performance games might work?
Loves horse riding, sailing, skiing and diving! Lyme nor anything else will stop me!

Deejavu
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Date Joined Aug 2005
Total Posts : 4306
   Posted 8/1/2010 6:35 AM (GMT -7)   
Hi seekingbalance and welcome!
 
I followed Dr. Jernigan's protcol years ago and became completely well after a long battle with this disease. 
 
You may want to buy his book and learn about what causes these problems and the treatments Dr. J. recommends..  He also covers ALL the coinfections in his book.  I highly recommend it as knowledge is power.
 
As far as brain problems, ammonia is a horrible toxin that is automatically produced when lyme bacteria die off (either naturally since they have a life span or by medicines) that causes not only joint pains, organ problems but brain and memory problems as well as brain fog and lyme rage episodes... 
 
Below is an interesting article written by Dr. Jernigan:
 
 
Also, if you get get in the habit of detoxing daily (there are instructions on the sticky thread on top called "New to Lyme?  Start Here!") that would be a very good start.
 
Hope this helps,
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

bucci
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Date Joined May 2006
Total Posts : 1477
   Posted 8/1/2010 6:43 AM (GMT -7)   
I used to drink choline coctail by twin labs . it has choline, inosotol, DMAE Ginko and guranna. the guranna is a plant type caffine.
there are two kinds..one is red label and other is green label. the green has less sugar. the other thing is Q10

but the best brain defogger is coffee enema for me. good luck ..I know the feeling. yesterday I couldn't finish one sentence. finally I just locked myself in my house and hoped the phone didn't ring.
hep c , lyme
Dad has lyme

+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 8/1/2010 6:52 AM (GMT -7)   
Well, it sure is a good question. My cognitive issues have improved some after abx. Not where they need to be, but some improvement.

And altho You're supposed to avoid caffeine if you have Lyme, I just read an article about how it gives many people the 'edge' they need and keeps their mind alert and focused. This would not apply to overuse, however. Do you drink any coffee? If not maybe try a cup of good black now and then?

Dejavue's success is reknowned, so maybe you should consider her protocol. I just can't afford it quite yet and am trying to kill as much bacteria as possible right now w/ abx. Kind of like a war --- my initial attack.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 8/1/2010 10:31 AM (GMT -7)   
Hi Seekingbalance!!
Welcome to our forum!!! I'm sure you will find that there is a lot of information passed around here, and that we do have a good group of compassionate, caring, and helpful people here.

I am sure sorry that you are experiencing life with Lyme! There are quite a few things that a person can do to help themselves get through treatments, and we have many different points of view here. I am using acupuncture with herbs, homeopathic meds, Traditional & Modern Chinese Medicine to help me rid my body of these pesky little buggers.

I wish you peace as well as healing.




PLEASE be careful with the coffee!! I just found out that even just drinking 3 or 4 mugs of coffee a day when you are having issues with your adrenals is like using an electric shock instrument (a cattle prod) on them. I used to survived on caffeine & nicotine for long stretches, but not any more!!

As far as the brain issues, Deejavu is right IMO. Detox bathes help me considerably with the brain fog. Although, I also suffer with decreased brain function as well. The brain needs to be exercised - at whatever level you need to use!!! When I'm really bad, I will do the circle a word 'puzzles', if I'm just a little bit better, I will switch to easy crosswords. When I'm doing a little better than that, I go one to medium crosswords & so on.

Another tool is from the website "Wise brain". They have added a lot of new stuff since I was last there.

wisebrain.org/innerskills.html
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

seekingbalance
Regular Member


Date Joined Jul 2010
Total Posts : 63
   Posted 8/1/2010 12:12 PM (GMT -7)   
Thank you for your suggestions!
Sorry in advance for the lengthy response---

Yes, coffee is a double-edged sword, no? I unfortunately am one of those physically and emotionally attached to my coffee, and i know for the sake of my adrenals I do have to give it up. I am sure my adrenals are deficient, depleted, battered and look like raisins. I have no idea how i will survive without that slight energy kick.

