Pseudotumor Cerebri ?

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ashleyf3
Regular Member


Date Joined Sep 2006
Total Posts : 364
   Posted 8/1/2010 12:30 PM (GMT -7)   
So my MRI suggests that I might have this - looked on line and found that sometimes it can be found in Lyme patients. It also might describe my horrible headaches. Anyone else have this? I went to the eye doctor and he said my optic nerve and eyes looked okay. I don't see neuro again until mid August. Just wondering if anyone had been diagnosed with this....

Thank you! I pray everyone is well.

Blessings,
Leah

Korissa
Regular Member


Date Joined Oct 2006
Total Posts : 352
   Posted 8/1/2010 2:37 PM (GMT -7)   
Ashley, someone suggested on a lyme board once that I might have it.

I'm wondering how severe your headaches are and are they at the base of your skull? Are they constant or do you have periods where they sort of go away?

Mine have decreased with antibiotics and herbs.

Also wondering if you have been diagnosed with bartonella?

ashleyf3
Regular Member


Date Joined Sep 2006
Total Posts : 364
   Posted 8/2/2010 7:01 AM (GMT -7)   
I get the headaches on and off - some much more severe than others (have been to the ER when they last for days and no meds seem to help). They actually feel like the front of my head and sometimes eyeballs are popping out of my head. I have never been diagnosed with Bartonella (but the doc I went to for years was not really Lyme literate enough to deal with the co-infections properly). My neuro increased my Topomax and it has slowed the intensity and haven't had to go to the ER (PRAISE GOD), but they are still coming. I guess my search begins for a LLMD or at least someone that will treat me (the doc I used to go said he probably would not treat me anymore since I had received so much treatment already and had complications from the antibiotics in the past). I have tried the "natural" route a little and didn't have much luck plus it was VERY expensive (doc and meds and testing). I guess my husband and I will have to weigh our options.

I pray you are all doing well!!

Thank you!
Blessings,
Leah

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 8/2/2010 8:48 AM (GMT -7)   
I get the same type of headaches like a spike going thru my eye. do you notice like swelling on one sied of neck and is it all one side. for me it is right side. in chineese medicine it is called liver gallblader syndrome. do you notice they come one for no reason but after you ate something ?? Mine are so much less after being on hearin for thick blood. it felt like having mini strokes and they don't go away till they want too. it ususlly take me 3 days almost. It like then I am still sick because i feel bruised and beaten up from all the pain of the last 3 days. It can get really wicked but it definitely kicked off by gut. I just don't know what it is. alkaseltzer also helps keep me out of danget zone..
hep c , lyme
Dad has lyme
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