Regarding treatments: It should seem pretty obvious to us. Some people die of the flu. Most get well on their own. Some people survive cancer, many do not. Some can survive chemo and some can't. Before abx Rocky Mt Spotted Fever killed nearly 50% of its victims. How did 50% survive? None of us are just like others. All of our immune systems are different, added to the fact that w/ Lyme, our immune systems vary even more.
As little as conventional medicine knows about Lyme and ESP the co-infections, we are all guinea pigs. Some of us will get better and some of us won't. Since we don't even yet know or understand ALL of the ramifications of these infections, it is no wonder that there is so much mystery and controversy.
I don't know yet how I feel about long term abx. I do know that 60 days of high doses relieved many of my worst symptoms, tho not all. Even the LLMD cannot say if the abx caused the Bb to morph into cell form, go into hiding, or if most were killed and it just took awhile for what was left to reproduce enough to make me sick again.
He is a leading Lyme, Aids, MS, CFS Dr in my area, and for Lyme he treats w/ abx. For life, if necessary. I don't yet know how I feel about this. All I know is that he maintains his patients get well. (I know, I know, how can they be well if they need abx?)
Denise, I am very interested in your protocol and will be looking at it more closely soon. I had just come to such a helpless and hopeless feeling state that I wanted to at least start w/ abx to get some relief and a little more strength. I also HAD to find a Dr covered by my insurance and this one is.
btw, I am preparing to ask him about LDN. I've brought it up before and haven't ever seen much on here about LDN. It's on the MS board some. This sounds to me pretty much like a wonder drug.
In the article posted on this thread, he mentioned 'a rapid test-a finger stick to be used right in the doctor's office-that he says
is more accurate than lab tests and should be available later this year'. And that was 2001. Whatever became of this?
I was pretty suspicious when his Dr said '"Our research shows that 75 percent of the people who think they have the disease actually don't," he continued. "They may have some vague illness, but it's not Lyme."
What made this Dr so sure that he was able to diagnose every case of Lyme? In that 75% who did not receive a positive diagnosis OF ANY KIND, I wonder how many actually DID have Lyme and this Dr's test missed it, for all the reasons that we already know about?
Too much unknown. We've gotta find ways to hash this out and get somewhere. I believe the time is coming that we may all be kicked to the curb. When our own President says stuff like many people may have to accept pain pills instead of having procedures done, I believe that some of us will be the first to fall by the wayside.
I don't mean or want to have a political discussion, but this was an actual statement that was made that concerns me. Esp as it may concern us.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia, chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.