Chronic late stage Lyme, brain calcifications.

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Lymeatlast
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/8/2011 7:29 PM (GMT -6)   
I was dx. A year ago, have had Lyme dx. And co-infections for at least 22 yrs. I have multiple neurological & some cognitive problems, as well as a very long list of physical problems. My ?? Is has anyone else been told they have a brain full of calcium deposits? (Per MRI and my neurologist). My LLMD doesn't know if it is caused by Lyme , but believes it could be.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 1/8/2011 9:54 PM (GMT -6)   
HI Lymeatlast!!
Welcome to our forum!! I am sorry that you have a need to be here, but I'm glad you found us!! I'm sure you will find us to be a caring, helpful and understanding group.

It would be good if you read through the sticky thread at the top of the forum titled, "New to Lyme?...Start Here!" as has a lot of good info in there - even if you aren't a newbie to this disease!

Your question caught my attention. I have managed to not have any lesions on my brain (somehow) - according to my gp anyway. I started looking around on the internet & really couldn't find many answers to your questions.

I did read that infections & some viruses can cause calcium deposits in the brain - Lyme Disease & Ricksettia were the two mentioned. As far as a way to rid the brain of them & how to stop the build-up?? i couldn't find any answers for you.

Fortunately though , we have members here who have a much better working brain than mine!!! smilewinkgrin They should be along soon to weigh in on this for you
Co-Moderator, Lyme Disease ;)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

I break my posts up so that I can read them easier. I have neuro LD & the print actually dances around if the paragraphs are very long. Thank you for understanding.

Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 1/9/2011 8:59 AM (GMT -6)   
Welcome Lymeatlast

I had an MRI and it showed lesions on my brain as well. It is from the lyme.

Not sure if my theory is correct but I was bit on the very top of my head and feel that the lyme bacteria
entered there and has done the most damage. Meaning I have/had alot of neurological symptoms.

A great deal of them have subsided with IV meds. That is the only thing I have found to work for me when I
need that brain fog to ease up so I can function. It has the ability to cross the blood brain barrier.

JR0404
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/9/2018 9:46 PM (GMT -6)   
I’m not sure if it is Lyme’s related, but I have calcifications in my Basal Ganglia - specifically my Dentate Nuclei and Globus Pallidus. Those regions are responsible for voluntary movement. My diagnosis is Farh’s disease, but it doesn’t run in my family like most people with Farh’s experience.
Anyway, I was diagnosed with Lyme’s in 2013 and I’m still having a ton of issues surrounding my health. I feel like it could be related with the way Lyme’s can penetrate the barriers in your brain. Who knows though!?! I hope you are feeling better. Best wishes -Jenn

Post Edited (JR0404) : 1/9/2018 8:54:43 PM (GMT-7)


Girlie
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Date Joined May 2014
Total Posts : 32559
   Posted 1/10/2018 12:27 AM (GMT -6)   
Sometimes those with Lyme are misdiagnosed as having MS because of mri’s showing lesions in brain and/or spinal cord.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 1/10/2018 12:30 AM (GMT -6)   
JR0404 said...
I’m not sure if it is Lyme’s related, but I have calcifications in my Basal Ganglia - specifically my Dentate Nuclei and Globus Pallidus. Those regions are responsible for voluntary movement. My diagnosis is Farh’s disease, but it doesn’t run in my family like most people with Farh’s experience.
Anyway, I was diagnosed with Lyme’s in 2013 and I’m still having a ton of issues surrounding my health. I feel like it could be related with the way Lyme’s can penetrate the barriers in your brain. Who knows though!?! I hope you are feeling better. Best wishes -Jenn


Hi Jenn, welcome !

Have you finished treatment for Lyme disease?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

JR0404
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/13/2018 2:21 PM (GMT -6)   
Hi Girlie,
I was originally treated in 2013-2014, but here I am again going through another round of treatment that started this past Friday. Hopefully this time will be more successful than the last.

-Jenn.

Post Edited (JR0404) : 1/13/2018 1:59:47 PM (GMT-7)


magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 1/13/2018 4:00 PM (GMT -6)   
I'm always curious when people talk about brain issues-did you ever get checked by a biological dds?

JR0404
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/14/2018 9:27 AM (GMT -6)   
Magoo2,
I have only been seen by two neurologists. The one in town referred me to the University Medical Center and he diagnosed me with Farh’s. It is an extremely rare disease and normally genetic. No one else in my family has it, but with how nasty Lyme’s can been with the brain, I’m curious if that could be a cause. Unfortunately there is no known treatment for Farh’s other than to minimize the symptoms. Fortunately I don’t have any symptoms and hopefully I never will. Do you know what a Biological DDS would offer vs a neurologist?

