I was diagnosed with Sarcoidosis in 2014 and tested positive in 2017 for Lyme. I was given 2 rounds of antibiotic for Lyme disease and then retested my blood and it was negative for lyme. I have lungs full of scar tissue and shortness of breath. I am on 30 mg of prednisone a day. Two weeks ago, I started a regimen of natural meds for lyme disease just for my own self-help and to hopefully get off the steroids and get rid of the joint pain. I can say I NO longer have any shortness of breath, I can walk long distances with no problem. All my joint pain has been reduced it seems to be getting better every day. I think Lyme is the culprit in my case, and is hiding in my body and the steroids are just helping it thrive. The natural medicines on the other hand are kicking it's butt! I have to say I feel amazing getting my breathing back if nothing else, is fantastic!!!!
Sounds like you were undertreated in 2014.
I’m assuming a regular Dr treated you (Not a LLMD)?
Testing blood after treatment can’t be used to determine whether we are in remission.
That’s great that the natural meds are helping!!
(You do know that taking steroids in higher amounts for autoimmune diseases is generally not advised?)
It lowers your immune function allowing the infections to thrive.
Have you thought about
seeing a LLND or herbalist to guide your treatment?
I hope you continue to improve on your treatments - please feel free to ask any questions you may have.. lots of support and knowledge here.