The main reason I refused the lumbar puncture is because I didn't believe that I had MS based on my symptoms at that time (but pleeeeeaaase
don't ask me what my symptoms were!!!
) I did have a second reason - I had an epidural when in labor with my first child & I guess they weren't as careful as they should have been (?) because I leaked "some" spinal fluid & had a major
migraine for two days!! This was all before I realized that I was infected with a bunch of tick-borne illnesses.
I would probably submit to one now, if I had a doc that I felt was knowledgeable enough about
tick-borne infections - but that's not likely, due to the area I live in!!
I know the frustration about
not having a condition, having a child & then having having issues!!! I had gone back to training horses during the time between my 1st & second child - so believe me when I tell you I had NO hip issues before giving birth to my second child. He got stuck - yep!! stuck (!!
) & they had to use forceps (sp??) in order to get him out, but the doc had to overlap his skull & push outward on my hips in order to get him here. Ever since that time, I have had issues with my hips.
I would encourage you to wait on any more tests until you get in to see your LLMD, as he will send you to labs that know what they are looking for. And who needs the added expense & frustration of dealing with those that won't believe us anyway!
I definitely wouldn't have walk out of there alone, or a free woman!!!
I have a mouth that would have definitely gotten me into big
trouble when he said that he sent in distilled water & got back a positive for LD!!! I used to spar with docs all of the time - I educated myself on whatever they were trying to diagnose me with, and go back and tell them why
I didn't fit their diagnosis - didn't go over well usually. I have been ill for most of my life - my Mom & I believe that I was infected with RMSF (the spotless kind though - funny since I'm absolutely covered in freckles!) at the ripe old age of either 5 or 7 years old. I grew up being told that My medical issues were 'odd', 'unique', 'unfortunate', and that I sent them "back to their books with great regularity" - so I started to teach myself how to understand at least some medspeak. Got me into a lot of trouble too (giggle!), but I believe that it has saved me a lot of unnecessary agony as well.
getting up on the soap box - again!
Steroids are know to push tick-borne infections to go deeper into the tissues & organs.
I sure don't have a clue how a person could have Degenerative Disk Disease & not know it!!! My Hubby has an advanced case, and believe me - he is in a lot
of pain daily for many, many years. Makes me wonder if those docs even knew what they were looking at?? My Hubby actually had an MRI (I think) done one time & the tech who read it said he found no damage to this one particular disk, when in reality those two vertebrae had been rubbing together for so long that in a previous MRI three years before had shown that he not only no longer had a disk there, but only had about
2/3rds of the bottom vertebrae left!!
Oh wow!! sooo sorry for such a long post!!
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP