I know what you are talking about
, +Lyme! I'm having one of those days today, myself!
Hubby was up in the middle of the night (although he was very
careful to not disturb me), so he decided to go lay down for a bit & I was soooooooooooooooo close to giving in & joining him!!
It's just that there's nothing really going on with me today - just got the "ickies".
I usually push myself each & every opportunity - only to my new 'safe level' though. I cannot take naps during the day, otherwise I won't sleep at night, so I really need to avoid staying in bed unless I'm truly needing to be there.
For me I think it has a lot to do with the constant fighting that goes on when a person has chronic conditions that are as serious as this. I have to fight to wake up in the am, fight to get those first pills down me, fighting that constant fatigue that is still with me, trying to ignore (or fighting with) the constant pain, & muscle weakness - you get the picture, I'm sure.
For me, there is still just one phrase that keeps coming to mind - I AM SICK AND TIRED OF BEING SICK AND TIRED
Another thing I have noticed about
me is that I actually experience the pain & exhaustion from doing a lot of the things I still can do - but not until later, sometimes much later! I'm not talking about
a week or more, but more like a day later, or even two days later.
For me when a pain or other symptoms 'suddenly return', I feel that it's not psychsomatic, so much as I believe that I actually got used to it so I didn't notice when it was gone - if it even actually left.
For example - I don't notice muscle twitching & episodes of muscle spasms any more unless they are really
If my arm starts bouncing around - I notice!! If one of my legs suddenly moves without any conscience commands from my brain - I notice!!
HECK!! I have even given myself not one, but two black eyes before!!! Giggle - that was what totally convinced hubby that I was having some pretty serious muscle spasms!!!