Fainting without any warning

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trew123
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/2/2010 8:43 PM (GMT -7)   
I'm new to the Lyme Forum,,I haven't been successful in obtaining any information about Fainting without warning associated with Lyme Disease,,,Any response will be appreciated and helpful...Thanks you.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 9/2/2010 9:33 PM (GMT -7)   
Hi and welcome to the forum. Lyme is known to cause Postural Orthostatic Tachycardia Syndrome (POTS), which can cause fainting. Have you been tested for Lyme? Are you seeing a Lyme-Literate MD or ND?
-Razzle
Chronic Lyme & Bartonella, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, Progessence+ (wild yam + essential oils), Moducare, homeopathy.

OneWearyChick
Regular Member


Date Joined Jan 2010
Total Posts : 109
   Posted 9/3/2010 5:54 AM (GMT -7)   
Along with POTS, one should also consider NMH, neurally mediated hypotensiion (they are similar). NMH is specifically discussed in Burrascano's guidelines for treatment. However, fainting is often caused simply by electrolyte imbalances and deficiencies( sodium, potassium, magnesium, etc) and often, lyme can cause these, but they can happen through other ways too.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/3/2010 6:28 AM (GMT -7)   
Hi Trew123!
Welcome to our forum!! I am really sorry that you have a need to be here, but glad you found us! You will find us to be a caring & helpful group! I agree with Razzle & Onewearychick that it could be because of POTS or NMH. I would also be interested to know if you have been tested or are seeing a doc for this??

I went through a period of time where I had a few small seizures & fainting without any warning. It was kind of scary for me! I wasn't seeing a LLMD (Lyme Literate MD) at the time, as I was house bound at the time. There is also no docs in my area who really have any clue when it comes to anything related to Lyme or any of the co-infections.
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

trew123
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/3/2010 9:26 AM (GMT -7)   
Thanks for the response,,My Son tested positive several weeks ago,,,He's been passing out alot without warning, very scary. I've heard of POTS, I'll research it.,,He was not properly diagnosed for over a year. I'll keep in touch I have so many other questions, I just coldn't find anything in Symtoms about Lyme causing Fainting,,Thank each of you again so much. trew

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/3/2010 11:16 AM (GMT -7)   
Hi welcome I am also a couple weeks new to this forum. I am so happy u asked this question not happy u have it though. I have exzactly what your talking about my heart Dr is sending me in for a tilt table test to Id the problem.

I even have a home nurse because of it. it started last yr I think being bedridden triggered it. at least that was what I've been told if my nurse checks my blood pressure it drops from laying, sitting and big drop standing.

if u have a blood pressure cuff try this to see if it chenges ok.

I really hope u get better for me though I faint standing up and my husband usually carries me into bed. I've fainted in the bathrm, in the kithen it never ends. I am on mindodrine which is suppose to raise your blood pressur but it only for me helps a little. But please if not already try the blood pressure test okay.

I want you to know everyone in this group is loving and supportive. sometimes I don't get answers right away but karen told me some people may be working or to sick as myself I have to have a up day to be able to even pick my lap top up.

stay strong Prayers for you Marlene/mainegirl

trew123
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/3/2010 4:56 PM (GMT -7)   
Marlene,,,Thank you for the response,,,Please be very careful with the Tilt test. Before being diagnosed with Lyme, My son did the Til test and imediately passed out
while in progress, for once he was confined and didn't hit the ground..He was at that point diagnosed with Vasal Vag. Synecope..After about 3 weeks of Meds he started passing out again..He was also told it was his blood pressure..After having a Pacemaker put in that obviously hasn't stopped the passing out, I'm just totally confused about passing out..If you don't mind I'd like to ask you a question,,When you pass out, can you wake up on your own or does someone have to keep trying,,I have found that the only way he wakes is if we gently turn his neck. I would like to chat with you sometimes when you have time. I won't keep you any longer thanks again for the response...trew

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/4/2010 7:16 AM (GMT -7)   
trew. I would love to chat about this for me this was triggered last yr I think it was from being bedridden because my system was shutting down. I deal with this problem most of the time. and am anxious to talk to you.

Because really have not been able to talk to anyone that really has this problem or anything else that u would like to talk about would be great do you and your son both have lyme? I'm still new on this board so I'm sorry I have to ask.:(

I do have my private e-mail on here. If u send me a e-mail I will get your number or I'll give u mine and I can call at a convient time for u.

marlene/mainegirl prayers for u and everyone else

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/4/2010 1:22 PM (GMT -7)   
If you two want to actually enter a chat, there is one available here on HW. All you would have to do is set up a time when yo both could be there.
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

trew123
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/4/2010 7:17 PM (GMT -7)   
Marlene,,Let me know a good time for you.,,The chat is free just click on The chat tab on the Home page and sign in,,I'm looking forward to chatting with you..I will check for your response on Sunday around noon Central Time.,,Thanks..trew

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/5/2010 7:58 AM (GMT -7)   
trew let me see if I can figure this out and I'll say chat at 12:15pm unless I don't feel good when I get to tired I just can't funtion ok if that happens I'll come back on and give u another time.

prayers for u and your son:)

mainegirl/marlene

trew123
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/5/2010 6:48 PM (GMT -7)   
Marlene,,,I'll try again on Tuesday Evening,,I hope you are having a good day,,Take care,,trew

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/8/2010 2:03 PM (GMT -7)   
Trew, I didn't check my email till today sorry I missed u again but I was totally out of it on the weekend.. I would love to chat

we just need to get the time right lol.

Marlene. prayers for u.

ACA0149
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/13/2011 6:59 PM (GMT -7)   
I'm new to the forum but definitely have some experience in it all. I'm 20 years old, and I've been having random fainting spells since I was 15. They've happened sitting, standing, it doesn't matter. I just recently got a diagnosis after fainting again a couple of weeks ago. I was diagnosed with NMH. I had a tilt table test about a year and a half ago at Johns Hopkins where I did show an extreme blood pressure drop, which is the only way of showing NMH. No doctor explained what the blood pressure drop meant until last week when my primary care doctor explained that that means NMH. Since then I've been researching it endlessly, and I hope to meet with Doctors from Hopkins in the next couple of months to discuss perhaps, better treatment. For now I'm on Salt pills and an increased water intake. I was also put on an anti-anxiety because I started to become nervous of going anywhere because there was a chance I could faint. Hope that answers some questions!
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