Any Role of Lyme Disease in Sarcoidosis?

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Mamyou
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Date Joined Aug 2010
Total Posts : 317
   Posted 1/13/2011 5:28 PM (GMT -7)   
Has anyone on the forum been diagnosed with Sarcoidosis then later with Lyme?  Or Vice Versa?  A person I know is being tested for possible sarcoidosis and was told if positive, the treatment would be steroids.  My first thought since it's considered an autoimmune disease, this person should be tested for lyme.  I pulled up a few websites that indicated a relationship.  Any thoughts or comments?

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 1/13/2011 7:03 PM (GMT -7)   
I know there is a connection between mycoplasma (a coinfection to Lyme) and Sarcoidosis...and it would not surprise me in the least if Lyme itself could cause Sarcoidosis...
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, UCTD, Osteoporosis, etc.; G-Tube
Meds: Ceftin, Singulair, Claritin, Domperidone, Milk Thistle, homeopathy, probiotics, etc.

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 1/13/2011 8:13 PM (GMT -7)   
What I just read about it is that one cause could be an "extreme immune response to infection". That would pretty much qualify LD & any other tbi.
Co-Moderator, Lyme Disease ;)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

I break my posts up so that I can read them easier. I have neuro LD & the print actually dances around if the paragraphs are very long. Thank you for understanding.

bucci
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Date Joined May 2006
Total Posts : 1477
   Posted 1/13/2011 9:33 PM (GMT -7)   
My friend has been phAntom sick for years ways blaming on sarcadosis now the have her medicated for alzheimers.. She is 56 and was like a zombie a
When I saw her last week. She has been in pain for years. She lives on long island (Wrong island) and we all were on cherry grove fire
Island for 30 yrs in summertime. I am positive there is a link between sarcadosis and Lyme. I bet Lyme causes sarcadosis.
after over 20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 1/13/2011 9:38 PM (GMT -7)   
So instead of treating sarcoidosis as a disease in itself, the treatment should be geared toward any underlying infection???? Given what I know now, the Igenex test should come before any treatment. If this person's lung biopsy comes back as sarcoidosis, they are going to treat with steroids. If there is Lyme, the treatment may work temporarily yet weaken the immune system even more. The sad thing is that I don't think these folks will listen to me....or even want to listen to me because I'm perceived as pretty much a nutcase. I'll think on this awhile longer. Thanks Razzle and Trav.

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 1/13/2011 11:29 PM (GMT -7)   
Mamyou, Lyme has triggered several autoimmune diseases in me, including dangerous ones like lupus and autoimmune hepatitis which attack major organs. I suspect that Lyme can trigger pretty much ANY autoimmune disease, including sarcoidosis.

I'm currently on immunosuppressants like prednisone and Imuran for all of my autoimmune diseases (6 of them), AND I take antibiotics for the Lyme and 3 co-infections. My LLMD and LLND both want me off prednisone eventually but right now it's not possible....prednisone has saved my life, it saved my liver from destruction by my own immune system.

There's no guarantee that my AI diseases will go into remission if and when the Lyme is beaten into submission. I suspect that I really truly DO have lupus, for example, that it's not a case of Lyme mimicking lupus. The reason I think so is that lupus runs in my family. Two of my aunts in Texas died of lupus, I have several cousins with lupus, and now one of my daughters has lupus. So I know that there is a genetic pre-disposition in my family to develop lupus. I think that Lyme was the trigger for my lupus.

Perhaps you might want to tell them what you know, and suggest that he/she be tested just to rule out Lyme disease. Praying for your friend.....
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 1/14/2011 8:24 AM (GMT -7)   
That's worrisome and is making sense. Any autoimmune disease is still a disease in itself, however, there is a possibility that lyme and co "triggered" or "allowed" it to occur. They still have the AI disease and need treated for it. There is also the possibility that lyme can mimic an AI disease, and those are the folks that respond the best to lyme treatment and not the AI treatment??? However, if lyme &/or co triggered or allowed an AI disease, the AI disease can respond to treatment yet the patient remains sicker than expected because of the underlying infection (maybe sicker if it's lyme and patient is treated with high dose steroids)???? Which, by the way, the underlying infection may not be found because traditional medicine won't look for it?????

The person awaiting diagnosis is male, the main breadwinner, in mid-30's with two children.....and extremely, extremely mainstrain medicine. He also doesn't like me much!! Thank you for your prayers, nasalady. I fear he will need them.

bucci, I always enjoy (maybe not the right word...I don't enjoy somebody else's pain) and relate to your posts. I grew up in an environment similar to yours...explosive and uncomfortable. I think that's part of what weakened my immune system for all this mess.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 1/14/2011 9:26 AM (GMT -7)   
Mamyou,
Watching others shove their heads back (or deeper!!) into the sand like an ostrich has been very hard for me to watch.

But please remember-
You can bring a horse to water, but you don't want to beat him to death to try to make him drink!

Sometimes for our own health we have to 'wash our hands' of the whole thing & just let them do what they are going to do.

With that being said- you & that family wil be in my prayers.
Co-Moderator, Lyme Disease ;)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

I break my posts up so that I can read them easier. I have neuro LD & the print actually dances around if the paragraphs are very long. Thank you for understanding.

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 1/14/2011 9:28 PM (GMT -7)   
Trav, Thanks for the corrective jerk or maybe I should say adjusting my perspective!!! You're absolutely right. I will let them know I'm available for discussions, but not gonna cram it down any throats... What I will do is mention that I think he should get an Igenex lyme test before he does anything. Other than that, information given will be by his request only. How's that???!!!!

But in the meantime, I'm researching.

By the way...completely off the subject, but has anybody done any reading about horseradish and lyme? I bought a jar this evening, brought it home and put almost a teaspoon in my mouth...thought my head would blow off....but it IS an antibiotic and it's listed in some of the lyme sites.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/14/2011 9:52 PM (GMT -7)   
Hi Mamyou,

I did find an article that refers to the antibiotic properties of horseradish (as well as the pesticidal properties of the plant), at this website:

www.kroegerherb.com/index.php/learn/article/126

JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 1/15/2011 12:22 PM (GMT -7)   
Maybe we'll find a whole new antibiotic-free way to help with lyme & co!!!!!!!!!!!!!!!!!!! One article I read mentioned it killed parasites.... I'm figuring it won't hurt to try a little each day. It sure opens up the sinuses.

Still researching the sarcoidosis and any relationship to lyme and/or co. Lots of information for the ones who want to step outside the traditional way of thinking and yet another disease that may have a TBI beginning????

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 1/15/2011 1:01 PM (GMT -7)   
WOW!! shocked My eyes are watering just reading your posts about horseradish!!! cry EW!! But then again I am recovering from a migraine & am still dealing with nausea & visual effects!!


Mamyou~
I just found an article I think you would enjoy on this subject. It's actually written by a Veterinarian, but they have a lot more understanding & freedom of speech about this subject (In my opinion).

What you are looking for is about 1/3 of the way down the page, under the title "A Major Medical Breakthrough; Dr. Trevor Marshall’s Angiotensin Discovery".

autoimmunityresearch.org/lyme-disease/

I was going to print the entire article, as this whole article has piqued my interest, but it's....... wait for it............. shocked 44 pages long!!!!! cry

So I will see if I can read it on line instead.
Co-Moderator, Lyme Disease ;)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

I break my posts up so that I can read them easier. I have neuro LD & the print actually dances around if the paragraphs are very long. Thank you for understanding.
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