Sore Soles--Lyme or Bartonella???

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Simela
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Date Joined Aug 2010
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   Posted 10/2/2010 11:03 PM (GMT -6)   
My worst symptom today has been sore soles.  I have not been diagnosed with Bartonella--only tested 1x and test came neg.  I do not trust the outcome of the test bec I was on abx for lyme, so the test may be false.  I tested + for lyme.  Any of you has sore soles from lyme and know for sure you don't have Bartonella?  I do not have high fever--haven't had it for the past 8 yrs, since I suspect I got infected. 

I have been trying to figure this out, as sore feet are present every day, some days worse than others.  Can't figure out from my readings if Lyme can cause sore soles, I read that Bartonella does.

Thanks so much!

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 10/3/2010 12:16 AM (GMT -6)   
Yes, I have the exact same question...thanks Simela for starting this thread!

I did not test positive for Bartonella, but my LLMD and LLND both feel I likely do have Bart. But right now they're concentrating on getting rid of the Babesia.

Anyway, the soles of my feet have been excruciatingly painful at times, and I too was wondering if anyone knows why?

Thanks,
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

autoimmunediseasesgfliving.blogspot.com

Missy Joy
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Date Joined Sep 2010
Total Posts : 53
   Posted 10/3/2010 6:06 AM (GMT -6)   
This is off topic - but I just read through your list nasalady at the bottom of your post. You are taking Prednisone while having Lyme? That's a steroid if I'm not mistaken. If that is the case, you might want to study on that!

Apparently steroids make Lyme and Co bugs much stronger and harder to kill. Sorry to butt in on your post on foot pain...
Philippians 4:13 I can do all things through Christ which strengtheneth me.

springsjean
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Date Joined Mar 2009
Total Posts : 2164
   Posted 10/3/2010 7:55 AM (GMT -6)   
I have sore soles for the first time and I have been really battling for 5 years but only 1 1/2 diagnosed. I did test positive for bartonella also. I thought I had every symptom possible until now. I didn't realize what it was until it wouldn't go away, kept attributing it to a certain pair of shoes. I'm on a new combination of meds which I think brought out these new symptoms including painful shins. Hoping its a good thing, that the meds are working. I can't for the life of me figure out how you know if its the disease getting worse or a herx. Just so frustrating to keep from getting overwhelmed. But we keep plugging in our attempts to stay positive.
Lyme, erlichosis, bartonella, herpes, EBV. 4 years undiagnosed despite 10 drs.
Current meds: tetracycline, amanatadine, neurontin, xanax, valtrex
Prior meds: amoxicillin, probenecid, doxy. IV refused by insurance.
THERE ARE ROUGH DAYS, TOUGH DAYS BUT ALSO GOOD DAYS. MY BOYS GET ME THROUGH THE BAD AND I SO ENJOY THE GOOD DAYS WITH THEM!

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 10/3/2010 1:04 PM (GMT -6)   
Missy Joy said...
This is off topic - but I just read through your list nasalady at the bottom of your post. You are taking Prednisone while having Lyme? That's a steroid if I'm not mistaken. If that is the case, you might want to study on that!

Apparently steroids make Lyme and Co bugs much stronger and harder to kill. Sorry to butt in on your post on foot pain...


Hi Missy Joy,

I've answered your post here.

JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

autoimmunediseasesgfliving.blogspot.com

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4415
   Posted 10/3/2010 3:31 PM (GMT -6)   
In my opinion, because Lyme can mimic so many other conditions, I believe Lyme can also cause foot pain in the absence of Bartonella. That said, I have had the foot pain thing off and on (shoes do make a difference for me, so do consider your footwear in addition to Lyme/Bart treatment) and have a clinical diagnosis of Bartonella despite 2 negative tests (once each from Fry Labs & IGeneX).
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, UCTD, Osteoporosis, etc.; G-Tube; TPN via PICC.
Meds: Ceftin, Singulair, Claritin, Domperidone, Milk Thistle, Moducare, homeopathy, etc.

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 10/4/2010 6:02 AM (GMT -6)   
Sole pain has probably been my third top/worst complaint during the last three years I've been sick. The first LLMD I saw was concerned/suspicious of at least two co-infections; the LLMD I currently see may have mentioned co-infections but it's not something he seems too worried about (I think he's been primarily focused on trying to find just ONE treatment/medication I can tolerate that will begin to heal me!). I had never heard (before last week on this board) that pain in the soles of the feet were specific to Bartonella. I only knew that it was a common symptom of Lyme (from Dr. Burrascano's treatment guidelines and other "checklists" I've read).

