What's Wrong With Doctors!

I saw my doctor for the first time yesterday since his phone call to me informing me that I have Lyme Disease and he didn't even take the time to explain anything to me.  After making me wait nearly an hour to see him.  He comes in and acts like my questions are a bother.  He refers me to a neurologist and tells me to get an ultrasound of my neck to check for plaque build up and looks at me like I'm crazy because I ask about my Lyme Disease.  He ordered more blood work and I don't even know why.  Is this normal?

I also had to take my child today to the pediatrician because of having similar symptoms.  The doctor was extremely rude and insensitive.  I was interrogated about having Lyme and the whole time she had a grin on her face as if my being concerned about my child's facial twitches and rashes is the most rediculous thing she's ever heard.

I would'nt know anything about this disease if it wasn't for this forum and all of the people who've chosen to take something awful and use it to help others.................Willie

 

Hi Willie,
Sorry to hear you are suffering with Lyme disease. Unfortunately you have now just receive a taste of what most of us have had to deal with. The majority of the health professionals either don't believe Lyme disease is a big deal, or that it even exists outside of a few states. Many times a positive Lyme test will be discounted as a false positive, and you will receive another diagnosis for MS, Fibro, or CFS and on and on.

Don't waist your time with these doctors. You will need to find a LLMD to treat you properly.

Best wishes

willie0521 said...
Hello Cheezhead, I guess that explains why my doctor wants me to see a neurologist. I couldn't understand this. If I tested positive for Lyme and I have all of the classic symptoms why continue to do more testing? I was hoping that he was going to go over treatment and advise me of things I can do to help myself get better.

When dealing with my own child, I was even more disappointed. How can a children's specialist take something like the possibility of Lyme so lightly? It's mind boggling!

Thankfully, I was given an LLMD close to where I live by two people from this forum. I'm waiting for the results of my child's test to schedule an appointment...........................Best wishes to you too.........................Willie

Do not be surprised if the neurologist comes up with a different dx. Just mentioning Lyme disease in most doctor's offices will draw a bad reaction from many in the health care field. I have several family members who work in health care. When I was finally dx nearly two years after being infected, I was having a conversation with these family members and told them I had Lyme. They were all very surprised, one who is a nurse, stated that in her twelve years as a nurse she had only known of one, maybe two patients she could remember being diagnosed with this disease. Now I live in Wisconsin, and we happen to be one of the states with near epidemic number of cases, and she had only known of a few people with this disease??? That's crazy!!

Thanks Cheezhead and Achievinggrace for your responses!

I am so disgusted in the medical profession right now. Here I thought that once I had a diagnosis I would be well on my way to full recovery. What a disappointment! Initially I thought I had MS so the Lyme dx was actually good news to me. Now, I feel even more frustrated than before. After joining this forum and obtaining some knowledge from all of you I realized how strange it was that my doctor called me ever so casually to tell my I have Lyme and to just go pick up my meds. When I had a reaction to the meds I was completely unprepared. I thought I was gonna die! It's such a shame that doctors don't seem to really care anymore.

I thought the neurological testing was necessary to see how much nerve damage I have. I certainly do not want to keep testing just to make my doctor and perhaps his friend the neurologist happy.

I hope to get to an LLMD soon.....Thanks again.........Willie

Most doctors operate on the information they are GIVEN by the pharmaceutical companies over dinners. That means they are eating and half listening, but generally not being given the whole story anyway. My guess is that we're given more information about negative side effects from our tv ads than the doctors are given directly by their drug reps. Then there's the little problem of doctors being afraid to step out of the box and actually think for themselves. They need the income and are afraid of prosecution in the event they do something that's not blessed by the medical boards. Most start practice with huge student loans and by the time they're solvent, they've lost their interest and curiosity about the true state of disease. They need to make a Mercedes payment.

Get used to being blown off and get used to having to do your own research. I've been at this for 40 years and everything I've learned has been because I found out myself...not what doctors told me while they were handing me Prozac or putting the chemo needle in my arm.

BUT, if you do find a caring and knowledgeable LLMD, then you are ahead of the game. God bless the ones willing to put themselves in the line of fire.

Bitter? Of course, but much much wiser. Most of the folks on this forum know 100% more than 90% of the doctors. I've learned a lot and continue to learn, on here and other research....It's called survival. If we don't do it for ourselves, then we have to think of our families.

Can you tell I'm not having a good day????

Ditto to all posts here! When, when, WHEN will the CDC step up to the plate !?

Discouragingly, I have some across quite a few published articles on the internet where it is said that the CDC et al.....know that Lyme is incurable.

That MIGHT be true.....until someone cures it. I personally believe a cure is out there.....somewhere. But who's working on it? I want to visit them!

Thanks for that article Cat111.  It was eye opening for me.  I now have a better understanding of why (as I've been told by some on this forum) it's so very important to keep a positive attitude.  I also better understand why I may have gotten the reaction I did from my doctor.

My goals have become to try to be as healthy as I possibly can in mind, body and spirit........................Willie

Thanks Traveler! I have so much more understanding now about what Lyme disease actually is and what it can do. Because of the knowledge I have gained on this forum I have chosen to live as stress free as possible and I have gained the strength to keep toxins and toxic people as far away as possible.

I find myself constantly choosing to be happy inspite of the circumstances. I'm trying to become aware of all the good in my life. Some days are harder than others (as you know).

I appreciate your help in understanding how complex this disease actually is. There is no easy fix. It seems so rediculous to think that, not so long ago, I believed there was a cure and that I'd get well once I was diagnosed. This seems so foreign to me now. It's almost comicle. Thank you also for sharing some of what you've been through. It gives me the courage to face whatever comes my way. ................Willie