Your words here;
"The positive "diagnosis" via the blood test made me feel it was for certain a true lyme diagnosis, and the Western Blot 2nd testing was standard."
describes an belief what we really need to change, in my opinion. The tests are just not reliable enough at detecting the positive results - mainly because we don't have any tests yet for the all of the different strains of Lyme,
much less reliable tests for all of the different strains of Bartonella, Babesia or any other co-infection - and that doesn't even begin to address the fact of faulty evaluation of test results because of either ignorance or pressure from peers.
Please don't mis-understand me though - I wanted - needed- to have that blood test that said I was positive as well!! The only problem I encountered was that I had to be on abx for a full 12 months before I could
test positive for any tick-borne infection!
The other thing is that this doesn't even begin to take into consideration is the fact that Lyme - in two of the three forms it takes on -can literally hide in a person's body so very well, that that same person's body won't even recognize it as some thing foreign!!
Anyway, IMHO - These are attitudes that we
need to change!! Even our own docs don't have a clue as to what the CDC even says about
Lyme & it's diagnosis!!
I believe it is one of the small things that we, collectively can help change - but first we need to be sure we have our info straight, so that we don't compound the problems already there.
Okay - I'm done now
- I'll be climbing down off of that proverbial soapbox now.... sorry, this was not 'aimed' at anyone here on HW!