I did not mean to scare you, although I wish someone scared me and I would not have taken this so lightly--only wanted to give you a heads up. I was in denial for a year bec of my negative tests and my dr telling me I'm cured. My symptoms were rare and far apart, so I didn't pay attention. It kept popping in my head when my symtoms v. v. v. slowly and far apart (at first) came back, and after a few minutes of reasoning, I blamed everything on the car accident. Just be on the watch and don't wait if you start having symptoms again or if some symptoms are still left--that is the message I wanted to send you. I am not defensive about
anything, as someone put it, I have no reason to, because I was almost symptom free for a whole year, and prior to that for 8 years. Just be careful and continue
to search for anything else that may help you and hopefully, you'll never go through this again.
I never knew one can relapse, I trusted my dr, did not do any reading, until it got really bad one day, it took me completely by surprise (the second time much worse than the first, just this year--I have a masters degree
in Statistics with a minor in Math and could not add 2 numbers under 10--that was the wake up call for me). I started to put OJ in my coffee instead of milk, etc. MUCH uglier the second time around! I could not walk for a couple of days. The soles of my feet were so sore, and my kneese and anckles and hands hurt so badly. Keep in mind that I didn't have sore feet (possibly Bartonella) for 8 years!
For me, the first sign of relapse was nothing==only a few symptoms and far, far apart that I was not able to put it together--just be on the watch and do know that many people do relapse. This ugly bacteria has the potential of hiding in cells and escape abx--it may hide in there for years--I believe that is my case. There are no accurate tests to check if one is cured or not--I just did not know any better! When in hiding, the blood work comes back negative because the spirochettes change forms and are no longer in blood. Some people here that were very sick had one year of abx until their tests finally turned from negative to positive. LLMDs (lyme literate docs) don't trust tests so much, they treat based on symptoms, not test results because they are very innacurate.
Here is the website I found about
salt and vitamin C:
If you don't have high blood pressure
, you can try it by starting with a low dose, just as maintenance. In my case, I have very very very low blood pressure, so salt won't hurt me. I also have hypothyroidism, which I believe was caused by lyme at least 5 yrs ago (only the doc was not bright enough to look at what was actually causing my thyroid levels to be all over the place and swellen and put me on thyroid meds), and salt won't hurt me. If you suffer from heart disease, you probably should stay away from salt. I am not a doctor, so you should check with someone to make sure this is not detrimental to your health. If these people on that website are right, I think it will help me. If you get grossed out easily, I suggest you don't click on the first link at the bottom of the home page, as it gets gross at one point. I don't know who these people are, I searched in google for
and I ran into their website. I do not take everything they say as science, but willing to pick and choose what I think may help me.
Anyway, I'm glad that you are doing well. I have days when I am myself 90%, so I do think I can beat it if I attack it every possible way I can. Right now I also have an active virus that showed on my blood work, not sure when I picked it but it is not going away, as it does in non-lyme people. This keeps the immune system busy, as well. It is getting harder to get rid of lyme if you pick everything else in the mean time.
Time for my pills...
Post Edited (Simela) : 9/23/2010 7:45:37 AM (GMT-6)