What treatment worked for you?

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trob25
New Member


Date Joined Aug 2010
Total Posts : 11
   Posted 8/27/2010 2:45 PM (GMT -7)   
Sorry if this has already been covered, but I was curious about those of you who have been cured, what was it that did it?

I joined this board because while I tested positive again for Lyme in May and redeveloped my lyme rash (confirmed by my skin doctor and lyme via positive western blot) at the same time, I then developed bowl issues, which one doc thinks is UC and the other does not. For more on that and some lyme info see my thread on the UC boards www.healingwell.com/community/default.aspx?f=38&m=1883080

Of course I focus more on the stomach problems on that board, but basically, in 2007 I was on abx for nearly a year, Doxy/Amox/Cipro/Doxy again then in 2008 for frequent urination caused during my lyme, Cipro a few more times, then I got C-Diff for a month, which screwed me up even more. Treatment for C-Diff was a month of Flagyl, which I heard sometimes works for lyme also. The kicker is, in 2009, the lyme came back again anyway, so I'm pretty sure abx don't do it for me/will only cause C-Diff again and C-Diff almost killed me. My original bout of lyme was 2005, I have made it over a year in remission with lyme once and almost a year another time, but it always comes back. Many say I'm lucky to have remissions at all!

Currently I see a LL Naturopath and am being treated with Cat's Claw, Resveratrol and I was on B12, but those levels are nice and stable now so I'm off it. I take probiotics every day as well, that's more to keep C-Diff away though.

Before my positive lyme test in May of this year, the symptoms came back badly, in me it's rotating joint and muscle pains that come and go over 3 day periods, I had night sweats when it started and general flu like symptoms, but I started on that above protocol and all went away except for the rotating joint pain. After I got out of the hospital for the temporary colitis flair (again, never had this before and not convinced that it wasn't caused by lyme) I went 26 days without a single lyme symptom until last night when joint pain came back in my foot, longest streak since I started feeling ill again in April. I can't help but wonder if there are other things I should be doing? This joint pain is brutal, I should be happy I have weeks where it goes away I guess, but it's really a never ending nightmare.

Not that it means anything, but my western blot changed to negative in July after months of my protocol, joint pain is getting spanned further out it seems, but now going on 4 months of it (in 2007 - 08 I had it for a year before it stopped). I just wish I could deliver a knockout blow to this ****** disease.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 8/27/2010 5:44 PM (GMT -7)   
I'm not "cured" or in remission, but have found things over the years that alleviate or reduce the severity of some of my symptoms.

Nettles helps me a lot with the migrating/wandering joint pain (Buhner recommends something like 1200mg/day, I think I was taking 1500mg/day) - or homeopathic Causticum 30C.

Cranberry juice helped me with the urinary symptoms.

Yeah, I get a lot of the gut stuff too - mostly dysmotility (slow stomach emptying, constipation, difficulty swallowing), but some inflammation as well....you may need to get allergy tested for IgE (immediate) and IgG (delayed) food allergies to help with your gut inflammation. Also, I have read that enteric coated fish oil and probiotics are very good for UC symptoms (performance of each individually is at least as good as the common medications for UC, without the immune suppressing effects).

Good luck,
-Razzle
Chronic Lyme & Bartonella, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, Progessence+ (wild yam + essential oils), Moducare, homeopathy.

trob25
New Member


Date Joined Aug 2010
Total Posts : 11
   Posted 8/27/2010 10:07 PM (GMT -7)   
Thanks for the reply, I had never heard of Nettles, I will look into it/ask the naturopath about it. Seems as though this round of lyme likes my joints/muscles and my gut the most, it changes a little each time it comes back after a remission. I will look into the fish oil products as well, I've wondered about them for years, initially for the joint pain, but my last round of joint pain, 2007 - early 2008, went away after I did Yoga for 4 months. Coincidence or related, I have no idea? Either way, good to know it's useful for gut issues.

I'm just hoping there is light at the end of the natural cure tunnel, that it might actually work by boosting my immune system or killing off some of the bad stuff. Are the nettles a pill or liquid? I found some online called "stinging nettle herbal supplement" hoping those are the right kind.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 8/28/2010 12:50 AM (GMT -7)   
The Nettles I took were dried herb in capsules.
-Razzle
Chronic Lyme & Bartonella, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, Progessence+ (wild yam + essential oils), Moducare, homeopathy.
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