I get the headaches on and off - some much more severe than others (have been to the ER when they last for days and no meds seem to help). They actually feel like the front of my head and sometimes eyeballs are popping out of my head. I have never been diagnosed with Bartonella (but the doc I went to for years was not really Lyme literate enough to deal with the co-infections properly). My neuro increased my Topomax and it has slowed the intensity and haven't had to go to the ER (PRAISE GOD), but they are still coming. I guess my search begins for a LLMD or at least someone that will treat me (the doc I used to go said he probably would not treat me anymore since I had received so much treatment already and had complications from the antibiotics in the past). I have tried the "natural" route a little and didn't have much luck plus it was VERY expensive (doc and meds and testing). I guess my husband and I will have to weigh our options.
I pray you are all doing well!!