Thanks for the updated info Trav, Madgirl and Roses.
I finally got to see an LLMD here in Berlin today who specializes in treating middle to late Lyme. I was quite happy that this doctor took quite a lot of time to hear everything from my side but I am still not sure what to think about
I should mention that here in Germany people are well aware of Borreliose. Most people here do know about
the disease. Their are 8,000-10000 new cases diagnosed a year here. This lead me to feel confused after my doctor visit because the doctor's approach on handling me Lyme is different then most of what I have heard and read thus far.
I explained to the doctor that I have been on Doxy for three weeks now and am feeling very bad still. I mentioned to him that I had some good days at the start of the treatment but in the last ten days it went downhill. He feels the Doxy is not working well for me and that I should go off it. He said I should not be Herxing at this point in the treatment. He said if the Doxy was working I would be feeling better at this stage. He recommend that I switch to Minocyclin. He said Mino is better for getting into the tissue cells. I have some ok hours on Doxy and some bad hours in the last two days. Today I had some moments of clarity followed by fatigue, This evening for example I was really feeling strong aches in my feet and feeling very fatigued. I could barely stand and walk. I have taken Detox baths a week straight now. The doctor had my blood taken at the office today and told me to come back on Thursday. He said he wants a clearer picture of what is going on with me with the Doxy treatment. He seemed adamant that Mino is the better treatment because as he said it reaches deeper into the cell tissue.
The last few days I have been taking Doxy two hours before I go to sleep on a meal. I stay awake an upright for the two hours. If I take it in the morning I feel bad all day and cannot get any work done. So I had tried the switch to cope. I was thinking that maybe tonight I skip the dose just to check if the bad feelings are the side effects of the Doxy. Is missing one dose an issue especially if I am about
switch ABX? I have a lot of work to do tomorrow. I really cant feel so bad again tomorrow. I never had such hard aches before the treatment started.
I also told the doctor I was taking detox baths and staying away from Carbohydrate foods. He did not see the need for either and said normally I should be feeling better from the Doxy. I told him I was worried that I am having neurological problems. He said he would send me to a neurologist. My question to you guys is shouldn't an LLMD be able to tell on his own if I am having Neurological disorders from this disease?
This doctor seems to think that Mino will solve my problems. He thinks I am in the middle stage of this disease and that is very treatable.
This doctor came highly recommended from a Berlin based Borreliose website. A German friend of mine who is helping another Lyme-y from the USA find treatment
searched him out. The other person she knows who has late Lyme is looking for a particular drug here that they don't use in the USA. I am going to ask her what this drug is.
It seems all this doctor said to me is highly disputed by what I read online. I did like this doctor's persona though. He was very kind , took a lot of questions from me and did not rush me out of his office like other doctors so often do. He also made a quick appointment to see me again this week.
So I'm not sure what to do here. Should I stay on Doxy, should I switch to Mino. I don't want to throw away the last three weeks of feeling bad on Doxy. Maybe it is working and I'm just herxing out harder then most. Then on the flipside maybe it is not working and I am putting myself in further misery if I stay on this another three weeks.
I am really beatdown mentally on what to do here. I hope I can get a bunch of opinions here. It would make me feel a bit more settled on this doctor , his thought and ultimately my decision on what to do.
Post Edited (Mr Blue) : 10/5/2010 3:46:29 PM (GMT-6)