Disorientation Anyone?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined May 2010
Total Posts : 27
   Posted 9/11/2010 10:17 AM (GMT -7)   
I have a problem when I get up and walk ....or go into stores. I get extremely disoriented, like feels like Im swaying or lightheaded. Very off balance, and it makes me nervous. Also when I drive I dont feel this symptom but when I stop at a red light I get severely dizzy. I dont know if this is part of the Lyme or something else. I dont now how else to explain it.

Can anyone relate?

Regular Member

Date Joined Aug 2010
Total Posts : 317
   Posted 9/11/2010 10:33 AM (GMT -7)   
Oh my. Not only do I do that, but my eyes get fuzzy. It makes me dizzy to drive in traffic. Maybe panic or maybe the surrounding movement????? I do ok on open road. Sooooo, if it isn't lyme, then you and I are harboring the same other critter.

There can also be an adrenal component to the standing/walking thing. Also something called NMH...neural mediated hypotension (I think it is....) and is covered in Dr. Burrascano's Guidelines for Lyme.

Whatever it is, it isn't fun and has been very confining....

Forum Moderator

Date Joined May 2007
Total Posts : 35859
   Posted 9/11/2010 1:59 PM (GMT -7)   
I went through that for the longest of time!!! I did discover a few things that would help me enough that I could at least get groceries & stuff. I actually wore a hat inside stores for quite a while as what I was experiencing seemed to be worse because of the lights - I have also worn my sunglasses inside the stores.

And to this day, I still carry my little cheap mp3 player with me. I have carefully stored some very relaxing music on it & when I feel like the store suddenly got all rearranged on me - literally, to the point where I had to guess where the door out of the store was - I just put on my little ear phones, keeping the volume down kind of low (I still had to try to follow a list) and I noticed that somehow a lot of the 'pressure' & disorientation I was experiencing would subside somewhat.

It's worth a try at least!!
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Regular Member

Date Joined May 2010
Total Posts : 27
   Posted 9/11/2010 2:10 PM (GMT -7)   
Thank you I will try that and see if it helps. I will try anything right now. Do you still have that problem? Does it get better through treatment?

Regular Member

Date Joined Aug 2010
Total Posts : 205
   Posted 9/11/2010 9:13 PM (GMT -7)   
I have the same feeling all the time - there's actually a medical/logical reason for why it doesn't happen while you're driving (I suppose something to do with your balance and probably inner ear). There are medications you can try - you might start with something like Dramamine and if that doesn't work, try Anti-Vert.

Hope you feel better!


Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 9/12/2010 1:02 PM (GMT -7)   
Yes, I too have vertigo, blurry vision, plus double vision....also, sometimes, when I used to drive, I would start to go to sleep at the wheel. I had my driver's license taken away because I shared this with my doctor. She promptly told the DMV that I shouldn't be driving.

I use a wheelchair, in part because of the vertigo....I'm afraid of falling.

This plus the extreme light sensitivity mentioned by Traveler have really kept me a prisoner indoors. :(
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 8:45 PM (GMT -7)
There are a total of 2,905,994 posts in 318,907 threads.
View Active Threads

Who's Online
This forum has 158253 registered members. Please welcome our newest member, Jessica Jaroff.
325 Guest(s), 8 Registered Member(s) are currently online.  Details
19tarpon47, Keylyme, dipson, Worried386, SomeonesMom, Girlie, rafaeltoral, Jessica Jaroff