-Jenn

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 1/14/2018 12:22 PM (GMT -6)   
Hi Jenn,
I've had several white spots seen on my brain MRI, but they were not identified, so I'm not sure what they are - but whatever they are, there's little doubt that they were caused by these infections.

When you were done with your Lyme treatments, where your symptoms gone? Did you have other symptoms still remaining? That may help you find your answer. We are supposed to treat for 6 - 8 weeks after the resolution of all symptoms (as Girlie said).
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

JR0404
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/16/2018 11:46 AM (GMT -6)   
Traveler,

I'm sorry to hear about the spots you have on your brain. Do they cause you any issues? Have they looked into MS as a possibility?
It is hard to say whether my symptoms were gone after my first bout of Lyme's treatment. That sounds really dumb, huh? Well, I was working in a mold filled building at the time I was diagnosed with Lyme and we weren't sure which was the biggest culprit. Within seven months, I was diagnosed with Lyme's Disease, Hypothyroidism, my wife had our son, I was diagnosed with a genetic mold sensitivity, I had a breast reduction so I would no longer be an obscene size, and then we moved out west into a house with mold, then an apartment with mold, I had a pleomorphic adenoma removed from my submandibular gland, and then our home was finally built. Just a touch of craziness going on... but hey we like to keep it interesting around here.
So long story short (believe it or not), I can't even recall whether or not I have ever been symptom free. My guess is not entirely, but I am the type who will beat my head against the wall until I break through it.
Other fun facts... on my first trip to Labcorp for Lyme's, I was negative. I completed an IGenex test and was clearly positive. This time the test for Labcorp showed me as positive for Lyme's and C. pneumoniea. It would seem that they have just continued to wreak havoc on my body the last four plus years.
I hope that the spots on your brain never amount to anything and that you are fully recovered/recovering from Lyme's Disease.

---Jenn

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 1/16/2018 11:59 AM (GMT -6)   
Well, thank you for your kind words!

I had 2 doctors try to convince me I had MS and needed to start treatments immediately if I intended to survive - but I dug my heels in, because my symptom picture just didn't fit well enough for me to say "I have MS" - glad I didn't either, as they were the ones that were wrong (again).

I do have brain issues -but I don't really know if it's directly from the white spots that showed up (7 or 8 of them - they said it only looked like I had an old brain -what does that mean exactly???) or not. I also had a SPECT scan that showed I had reduced blood flow to 2 areas of my brain. I don't remember which areas exactly, but they corresponded exactly with the stronger symptoms I was dealing with at the time.

I took Buhner's advice and added in Ginkgo Biloba twice a day, and it's really been helpful. I've now been on it for about 2 years and I'm seeing a lot of improvements to my brain function, even though I do have some significant deficits still - like math, which I now really s*ck at!!!

Have you had successful mold treatments? That would be your first obstacle to clear, even before tackling Lyme again - unless Lyme symptoms are worse for you - then it may take a combined approach. But, most (not all -there are no hard and fast rules with these infections) people with mold infections must clear those first.

If you haven't started any treatments yet, start with detoxing. I can recommend a good ebook (not very expensive) that you could read through to have an understanding of what must be done. Just let me know if you are interested. It goes into the best items to use when detoxing from molds and lists them according to the type(s) of mold you are dealing with.

There's no doubt about it, the extra "excitement" in your life added to the complications of the illnesses you have - but, still, what a lot of good things in your life! Congrats on the baby, new house
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

JR0404
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/17/2018 4:58 PM (GMT -6)   
I'm happy to hear that you do not have MS and that you are doing better. That is great!!! Anything involving the brain is scary. I'm not sure if other people understand how crazy you begin to feel the more you forget things like words or what you just did. I'd love to blame it on the kiddos, but when you go grocery shopping two days in a row and buy the same things... there is an issue.

We certainly keep things active around here, but you are right... some of it is good stress and we are very blessed for the family we have created and our lives in general. Just need to get this health mess sorted out! smile

Anyway, I would love any information or recommendations you have for detoxing, herbal remedies, antibiotics, the ebook, etc. I am currently on Doxycycline M-F 1 pill 2x a day, Fluconazole MWF 1 pill, Tinidazole Sa-Su 1 pill 2x a day, and Probiotics (50 billion). I'm supposed to follow up after two months of treatment. I have a good doc who is determined. I know he will do whatever he can to get me healthy.

What did your treatment look like? Did you ever see an MD or LDD?

-Jenn
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