Even yesterday I found myself tip-toeing across the kitchen floor, without even thinking about it, because my poor footies hurt! It's usually worse in the mornings (or after waking up).

I have to agree with Razzle - I wouldn't assume the symptom is specific enough to determine whether you think you may have Bartonella. After all, there are joints, muscles, bones, and nerves in our feet - so why WOULDN'T they hurt!?! LOL :)

ineisa
Regular Member


Date Joined Dec 2009
Total Posts : 72
   Posted 10/4/2010 7:58 AM (GMT -6)   
Yeah, I have pain in my foot soles as well, specially the end of the foot under the ankle. Its strange I have started having this symptom after being 2 months on antibiotics, now I am on my 5th and I still have it. It's worse in the morning and when I have not moved for a bit. very strange and I do not have anything else but Lyme, no co-infections. I have tried doing some specific foot stretches but it does not seem to work. I was blaming it on my running training but now that I have seen you guys talking about it it might actually not be my running. I have made to measure shoes and have been running for a very long time and never had sore soles, until I contracted Lyme. :-(

Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 10/4/2010 8:33 AM (GMT -6)   
Ineisa:

Sore soles were one of my worst symptoms 8 yrs ago, when I got sick out of the blue (I was never that sick, not even now). I suspect that is when I got infected. I could not walk, to go to the bathroom, I was supporting myself on the side of the feet and furniture. My throat was almost completely shot, I could not even dring a couple of drops of water. 3 weeks of abx got me well. I started to walk and was as strong as before. Then I was diagnosed with lyme last year. Sore soles were not my worst symptom at first, although I had trouble walking. Now it is and it started just in your case, after I got on abx, about a month 1/2 into abx treatement. Strange, indeed! Maybe is a herx?

May I ask how can you be sure you don't have coinfections? I tested neg for bartonella, but my LLMD thinks I have it--I don't know what to think. The tests were through Quest and was already on abx when I got tested, so they may or may not be accurate...

How can I be sure I don't have bartonella?

ineisa
Regular Member


Date Joined Dec 2009
Total Posts : 72
   Posted 10/5/2010 7:23 AM (GMT -6)   
Hi Simela, I think you are right and it is a co infection, which I have not tested positive for. But as we all know here testing positive or not is really not the point since those tests are so unreliable. Actually the pain in the soles stays for a few weeks and then disappears for a few weeks, so I must be herxing. Normally I have those pains accompanied by other symptoms like joint pains, menstrual pains, low energy and feeling a bit down. I do a lot of sports and when you train hard an you do not get fitter but actually less fit it depresses me a bit. I cant complain, a lot of people here cant walk, but I promise you making my self go to the gym or go for a run takes extreme power and energy for me, which before I never even thought of. Its my way of battling this disease.
I am taking 3 different antibiotics at the moment, and I believe one of them is for co infections, so maybe my doctor thinks I have, although he did not say, or he might want to be on the safe side. (My doc is not very chatty!) What are you taking for Bartonella?
Loves horse riding, sailing, skiing and diving! Lyme nor anything else will stop me!

Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 10/6/2010 7:42 AM (GMT -6)   
Ineisa:
I am not taking anything for Bartonella, yet. I am nursing my baby and decided to do it for 2 more months bec I had lyme during pregnancy and up to when she was 7 mo old already, I did not know and did not get treatement. My GP said the tests were false + and did not treat me.  Prior to getting pregnant, I had 3 wks of abx, which did not cure me, I had 3 + lyme tests after that.  Her dr said that if I continue nursing, she may get the antibodies and beat it, in the event she got infected. It is very stressful, I am just hoping and praying she is not sick! She is doing really well, she is smart and climbing on furniture, just like a health 10 mo old. I can't bare the thought that she may have this aweful disease! I will start Bartonella treatement probably in Nov, when I will see my LLMD. By then she will be almost 12 mo and can start regular milk. Sore feet continue to be the most persistent symptom. Everything else comes and goes.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 10/6/2010 9:08 PM (GMT -6)   
Ah, me again here! Still the worst symptom for about a month now, or maybe more. My soles feel like they are on fire but numb, also, hard to expain! I will call my LLMD on Thursday and see what he says, is it herx, is it Bartonella, or what???

steelbone
Regular Member


Date Joined Oct 2010
Total Posts : 24
   Posted 10/7/2010 8:00 PM (GMT -6)   
I know bart makes the bottom of my feet sore
Be Well
Paul
The harder you work the luckier you get!
www.curelymedisease.com

