Hi mentalcompass, welcome to the forum! I'm really sorry for the reasons that bring you here, though!
If you haven't done so yet, you might want to read through the first "introductory" post for newbies at the top of the forum, so that you have some of the background on the issues.
I really feel for you, going through all of the weird muscle spasms, nerve pain, tremors, shaking, breathing issues, etc.
Yes, those symptoms do sound familiar.
Lyme sounds like a serious possibility, particularly
since you got this puppy in 2009, it had ticks (BTW, it may have come to you with ticks attached, this happens a LOT these days), and your health issues began 3 months later.
Yes, you should be tested for Lyme, but you can't order it yourself, a doctor has to order the test for you. But tell him/her not to bother with the Lyme ELISA test, start with a Western Blot test, which is much more sensitive.
What you CAN do, and I highly recommend this, is chose the laboratory that analyzes the test. The best Lyme lab (I'm not associated with them in any way, they just have the best reputation) is IGeneX
in Palo Alto CA. You can call them and ask for a Western Blot test kit, they will mail it to you. You take it to your doctor and ask if they can take the blood samples for the Lyme test in the doctor's office, or if you will need to go to a local lab to get blood drawn and then use the instructions in the kit to FedEx the blood samples back to IGeneX
tests are much more sensitive than those of LabCorp, Quest, etc., from what I've read, and the other thing is that when you get the results, they report ALL of the bands, not just the ones that pertain to the CDC criteria
. The main thing about IGeneX
is that you have to pay for the tests up front then get your insurance to reimburse you later.
Please realize your neurologist will likely go by the CDC criteria
anyway, so if you're negative by those rules, he/she will say you don't have Lyme. DON'T YOU BELIEVE IT! You need to be seen by a good Lyme Literate doctor (aka LLMD) to really figure out if you have Lyme or not.
The very best thing for you, of course, would be to be seen from the start by a LLMD. They will know how to test you properly for Lyme AND for other tick-borne diseases such as Babesiosis. The "breathing problems" you're having sound very much like the "air hunger" caused by Babesiosis.
I have Lyme plus 3 "co-infections": Babesiosis, Ehrlichiosis, and Bartonella.
Where do you live? We can probably help you find a LLMD near you.
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Post Edited (nasalady) : 1/9/2011 10:35:37 AM (GMT-7)