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Veteran Member

Date Joined Oct 2007
Total Posts : 1172
   Posted 9/8/2010 8:02 AM (GMT -7)   

Post Edited (georgiagirl) : 10/10/2011 9:33:44 PM (GMT-6)

Regular Member

Date Joined Sep 2009
Total Posts : 133
   Posted 9/8/2010 4:01 PM (GMT -7)   
Hi Georgiagirl,

I keep a journal of my symptoms every day as the bad day symptoms are easily forgotten when they are split by the good days, and when I've attempted to relay the many problems to the Dr I can't remember them all.

It's a really helpful tool to have when, on some days, even your name becomes a jumbled soup.

If or when you start it is a bind to write it all down, but it soon becomes a routine. I find myself going to my diary three, four, five times a day logging times when symptoms come and go. Some days, apart from my persistant problems, all I write in is "A good day". My persistant problems I write in as my own kind of short hand every day, but I know what they all mean. Eg.....SNR-TLNF...... stiff neck right - tingling left neck and face. Fairly basic but I know if I have missed one of my "codes" out then on that day I didn't feel it. Intermittant symptoms or unusual symptoms I write out in full but on the days where I have lots of problems I tend to only jot down the strongest symptoms and some of the less painful one I skip.

Good luck with the SSDI hearing and heed your attorney's advice and start a diary, it's a very useful document to look back on.


Regular Member

Date Joined Jan 2009
Total Posts : 376
   Posted 9/8/2010 4:52 PM (GMT -7)   
Your symptom journal is something the judge can look at to see how your conditions are impacting your life - and your ability to work.  I think it's really worth the effort.  You might get some ideas from the Fibro forum -  See the section on pain chart and pain journal.
I'm starting to have some fibro-like flares and am thinking about modifying the third item - for myself. 
Anyways, it might give you some ideas on where to start.

Regular Member

Date Joined Aug 2010
Total Posts : 205
   Posted 9/8/2010 6:59 PM (GMT -7)   
There's a book called "Managing Pain Before It Manages You" by Margaret A. Caudill, M.D., Ph.D. - it has excellent charts in the back for copying and keeping track of symptoms, medications, diet, exercise, and anything else that may have effected your pain level, mood, or other symptoms. You may be able to find the charts online...if you do, let me know!

Veteran Member

Date Joined Oct 2007
Total Posts : 1172
   Posted 9/9/2010 5:21 PM (GMT -7)   

Post Edited (georgiagirl) : 10/10/2011 9:34:21 PM (GMT-6)

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