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 10/7/2010 10:48 PM (GMT -6)   
Steelbone:

How can you determine this? Do you have lyme, also? I wish I could sort this out and be sure!

steelbone
Regular Member


Date Joined Oct 2010
Total Posts : 24
   Posted 10/8/2010 4:50 AM (GMT -6)   
Simela

Well i had my blood looked at under a 100,000 dollar micro scope and it showed i had a ton of bart..good amount of babs as well

Plus about 2 yrs ago i went to germany and used the bionic880 and pretty sure it cleared the lyme

co-infections can be much harded to get rif of for some
Be Well
Paul
The harder you work the luckier you get!
www.curelymedisease.com

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 10/8/2010 8:13 AM (GMT -6)   
Thanks, Steelbone! That makes a lot of sense!

ineisa
Regular Member


Date Joined Dec 2009
Total Posts : 72
   Posted 10/8/2010 2:44 PM (GMT -6)   
Hi Simela,
Thanks for your reply. It must be so hard to worry about your little baby. I can't imagine what you go trough because I don't have children. I would love to, I am 37, but I am extremely worried about passing it to my baby if I would got pregnant. I have had Lyme for a year now. I am going to wait a few years till hopefully I have an all clear and no more symptoms.
By the way, today my soles are killing me!
I wish your little baby all the health in the world and I hope you get better soon!
X
Loves horse riding, sailing, skiing and diving! Lyme nor anything else will stop me!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 10/8/2010 4:59 PM (GMT -6)   
Thanks and good luck, Ineisa! It is great being a mom, but lots of responsibilities and worries!

IndiaBeth
Regular Member


Date Joined Jul 2012
Total Posts : 39
   Posted 7/25/2012 4:08 PM (GMT -6)   
I also have sore soles. I have sore calf muscles too. Sometimes its joint pain in my fingers and toes. Sometimes the pads of my feet feel like I've been standing on cement all day. Sometimes the skin hurts to even put on socks. Sometimes it the thigh bones that hurt.

I don't believe its Plantar F.
I've also had an EMG done to rule out Tarsal Tunnel.

My blood test for Bart came back neg. My Lyme test came back pos.
35yrs. Female. Diagnosed with Lyme '09.

PrayingForAMiracle
Regular Member


Date Joined Apr 2012
Total Posts : 289
   Posted 7/25/2012 4:26 PM (GMT -6)   
The soles of my feet are also painful. Years ago right after I had the bulls eye rash it felt like I had marbles in the bottoms of my feet, that still happens from time to time and other times it just hurts to walk.

tickssuk
Regular Member


Date Joined Jul 2012
Total Posts : 64
   Posted 7/25/2012 5:57 PM (GMT -6)   
Though I wasn't tested for Bart., my LLmd thinks I have it b/c of some of my symptoms--sore soles being one of them. Thankfully, my soles are ok for now, but it was awful when they hurt. Not only was it painful, but it seemed to exhaust me & make me want to crash/lie down, especially after working.
 
Instruction does much, but encouragement everything.

chatwithme
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/25/2012 8:28 PM (GMT -6)   
mine used to hurt as soon as my feet hit the floor after waking or sitting for a while. it was like walking on huge bruises! horrible pain. with the bart, where many people have streaks, i had awful sores that would not heal all over my back and shoulders. the sores were like ulcers.

IndiaBeth
Regular Member


Date Joined Jul 2012
Total Posts : 39
   Posted 5/7/2018 8:28 AM (GMT -6)   
Since I last posted in this thread in 2012, I have been to SIMC. I feel like the lymes is dead now and I would think any other bacteria as well. My darkfield looked pretty clean of them.

Yet my foot and joint pain continue. All my blood tests that show the SED rates are low. I wonder if all of you have low SED rates in your blood tests also?

Has anyone found a way to combat this foot pain?

Thanks!
36yrs. Female. Diagnosed with Lyme '09.
Physically fit. HORRIBLE foot pain. Joint, muscle, and bone pain mostly in legs and feet, but also in arms, hands, and spine. Fatigue. Sensitive stomach.
Took doxy initially.
Started rotating abx in Aug 2012. Felt better in April 2013 so I stopped. Back in pain by June 2013. No herbs as of yet.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 5/7/2018 8:40 AM (GMT -6)   
IndiaBeth - Since this is a thread from several years ago - some of the members are no longer posting on this forum - so not sure if you will get a response.

What is SIMC? Is it a facility to treat lyme?

Were you ever treated for bartonella?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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