I am glad for the suggestions of detox baths and supplements...I need to get going on the baths....I also ordered some supplements that have some of those you list, bucci, so it is encouraging...and good proof for my husband (who is so overwhelmed by all the items for Lyme, that he puts my own strong belief in supplements last on the list...)

Perhaps I can offer a hint in return.....If none have looked into it, the company Vitacost.com has vitamin/supplement formulas called " NSI Synergy" that are very cheap comparatively, use *high* quality ingredients (not the Centrum clay tabs!!!) . NSI is their own brand. The Synergy line has about 20 different formulations...from your basic multi at $14.99....to their "Platinum" at $300! It has CoQ10, Alph lipoic acid, omegas, reservatol, etc etc.... I had hoped to get the Platinum, and take 1 packet instead of two per day, but the cost is just too much for now. A good happy medium I found is their "Synergy Neuropower"--I think $29.99? for one months supply? It is a good deal. I like that their more complex formulas are given in packets....I don't know about you, but having about 200 individual bottles of supplements to take cluttering my kitchen--on top of Lyme protocol ones...is annoying. Not that my kitchen is clean, cleaning is last on my list of priorities!

I had eyed Dr. J's Neurodetox formula...and my interest in his overall method is growing.
But for now I have chosen Cowden's condensed program...we'll see how it goes.
I had the unbelieveable luck of stumbling upon an amazing Lyme-literate doc in the middle of nowhere--a tiny clinic that serves mostly people with little funds--a few years ago, when I had bizarre neurological symptoms. Doctors took one look at my history, saw "depression hx," then their face and demeanor would change into this annoying sympathetic/condescending manner, obviously thinking it was all in my head. I resolved the issue myself at the time--researched until I found i has sxs of B12/ methyl deficiency (despite normal blood levels), and needed absurd amounts of methylcobalamin B12 to improve.

ANYWAYS (so much for a short story!) I had already discovered the methyl B12 when I went to see this doctor, and instead of treating me like cr*p and telling me the amounts I was taking was harmful she said "well, apparently your body simply is unable to absorb B12 properly.." At the time I had no other symptoms, but now I am sure I already had Lymes then...now I have loads of symptoms, except the classic joint swelling (EVERYTHING else hurts, just not joints), which is why both my doc and I were not looking at Lyme as a serious possibility at first. She is a regular MD, but studied alternative meds for 2 years. My only disappointment came when she prescribed Samento and some others, saying she was tailoring Cowden's program for me....but I found she was mostly cutting out all the detoxifying agents, and I became very ill. So now I will follow his protocol. Plus perhaps some homeopathic help, and acupuncture. I hope I can afford occasional relaxing gentle massages and mud wraps, to calm my very neglected soul.

Again, thank you for the welcome, as I try and learn and navigate this horrid condition. I am a psychologist, and instead of responding to questions in my field with high level, complex language I find myself saying "Yes, you know that...thing...can help...help..and ...well, results show this person is ...smart [instead of saying "has an IQ of 110, which falls in the range of Above Averge intelligence when compared to the sample of the general population."]

I am awaiting results on possible co-infections. I am crying as I have to give up chocloate, my only solace as I have been too tired to socialize (and have two toddlers who suck out all energy).

I take it to heart, the comment "I wish you peace and healing" I have no peace. I need to reconnect with myself.

Oh! Lastly, at the advice of an herbalist (you know, the type with long, dishheveled gray hair and no deoderant--i.e., trustworthy) to drink ?? tea--see, the name escapes me! (to pull out toxins), then 10 tabs of chlorella 2 hours later (to bind toxins) I think it is helping a bit.
And I feel for you, ineisa--I am dual language (Eng. and Latvian) and often can remember words, but in the wrong language....

Thanks you again, I await to learn, contribute and support....
Z.

LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 8/1/2010 6:16 PM (GMT -7)   
Seeking balance,
I really wish there was a "quick" way to get rid of brain fog! But unfortunately, nothing is fast with Lyme. This was so frustrating for me in the beginning mainly because I was an emergency room nurse and was used to getting everything "NOW". I had to stop working after about 3 months of trying to work and deal with memory loss, concentration issues, major brain fog, dizziness, vertigo, etc. I was putting my critical patients in harms way, from not thinking quick enough. It took a couple of weeks for my ego to finally admit I wasn't safe, for myself or my patients, at work. After several weeks of looking for an Infectious disease doc that knew anything about Lyme, I finally found an LLMD, over an hour away, that pulled me from work and told me the days of "type A personality jobs are over". It's been two years this month, August, that I've been out of work. I've been on SSA since Jan. I used to keep telling myself I'd be back to work in "3 months". But every three months would come and go. So I stopped doing that. I do believe I'll be working again with the next 12 months, but don't know what I'm going to do. I know the type of nursing I will be doing will change and I feel an obligation now to do work in Lyme awareness and such. I think it's on the ILADs website about a free 2 week training course with Lyme professionals on the East coast. I definitely want to take advantage of that. My brain's not ready for 2 weeks of concentration yet. Hopefully soon!!

Anyway, I'm having Neurofeedback right now and really wish I'd started 2 years ago!!! It's really helped! I had an quantitative EEG done through my Acupuncturist who's been working with a neurologist. Lyme creates a lot of brain inflammation that alters your brains ability to rest completely (REM sleep). Neuro feedback helps retrain and remind your brain what frequencies are the "happy place" to be at.

Many prayers for us all !!
Lisa
11/07 symptoms start
7/4/08 IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,

7/25/08 started on Biaxin

9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl

11/08 Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,

1/29/09 Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.
12/2009 stopped pharma abx. Using mostly Nutramedix herbs. Having Neurobiofeedback for chronic brain inflammation.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 8/1/2010 8:52 PM (GMT -7)   
Buhner recommends Huperzine A, Vinpocetine, and/or Ginkgo for brain function. Beware of drug interactions with these herbs, though...

I think also that phosphatidylcholine and essential fatty acids (omega-3, 6 & 9) are also important for brain function...

I like brainbashers.com puzzles - especially their sudoku & kakuro daily puzzles...
-Razzle
Chronic Lyme & Bartonella, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, Progessence+ (wild yam + essential oils), Moducare, homeopathy.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 8/1/2010 9:00 PM (GMT -7)   
I have a lot of problems with brain fog and memory too. It's so bad that I had to drop out of school. It's a dual problem because the Lyme infection directly effects our brains, but so do symptoms like insomnia. With my bad insomnia, I can barely think straight at all. I haven't found good relief yet. Exercise will give me a memory boost, but the effect doesn't last. I'm currently on an herbal supplement that seems to be helping my sleep, but it hasn't been successful enough to clear up my head. If I find anything that works, believe me, I'll be letting the world know about it.

seekingbalance
Regular Member


Date Joined Jul 2010
Total Posts : 63
   Posted 8/3/2010 11:11 AM (GMT -7)   
Thank you all! I will keep you apprised of any helpful methods. It is pretty hard to pay for all the supplements etc if you are out of a job.
I look at the Starbucks personnel with amazement, respect and envy. The speed and complexity they deal with, even in such a "mainstream entry" job.... I could never do their work. Even before the Lyme!

cupcakes
Regular Member


Date Joined Feb 2010
Total Posts : 34
   Posted 8/8/2010 1:03 AM (GMT -7)   
'Efalex' composed of omega 3 and 6 is amazing for memory, however it takes a few weeks - a few months to work. But it really works!!! I began rembering things I never could have imagined recalling! 'Eye Q' is also good I believe.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4306
   Posted 8/8/2010 8:48 AM (GMT -7)   
Oh Patti, you are a darling..   It's just part of my nature to help others..  When I was in elementary school (6th grade), I volunteered to stay after school and I read and played with 2 retarded children and that gave me great joy..  Funny, later on I found out one of the kids I worked with (Billy) made a movie with David McCallum called "Teacher, Teacher"..   I was so happy for Billy! 
 
 
In high school I had joined FOA (Friends of Animals) to help stop killing seals for greed..  So basically all my life I always enjoyed helping others (people and animals)..
 
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4306
   Posted 8/8/2010 8:57 AM (GMT -7)   
Seekingbalance,
 
Did you definitely decide to follow the Cowden protocol?  I do hope that you bought Dr. J's book just for the information.    I believe you asked about his protocols and when I followed his protocol, the Perfect 7 was not around then, neither was Lymogen so I can't say anything about that product.
 
I simply bought Borrelogen and the CNS/PNS Neuro-Antitox Formula for $100.00 a month, after a few months, I dropped the Borrelogen and took the Microbojen, at the end I took all 3 botanicals.   I did and still do the detox baths, foot baths, infrared sauna detoxing, etc. to keep my immune system strong...  
 
Anyway, how are you feeling?
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

seekingbalance
Regular Member


Date Joined Jul 2010
Total Posts : 63
   Posted 8/8/2010 10:09 AM (GMT -7)   
Seekingbalance,

Did you definitely decide to follow the Cowden protocol? I do hope that you bought Dr. J's book just for the information. I believe you asked about his protocols and when I followed his protocol, the Perfect 7 was not around then, neither was Lymogen so I can't say anything about that product.

I simply bought Borrelogen and the CNS/PNS Neuro-Antitox Formula for $100.00 a month, after a few months, I dropped the Borrelogen and took the Microbojen, at the end I took all 3 botanicals. I did and still do the detox baths, foot baths, infrared sauna detoxing, etc. to keep my immune system strong...

Anyway, how are you feeling?
Denise
------

Hi Denise,

After doing as much research as i could RE: Dr. J's program, I have decided to start with his 'basic' program package instead of Cowden's. I also had thought I'd pick--well, exactly the mixtures you chose--instead of the package, but then thought I may feel I am being more comprehensive and it will help me keep on track to follow the protocol..... I really found mounds of information about Cowden's methods, but quite little in terms of larger studies or personal success stories...and given Dr. J. stresses the detox so much, I decided i'd trust that first...and your detox strategies. I am slowly getting a picture of what I will do. I am going to stay away from any Lyme-killing entity for a week, to recover before starting up, and just detox..

I am also looking into your Green Vibrance supplement...I have been using "greensFirst 3000", but it seems the Vibrance gives a lot more umph! Getting good meals in can be a challenge, I like this product called Almased, an all-natural protein powder which i would mix with the greens. If I can't get a healthy meal up, it's a good substitute.
And I ordered two vitamin supplements, NSI Synergy Neuropower (http://www.vitacost.com/NSI-Synergy-NeuroPower-Multi-Vitamin-Version-4) and CellBooster (http://www.vitacost.com/NSI-CellBooster). Tons of good supplements in those to help get my body back....
And today I feel quite good (relatively speaking of course!!) I overdid it and became toxic last week, yet now as the toxins are leaving I may be seeing a slight benefit from having killed off some of the Lyme. Can't say my mind works well, but it feels just a tiny bit clearer....and I am less temperature-sensitive. Three days ago I could not tolerate the house being anywhere above 73 degrees; as it hit 74, I'd sweat, feel heavy-chested and weak. This am it was 78 degrees! in the house, and though certainly not comfortable, it was not incapacitating me in a matter of minutes.
Thank you for all your input and support!
Z.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 8/8/2010 12:30 PM (GMT -7)   
Congrats on getting a little relief, Seeking!!!
I hope that your treatments will bring you much needed healing.
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/8/2010 12:47 PM (GMT -7)   
LupnerRN, what is Neurofeedback?

And if one has an LLMD who is very conventional -- high dose, long term abx, and does not seem to 'get into' much 'neuro' specific type stuff, what might I ask him if I want to some kind of brain test? I definitely think my brain needs to be 'retrained and reminded what frequencies are the "happy place" to be at.' My LLMD even wants me to get thyroid treatment from my PCP -- he only wants to deal w/ Lyme and coinfections.

I have not slept w/o drugs for many years. Plus, I'd really like to learn if I have lesions or other problems w/ my brain.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 8/9/2010 10:55 AM (GMT -7)   
I've had a lot of luck with the herbs bacopa and vinpecotine, particularly for verbal issues.

JIJI
Regular Member


Date Joined Jun 2009
Total Posts : 43
   Posted 8/9/2010 8:15 PM (GMT -7)   
My mom says that doing the treadmill the stationary bike helps her brain fog. hope that helps some. feel better. have faith. and drink lots of water with lemon-Sandy and her mom Ada
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