lightheadedness?? Help!

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Regular Member

Date Joined May 2010
Total Posts : 27
   Posted 8/29/2010 12:01 PM (GMT -7)   
i have been having dizzy spells really bad now for almost a week. When I get them it automatically brings on a panic attack. BP is 94/73 pulse 76. It is not contributed to eating cause I am eating and drinking plenty and still it is bad. Is there anything I can do for this. I have been in bed and try to get up and walk but they come on real strong....I think it is more lightheadness than dizziness. I stopped all antibiotics almost 3 weeks ago cause they were to strong for my gi. Dr is going to arrane having them done through the iV has they dont give me stomach issues that way, just some nausea.

Do you know what causes this??? Anyone? And what can be done?

My fatigue is so bad and feeel so weak as well. DX with lyme almost 3 months ago and was treated in AZ for 2 months. Came home, and feel bad and back in bed.

Robin O
Veteran Member

Date Joined Feb 2006
Total Posts : 1206
   Posted 8/29/2010 1:03 PM (GMT -7)   
I wish I knew what to tell you to do to get rid of them. All I know is that I get them sometimes too, but not bad. The room spins. I know when I am going to start that crap because my head feels full, best way to describe it. I hope you are okay.

Forum Moderator

Date Joined May 2007
Total Posts : 35859
   Posted 8/29/2010 1:31 PM (GMT -7)   
I've actually been doing a little bit of reading on this recently. It sounds like you are dealing with orthostatic hypotension possibly. Here is a link to the "Merk Manual" & what they have to say about orthostatic hypotension;

There's actually a ton of info on this on the internet, just 'google' Orthostatic Hypotension & you will get a better understanding of what is happening.

I have read in many places that this is fairly common for people with tick-born illnesses, but I don't recall what was said about what to do about it. I would heavily suggest you talk to your LLMD about this!!!

Regular Member

Date Joined Aug 2010
Total Posts : 205
   Posted 8/29/2010 5:41 PM (GMT -7)   
Did you have a Herx reaction when you started taking the antibiotics? If I remember correctly, I think I read something recently that Herx reactions can last a while even after stopping treatment... I had problems with severe dizziness and feeling light-headed, as you describe, with several different the point where I couldn't tolerate it (I couldn't even see straight enough to watch eyes always felt "dizzy."

You could try something like Dramamine...if that doesn't help, maybe a benzo like Ativan...but talk to your doctor and see what s/he advises...

I hope you feel better soon! Hang in there!


Veteran Member

Date Joined May 2006
Total Posts : 1477
   Posted 8/29/2010 6:29 PM (GMT -7)   
liz are u still using rife?
hep c , lyme
Dad has lyme

Veteran Member

Date Joined Aug 2010
Total Posts : 552
   Posted 8/29/2010 6:40 PM (GMT -7)   
I have been dizzy for soooo long, it hardly bothers me, unless is severe. Fortunatelly, it comes and goes and I have learned how to deal with it. I may not get it as bad as you, but it is annoying for me, too. The brain fog is what gets to me the most. A couple of days ago, I cooked rice for probably 15-20 people. I thought I was doing it right, until it started to absorb water and the big pot was almost full! We are a family of 4 + a baby. My husband asked me how many guests we're having for dinner that night! LOL

Forum Moderator

Date Joined May 2007
Total Posts : 35859
   Posted 8/29/2010 6:46 PM (GMT -7)   
Blessed are we who can laugh at ourselves - for we shall never cease to be amused!!!! :) :)
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
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